Aa
bursitis
I just went to see my rheum Dr. I haven't seen him since January and it was preop for Chiari Surgery. Really I left the appointment feeling hopeless and thought he was mean. He had said that the chiari surgery would not fix everything and I was still going to be in pain. Based on his letter my NS had cancelled my surgery which ended up being a big misunderstanding and rheum Dr. said no you need the surgery it is not going to fix everything. So long story short I have been in a lot of pain from EDS and fell really hopeless as nothing helps. I recently went to NL...nightmare she basically told me to exercise and didn't feel problems were neurological and when I tried to explain anything was EDS she would tell me to quit talking about it that EDS means nothing to her. I left there crying and more hopeless. I have been on celebrex by PCP for the last month due to bursitis in hips and heels and it is not helping. Today after laying in bed for 2 days decided what do I have to lose I will call rheum and make an appointment. I thought maybe he did not want to treat me preop as I was on so many meds and getting ready for brain surgery and after all he was right the surgery did help but did not fix my overall pain. Today I saw my rhem and he was very nice. He said quit the celebrex it is not working. He put me on tramadol and said take 2 extra strength tylenol with it and he feels it will be better for my overall pain. He took xrays of ankles and said that heels have spurs, bursitis, and tendonitis. He said that we need to try shoes that stabilize the heels (said my dress shoes are bad for work and really need to wear high tennis shoes and gave me a note) and tramadol and if it does not improve I will need to see orthopedic foot surgeon. He said often they will cast ankles to improve this issue but we need to try this other route first. He injected my hip with steroids and pain meds to see if that will help the bursitis pain in hip. He did a large enough injection (actually multiple in the hip) that he could only do one today. He said if it works I should know in 2-3 days and then it would be okay to do the other in 2 weeks. The injections can be done every 3 months. He said he could not inject my heels as it would cause the achilles to rupture. (ouch) So here we go at least with something else to try:)
Sleep has always eluded me too....I always fall asleep just as it is time to get up...hate that...ugh....the taking of antihistamines has helped me BIG time.
What about a nice ankle boot...there r some nice ones u could wear that r fashion forward....???? My DD just bought a cute pair....
Yeah I'm going to have to shop...the foundation has to be really good too...I get that shooting nerve pain between toes and arches are collapsing
I always liked White Mtn shoes....and another brand I can not remember the name but a nice soft spongy sole....perfect for my achy feet....lol....airesoles or something like that....
When I was young, teens I used to wear boon-dockers...high top work boot...they were sooooo comfy but not fashion forward at all.....
yeah I have tried white mountain, born, and last is clark...nothing helps but Dr said it is because loose ankles have caused heel tendonitis, bursitis, and I have heel spurs. I did buy ankle "braces" today that can go down in my shoe to see if that will help....
Okay so "high" I was referring to ankle and that is not how the tennis shoe supports the ankle. Next time I need more clear pictures. I decided to buy ankle supports and wear my dress shoes. Well that didn't work and ankle supports were pushing on Achilles and tearing skin...no good. Then I was trying to get out of my car and Achilles hurt so bad that I rocked back and smacked the back of my head on the car door frame...not good for a chairian...it hurt so bad I thought I was going to throw up! Well I went to Elite shoes that specializes in watching you walk and fitting shoes the day before I hit my head. When you go to this type of store they recommend shoes and you loose the option of looking for certain colors or cute shoes. I left there with Brooks Dyad being the best option and wanting to cry over how ugly the sole was and that it was going to look horrible with my dress clothes. It is not the highness of the ankle of the shoe that supports the foot but the way the base supports your foot. I know now that my ankles roll on the outside. The base of this shoe is wider and very supportive. (it does feel nice to walk on) So after hitting my head I went to another store that specializes in the same thing Gary Gribbles...guess what it came down to the same darn recommendation. So I bought the ugly shoe. Since my Dr wrote a note for me to wear them to work I did yesterday...1/2 way through my work shift I wondered where my ugly shoes had been my whole life. It even felt like my hips were staying in a better location probably since the ankles were staying in a better position...I just wanted to share an update:)
Ugh it seems like there is a period with every medication change that there is a couple days where there is great improvement and back into the pain cycle...
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