Hey Melissa-
I too am in the same boat as you. I'm 36 with stage 4 endo. Currently waiting for my third surgery which I hope will fix things long enough for me to conceive. I've never wanted anything so badly, nor have I suffered through anything so horrible in my life. I need support as well, and love to give it. Feel free to PM me any time. I haven't been able to have intercourse with my partner in 4 months. Every time we try, I feel like someone is going at me with a butcher knife. He won't even attempt it anymore, even when I beg because I miss the intimacy soooo much. I haven't had much luck with the facebook groups (maybe ticked can give me some advice as to how to navigate them as well) I am applying through the Endo Warriors site to set up a support group in my area. Since I recently starting posting about my struggles on Facebook, I have received countless messages from women I know that are suffering too, and from men whose partners are suffering. It is a terrible disease that we keep too quiet about. Please feel free to message me privately on here. Or I can PM you my email address or Facebook name privately if you prefer.
You are not alone. It is important that us endo sisters stick together!
Hugs,
Lu
I sent you a message on here, did you read it?
thank you! i would love to join some groups. i have had a busy week so have not been on here too much as of late, but i would really like to try some Facebook groups. :) i should be pretty easy to find. melissa travers is my name i don't think i have any blocks up for friend/message requests
I am sorry for what you are going through. I am in the same boat. Id love to chat if you need someone. I am also on Facebook, and the Endo groups I am in are amazing. You ladies could probably find me on fb too, Jessica Jacobs
Perfect. I am going to message you my Facebook name so you can find me and I can direct you to the right places plus I will message you some good links but I think the girls could properly direct you :)
thank you so much! I am interested. I talk to my mom, but limited because she is my mom and there is only so much i want to divulge regarding my sexual life. if you would not mind suggesting the groups on fb that would be wonderful. I am a nurse and my days are long so I do have lots of distractions! but at the end of the day when I get home it would be nice to read how others are doing and be able to message how I am feeling. Support is so important. thanks again. xoxo
Hi Melissa
That is difficult isn't it? I hope you can find some support here on Med Help. There are plenty of ladies here who understand how difficult this journey is. My husband and I tried for 11 1/2 yrs, I had several surgeries, 4 pregnancy losses, and many IUIs and IVFs before we had our daughter earlier this year. If you ever want to chat I would be more then happy to help.
I can understand it is tough to face social pressures at this stage. the best way is to consult a reproductive expert and seek medical advice. I lost few precious years of my life finding the right treatment and the right doctor as we moved from my home country to the US. We could never time our attempts to conceive, because i always had irregular periods and my husband felt too stressed out if asked to have sex rather than having the desire to do it. it is tough to dodge questions about family planning when friends and family constantly ask something.... my standard reply would be ' you will be informed when the time is right...' after a while people stopped asking us these questions.
I can tell you that there are multiple IVF/Infertility groups on Facebook that deal with women who suffer from Endometriosis as well as twitter. I wouldn't say leave here to go there but I do want you to know there are thousands of women I know personally and a lot of them are going through what you are. I actually have a couple of special ladies that are very fluent in this and are very compassionate and can help with options and support if you are interested. :)
hugs xoxox