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Avatar universal

What do I do?!

In March of 2005 I went to a sexual health clinic and mentioned that I was having minor pain on my right side when sneezing etc.  The doctor advised I probably had a cyst, and if I was concerned, to let my family doctor know.  I let it go.  

In June of 2007, I was finding that the pain on the right side was becoming more persistent, especially when laying down and coughing, or sneezing.  My family doctor referred me to a gynecologist to be seen in March of 2008.  

In October of 2007, I was working out and experienced an awful shooting pain in my right side.  I rested, and let it go.  A few days later I was driving, and sneezed.  The pain was so incredible that I nearly drove the car off the road.  I realized I needed to see someone immediately.  I went to the walk in clinic and had an ultrasound done.  They said I had a 2inch hemorrhaging cyst on my right ovary, and in six weeks, I should return.  

Three weeks later, I found myself in the hospital with horrible back pain accompanied with sharp shooting pains on my right side.  They could not find anything (not even the cyst), gave me a shot for the pain and sent me home.

Being alarmed by the severity of my pain, I demanded to see a gyno sooner than March.  There weren't any taking patients within the tri-city area, so I was advised to look for someone on my own.  Finally, after calling doctors and begging them to see me, someone agreed to see me in Jan. of 08.  

After explaining my pain, the gyno advised that she suspected I have endo.

She put me on LoEstrin to take continuously (no placebo week), and told me to come back in May.

The last 16 days I have been discharging black stuff, along with regular menses.  I have been in a lot of pain, particularly aching in my lower right back, which sometimes radiates up my spine and down my right leg.  When stretching, coughing, laughing, sneezing, during sex, bowel movements, and sometimes urinating, I find myself wrenching over in pain.  Even reaching over to get the remote control had me doubled over.  

This just passed Monday I was admitted to the hospital for a severe migraine accompanied with high blood pressure (I am just shy of 22, healthy eater and quite thin), and pains in my pelvis.  They said that they suspected that I had been hemorrhaging again and was experiencing Toxic Shock from the blood.

The gyno wants me to keep up with the LoEstrin until May.  I am getting to my wits end.  I have missed 6 days of work this year already (we are given 10 a year!!), and my relationship with my boyfriend is suffering as I rarely want to be intimate, and when we are, it usually ends up with me in tears.  My social life has gone to the dogs, my roomie feels like he has to walk on eggshells with me being so moody, and I think I have been denied a promotion recently because I am not 100% on my game.  I am not nearly as active as I used to be and am gaining weight, which is resulting in a lowering of my self-esteem.  As if that wasn't enough, the pain is horrendous.  Getting out of a car puts me on the brink of tears.

I have been using Anaprox for pain, but it really doesn't do anything.  I have more recently been taking three 400mg extra strength advils all at once, and even that doesn't completely alleviate it.

I need some advice, and some encouragement.  I think this is beginning to send me into a downward spiral that could result in depression.  I feel so defeated, angry, frustrated, and upset with this situation, and all I want at this point is for them to remove the entire thing just to end this nightmare.
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Avatar universal
There is a clear fluid coming out of the belly button wound... the skin around the belly button feels like it is getting firmer (from swelling?).

I had another poo.  This one was horrible.  I don't even want to talk about it.

This sucks.  I am feeling pretty miserable right now.
Helpful - 0
271770 tn?1221992084
Help with the recovery process? Well you just need to take it easy and don't do too much too soon. Also, gentle exercise in a week or two will help.

I don't think it's infected from what you've said. Mine were very similar and I thought I had an infection too, but it turns out they were fine. Like I said, yellow puss, odour, fire engine red and angry. Other than that I'm not sure.
Helpful - 0
Avatar universal
Warning...the following may be considered TMI (too much information).

I pooed!  Haha!

It was actually not as horrible as I was expecting.  I figured with all the T3's I would be constipated, but I was smart enough to eat a lot of bananas and other fiber foods.  I didn't use any force... I just shifted around a little bit, and it did it's thing on its own.  

So I pulled back the band-aids on both incisions.  The lower one looks awesome.  The belly button one, not so much.  It's purplish red, and there was some dried and wet blood.  Still debating whether or not it's infected or just bruised really bad.  Any ideas on how to definitively tell?

I can feel that I am still releasing a lot of gas.  I am still quite bloated, and I have been burping/farting a lot.  Pain in my shoulders are gone, but when I lay down, I sometimes feel like I have pressure in my heart...

Back is hurting a lot... I have been walking slouched over, and sleeping on the couch, so I think it is taking a nasty toll on my back.  I really want to stretch out onto my stomach, but obviously I can't.

So the doc said that the surgery may stir up hormones that will induce my period.  Up until now, I was pretty lucky with just a bit of spotting.  Today I am bleeding a bit more, and I can feel the pressure in my uterus.  I was hoping I wouldn't get a period... it only adds to the discomfort, and really isn't doing much for my mood.

This whole "oh you will be up and doing everything in 2 days" **** is.... well... ****.  I am really glad I have 2 weeks off of work... I don't think I would last an hour if I were to go back sooner.

Anyway, any suggestions on how to help the recovery process?  Any info on Adenomyosis?  Any tips on how to determine for sure if the incision is infected or not?  Thanks!
Helpful - 0
Avatar universal
My belly button incision is purplish red, and is incredibly tender to the touch.  The lower incision is totally fine.  Doesn't really hurt, and isn't showing signs of bruising or anything.

Still haven't pooed.

For the most part I am able to get around... just have trouble getting up from laying or sitting down.  Haven't been eating much... haven't had that much of an appetite.

Sleeping A LOT.  I have been taking the T3's and just passing out.  I have probably slept more than I have been awake (which is good).

Getting a little restless.  I want to take a shower/bath, but don't think that it's a good idea until my belly button incision shows signs of improvement.  If it doesn't seem to be getting any better, I will go to the clinic.

I have been by myself since Friday afternoon, so I've been doing everything on my own.  It's not easy.  If you're planning to have a lap done, try to arrange to have someone around to help you out for a couple of days.  I think it would have been a lot easier on my body had there been someone around to help me up and around today.

Anyway, any further advisement/explanations/experience on the Adenomyosis would be great.
Helpful - 0
271770 tn?1221992084
You are NOT a big baby! It's totally normal that you are going through all of this pain. Quite frankly I think it is important for people who are having an appointment to know that it's not going to heal in 3 or 4 days and that they need to take time off. If they can get someone to help them out for a week or so then all the better. To give people false hope about how easy and quick the procedure will be is not a good idea in my opinion.

Yeah, I was hunched over but I slept in bed, which was right near the toilet. I did have someone to look after me but then that only lasted a day because they had to go and see to their other daughter, leaving me alone 2 hours from my home. So whatever I did had to be done by myself. Fun times :-)

I would go to the Doctor tomorrow if your belly button doesn't heal. I seem to recall not doing a poo for ages too.
Helpful - 0
Avatar universal
I am in Canada.

I just woke up... and I feel pretty rough.  The incision on my bellybutton is still incredibly sore, whereas the other incision doesn't really hurt at all.  I have internal pain, but nothing more severe than my normal endo pain.  Really, all the pain is in the bellybutton cut.  My back is starting to really hurt too (probably from the way I am walking hunched over and the way I have been sleeping... on the couch).

I haven't had a bowel movement since Thursday morning, and so I am starting to get nervous and worried that I will need to take one soon.  I don't think I will be able to relieve myself.  I can barely pee without bawling my eyes out, never mind having to push out a poo.

I feel pretty awful right now.

Sorry to those of you reading this who are scheduled for an appt.  Ignore me, I am just a big baby.
Helpful - 0
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