I am 30 yrs old and had a complete hysterectomy in Feb of this year at 29. I have ZERO mojo desire what so ever. I als think its great to live pain free. I too had all removed except my cervix. Also had endo on my bowels. I am not on any replacements because my disease was so bad and we fear it reactivating and growing elsewhere. I have put on about 20lb at minium since the surgery. I cant seem lose any. Enough of my rambles I just wanted you to know you arent alone. I feel for you and Im here if you want to talk
Your welcome. There are many Endosisters on twitter and I have a blog if you are interested. Lots of support for sure is out there with women who have gone through similar issues. This is a taboo disease and a taboo subject so we are left with guilty and that isn't fair considering how much we suffer.
I wish you all the best and please consider Twitter as a support chain through these times. When I am in a dark place I always go there to help others and it helps me. There are Endosisters from all over the world and I can hook you up with them.
Let me know. Most of the info is on my profile. If you need anymore message me :)
Thank you for being so open.
My husband is very supportive but I want to leave as I think if I am not here and on my own then all these rubbish feelings would go away and I could move on and not have to worry or think about all these stresses. I even thought about leaving work too as it was all a constant reminder and just go somewhere where no one knew me!
My husband says that if we never have sex again then that is alright with him as long as I am happy but if I said fine we are never to have sex again I think he would run!
I think I am going to speak to my doctor for advice.
Thank you
It might take a while for it to come back if it does. This is one of the cons to a hysterectomy from what I have heard and researched. I think the best thing would be to go see your doctor to see what he can give you to help.
I haven't had a sex drive in 2 yrs and I have not had my hyster yet this disease robs you of that unfortunately however taking things slowly would be best.
Even talking to a therapist might help as well.
Is your husband understanding or is he getting angry at this? Is it the guilt from you that makes you want to leave?
I can completely understand as I often think that if I was alone I could't hurt someone when it comes to emotions as well as sex. I just don't want it. To me sex equals torture. It has never felt okay. However my husband is understanding but for how long right?
I am sorry that you are going through this but if you want to talk there are many boards on Facebook, one of the best boards is EndoMetropolis.