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endometriosis help
Hello, I have never posted before but I have read that these discussion forums can help. The doctors are pretty positive that I have endo, I went to my normal gyno and also went and got a second opinion. Apparently, I have cysts on my ovaries that rupture whenever I start my period. I have been in and out of the ER so many times that they probably think I'm a regular by now. After a certain point, I stopped going to the ER when the pain gets so bad and just take sleeping pills to attempt to sleep off the pain, but this doesn't always work.
My doctor wanted me to try to use different birth controls to manage the cysts and skip my periods. I know this may sound stupid, but I just don't think that skipping periods can really be healthy for the body. I did this for a while, but I always had break through bleeding and when I did get a period, they were intensified. I have tried the depo shot, which had me bleeding for three months straight and the NuvaRing which seemed to give no relief as well.
After looking for any sort of relief, I went to my gyno and asked him if it was a good idea to go off of birth control and attempt to manage the endometriosis naturally. He said that it would be fine to try if I wanted to. So, I have been. And now the endometriosis has taken over my life entirely. I used to only get the pain when my period started, but now it is daily. My back is a lot of pain all of time...and I mean ALL THE TIME. I am so overcome with fatigue that I can't focus on anything other than trying to find a solution to this pain. I just feel as though no one understands this pain, they think there is a simple solution and there isn't. I go back to the doctor on July 27th and he wants me to schedule surgery then. I just hope that the surgery will give some relief. He also suggested going on the Lupron shot after surgery...has anyone had success with this? The side effects completely terrify me!
My doctor wanted me to try to use different birth controls to manage the cysts and skip my periods. I know this may sound stupid, but I just don't think that skipping periods can really be healthy for the body. I did this for a while, but I always had break through bleeding and when I did get a period, they were intensified. I have tried the depo shot, which had me bleeding for three months straight and the NuvaRing which seemed to give no relief as well.
After looking for any sort of relief, I went to my gyno and asked him if it was a good idea to go off of birth control and attempt to manage the endometriosis naturally. He said that it would be fine to try if I wanted to. So, I have been. And now the endometriosis has taken over my life entirely. I used to only get the pain when my period started, but now it is daily. My back is a lot of pain all of time...and I mean ALL THE TIME. I am so overcome with fatigue that I can't focus on anything other than trying to find a solution to this pain. I just feel as though no one understands this pain, they think there is a simple solution and there isn't. I go back to the doctor on July 27th and he wants me to schedule surgery then. I just hope that the surgery will give some relief. He also suggested going on the Lupron shot after surgery...has anyone had success with this? The side effects completely terrify me!
My personal suggestion is that you find an Endometriosis specialist not a gyno to do this surgery. It is very important that you have someone that knows all the different looks of endo and also someone who is skilled to do excision.
Endometriosis is a multi organ disease so if you do have endo in other places a regular gyno will leave it behind because of lack of experience as well as fear. That is why I am emphasizing that you see an endo specialist. Make this surgery count.
I was on continuous BCP for 8 yrs and it helped me a lot. I had breakthrough bleeding every 3-4 months for 3 days then I would go back on it. Yes it is not normal for a woman not have a period but it's also normal to treat endo with BCP as well. I am so thankful the BCP worked for me all that time and I had a great surgeon. This is key when wanting to get the closest to a pain free life.
If you want to do natural that is great as well but unless you have Endo removed it will continue to grow period. There is no cure for Endo but Excision is the gold standard when it comes to surgery and its a skill that not many surgeons have.
Let me know where you live so I can help you find someone who is reputable and skilled .
Endometriosis is a multi organ disease so if you do have endo in other places a regular gyno will leave it behind because of lack of experience as well as fear. That is why I am emphasizing that you see an endo specialist. Make this surgery count.
I was on continuous BCP for 8 yrs and it helped me a lot. I had breakthrough bleeding every 3-4 months for 3 days then I would go back on it. Yes it is not normal for a woman not have a period but it's also normal to treat endo with BCP as well. I am so thankful the BCP worked for me all that time and I had a great surgeon. This is key when wanting to get the closest to a pain free life.
If you want to do natural that is great as well but unless you have Endo removed it will continue to grow period. There is no cure for Endo but Excision is the gold standard when it comes to surgery and its a skill that not many surgeons have.
Let me know where you live so I can help you find someone who is reputable and skilled .
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