lupron

[sawiam]

Hello on May of 2005 I had a hip to hip open surgery for Endo and sists (spl). Now the pain is worse than the first time. They want to put me on Lupron for 9 months.Do you feel that is a good idea, instead of surgery again? I thought about having a historactomy (sorry) (spl).But I am only 41 and was told that I could be in mentapaus for years,and that it could grow back. All to much to bear!!!!!!!!!!!! Any ideas? Thankyou, Samantha

[ticked]

some doctors just dont have  clue when it comes to endo.  Why leave an ovary and have a hysterectomy?  that makes no sense.

it frustrating the most when people around you dont know what you are going through and have no idea what pain you are suffering.  I am alone in this accept for the people I have met online that suffer with this unbearable disease. at least we all can be an ear to listen and give some kind of hope to each other.  

[Cher1010]

I will be 42 this year.  I had my hysterectomy last May, which incidentally was my 6th major surgery.   I suffered for years with endometriosis and was not diagnosed until 1993.  I struggled with infertility also - had a normal pregnancy with my son, and then the troubles began .... had an ectopic pregnancy (one of three), as I also had surgery to repair my tubes.  I then became pregnant and had a miscarriage.   I then became pregnant again, and was blessed with a daughter.  The pains associated with the endometriosis became more intense and unbearable over the years and I opted to do the hysterectomy last year, hoping that I would get some relief.......it was not to be.     My doc removed one ovary, as he did not want me to go into menopause so soon.   I really wish that he removed both.   The pain is unbearable especially in the rectum.  He prescribed Lupron with I refused to take because of the side effects...  I now have an endometrioma on the ovary now, I am supposed to be having surgery to remove it and the ovary..... I am extremely frustrated!!!!   this is really too much!!!   I truly understand how you feel....

[ticked]

I am 31 and I had my first surgery for endo last June.  I was diagnosed with stage IV endo.  I was put on the Lupron but after three months i had to come off it because of the side efffects.  After i came off it I started to have symptoms of fibromyalgia and chronic fatigue syndrome come back after it was gone for about 2 yrs.  I am so angry because i was in pain before the surgery, but since having the surgery i dont feel any better except for the fact that I can have a normal Bowel movement now.  I went back on the pill continuosly after the lupron and i have never been the same. It wasnt working so the dr suggested the lupron again and me like the dumby I am started it again.  I cant say that it doesnt work but i think its effects are the same as any other BCP. It isnt worth the risk in my opinion. By the time I am 35 i am having a hysterectomy by choice I can not live this way. I cant wait until I am in menapause.  Alot of your pain could be scar tissue build up from such a sugery.  Why did they do a laparotamy and not a laproscopy?