Aa
Photophobia, Eye Pain, Trails (palinopsia), Dark Spots, shimmering, flashes
Open to all ideas!
39/f. Sudden onset in November, 2006...started seeing trails behind moving objects. By Feb., I developed severe photophobia with eye pain...which invariably led to a killer "brain freeze" headache above my brow. A couple months later, I noticed several dark spots and squiggles in my vision. They've been multiplying to the point they're really distracting in day to day life. By summer, I developed occasional flashes and streaks in my peripheral vision. All of the above mentioned complaints have continued 24/7 to this day. This week, I noticed the air seems electrified, or slightly shimmering...as if my sight is just TOO good. I feel like time is running out for my sight...or my sanity (I think I'm allergic to pain)....which led me to mad-crazed googling...which eventually led me here.
About my medical history....I've been checked by a neurologist, ophtalmologist, neuro-ophtalmologist, and back to a neurologist. All findings are normal including eye exam (20/20), eeg, and mri. Diagnosed with an autoimmune thyroid disease (post-partum thyroiditis and/or Hashimotos depending on which dr you ask) and, what I would describe as a life long "blah...whatever....I'm exhausted and just want to sleep" disorder. The latest neurologist thinks I have a degenerative autoimmune eye disease that effects the retina. And...she's pretty sure I have lyme disease. Another dr. is sure it's lead poisoning and/or lyme. Many new Dr. appts in the next couple of weeks with many more test results.
39/f. Sudden onset in November, 2006...started seeing trails behind moving objects. By Feb., I developed severe photophobia with eye pain...which invariably led to a killer "brain freeze" headache above my brow. A couple months later, I noticed several dark spots and squiggles in my vision. They've been multiplying to the point they're really distracting in day to day life. By summer, I developed occasional flashes and streaks in my peripheral vision. All of the above mentioned complaints have continued 24/7 to this day. This week, I noticed the air seems electrified, or slightly shimmering...as if my sight is just TOO good. I feel like time is running out for my sight...or my sanity (I think I'm allergic to pain)....which led me to mad-crazed googling...which eventually led me here.
About my medical history....I've been checked by a neurologist, ophtalmologist, neuro-ophtalmologist, and back to a neurologist. All findings are normal including eye exam (20/20), eeg, and mri. Diagnosed with an autoimmune thyroid disease (post-partum thyroiditis and/or Hashimotos depending on which dr you ask) and, what I would describe as a life long "blah...whatever....I'm exhausted and just want to sleep" disorder. The latest neurologist thinks I have a degenerative autoimmune eye disease that effects the retina. And...she's pretty sure I have lyme disease. Another dr. is sure it's lead poisoning and/or lyme. Many new Dr. appts in the next couple of weeks with many more test results.
How would you treat the fungus? I would get on antifungals... have you tried that?
I have this and other symptoms. The stuff in everyone's eye is a Fungus. No one in the medical community will acknowlege this and all my doctors refuse to treat, biopsy or even try to look for the possibility. I've been watching it grow for over a year . It took about a year of searching on the internet to find others with my symptoms . Same thing. Their dr keeps telling them they are fine. Meanwhle, eyesite is deteriorating.
I just created the web page www.palinopsia.com for folks with palinopsia and other odd visual disturbances to gather.
MEDICAL PROFESSIONAL
You obviously have a dedicated and skilled team working on your behalf. Some diagnosis are as hard to discover as looking for a unicorn. Your problem is not "classic" for anything. Stick with your physicians, it looks like they are closing in on the cause and once the cause is determined then they can start to work on treatment.
JCH III MD
JCH III MD
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