Vision and eyes

[aaronh819]

have been having such a terrible time for so long with eye pain and terrible visual disturbances. Been to multiple specialists had an mri ct all with no avail. The last few months it’s became debilitating progressing so fast I have no idea what to do. Having to lay in bed with a wet cloth on my eyes for hours upon hours because of the pain. My eyes have became red also all the time. I’ll try and describe the visual problems or at least what I can think of there’s so much. Terrible visual afterimages constantly seeing everything you look at repeatedly, seeing clear outlines of everything you look at whenever it’s bright, tons of floaters, white dots everywhere whenever looking at the sky or anything bright, flashes of light all the time from white to blue or black. Even when I close my eyes I always see blue light even when I’m a dark room with my eyes closed for hours I can’t ever get rid of this.  I never heard of anyone seeing blue like this all the time with eyes closed. Also have an arc of light in the side of my right eye almost all the time, extremely bad light sensitivity, if I see any glare of light or head or taillights or anything it gets burned into my eyes for minutes. I cannot find help it is progressing so fast I’m beyond terrified. I can even look at my phone or anything and look around and see a black outline of whatever I was looking at for minutes. There is so much more going on with my vision and head pressure and so much more I could never list it all. I also have been having weird pains and feelings in my head muscle twitches almost nonstop and so much more. If anyone has experienced anything like this please help me. I have lost all faith in the medical field just keep getting put off months at a time. I Pray more than anything for healing. Please anyone that can help please. Thank you

[John C Hagan III, MD, FACS, FAAO]

Where do you live? What types of specialists have you seen?

[aaronh819]

Central KY. Four retina specialists, neurologist who was gonna refer me to someone higher than him and never did my regular opthalmologist. Someone had mentioned Lyme which I was bit by a tick a few months before things started I found a Lyme specialist but even he can’t understand my vision and eyes progressing so badly. It all started out of nowhere but is progressing terribly. Was in so much pain and torment I went to the university of Kentucky just to be sent home with an appointment 2 months later. There’s no way I can wait that long there’s has to be someone that has heard of this or can help

[John C Hagan III, MD, FACS, FAAO]

Vanderbilt has excellent Dept of Ophthalmology. Might see neuro-ophthalmologist or cornea/extrernal disease.  Emory University in Atlanta where I trained is great.  U of Louisville also good.   If you have the resources you might go to world class tertiary referral center such as Mayo Clinic in Rochester, MN  just to get a diagnosis then carry on with place you can get to on regular basis.  Or you can call the neurologist and lean on them to get a referral going ASAP.   In Nashville the Toyos Eye Clinic is well thought of but not a referral center like the others I mentioned.