Flare Up

[thester6474]

Anybody else experiencing a major flare up right now?  I have been at the point where I can barely move at times the last few weeks.  My PCP pressed on the trigger points, and they were highly sensitive.  He said the ones used in movement were the ones most affected.  He told me that I needed to stay home, if possibe.  He said that my muscles and joints were affected, and gave me a steroid shot.  I can barely do anything with this burning.  My student's actually ask me when we are out of the classroom, if I need them to go get my TENS unit.  What do you guys do to get you through the flare ups?  I have had a medicine change recent too, changing from 8 2 mg Zanaflex to 6 --  10 mg Baclofen a day.

[thester6474]

He also did lots of blood work, four or five different vials, including sed rate.

[patsy10]

Myself, I just suffer in misery.  I don't know what to do about it.  I just had the same thing happen to me a few weeks back. I hope someone has a better answer than me.

[Caroline565]

No matter what we do, somehow we can't avoid these times. My only advice would be to reduce your stress, apply moist heat, get good rest and be very kind to yourself. There are times we can figure out a reason for these flares but most of the time, we feel we've been ambushed! I know I often have--they seem to happen right after a period of time when I've been feeling extra good. Is it possible that we let our guard down? I'm not sure.

I am dealing with a lot of low pressures where I live and I'll tell you, I can really feel them coming! Everything that ever hurt is hurting but I know as soon as the barometer goes back up, I will be OK. Spring itself is worse for me than winter because it involves a lot of these pressure changes. Just remember, flares do go away too. I hope you are feeling better real soon!

[VaBreeze]

Are you still taking the Low Dose Naltrexone?  We were curious about how that worked for you.

Hope you feel better soon.

[thester6474]

Yes, I am still on the LDN, capsule form.  My last batch of LDN was not compounded correctly, nor was it dosed correctly.  It was full of fillers and things that should not have been included.  The more basic the LDN, the better.  I have been on the new LDN capsules for over two weeks now, but with this flare up, I am unable to see any positive (the pain is horrible). I have been unable to walk these last three days.  My joints and my muscles were inflamed Friday.  My joints are actually protruding now, highly highly visible.

[jenmarie410]

I just joined as a new member for the very same reason today... I'm having a flare like I've never had and I don't know what's causing it.  I'm sorry to see some of you are exeriencing the same thing right now. I feel, literally, like I was having permanent charlie-horse in my thighs and it was radiating down my legs. OHmygoodness, it hurt so bad. I took quite a bit of pain medication which only worked when I combined it with a muscle relaxer. I never have to take muscle relaxers. This pain seems so different from the usual FM symptoms I have. I just feel majory bruised right now... after that burning, stabbing, pain that sent me home from work. If anyone else has any ideas...let me know...

[Sunshine1960]

Me to - it has been miserable. I am so sorry for everyone, I know how you feel. I have just received 6 steroid shots - all the trigger points in the both shoulders and base of neck and still hurt. I was just dx Feb 6th and really thought it was Tamoxifen until now. I would really love to go one day and feel no pain. PM doctor is trying to find the right combo and so far it's eased up alittle, but a long way to go. I am hear to listen, learn and maybe help a few that are hurting like me. Good luck to everyone, hope to get back to enjoying Life, Kathy

[thester6474]

I am sorry for everyones pain, this seems to be a major problem for all FM sufferers right now.  My joints and muscles feel like they can barely go, and the pain, the burning pain inside them is so severe it has me crying at times.  If I flex my joints, you can see them protruding a great deal outwardly.  I just wonder why this is going on, if FM doesn't cause any damage.  I think the scientists that came up with FM criteria need to sit back and regroup.  

[TMum13]

I am new to this forum I am 33 yrs old and have suffered with FMS for three years now after a car accident.  I notice flare ups are quite comman when immune system is low. Around ovulation and AF seem to be quite comman for flare ups and of course changes in weather do not help.

I am trying to conceive and have been having a flare up because of the hormone medication for the last two weeks.  I have been worried about if I do conceive if flare ups might get worst and what pain medication would be safe during pg.  If anyone has experianced this please fill me in on your experiances. Thanks.