Disability and Doctors

[susieQ1960]

I have been to many, many doctors and specialists over the last 3 years. My major concerns at first were my seizures and continuous headaches. I have other issues, too, which add to the difficulty in diagnosing my health problems: intolerance to heat, weak leg muscles, difficulty swallowing, eyelids that malfunction, extreme fatigue, swollen lymph nodes, chronic constipation, lack of concentration, chronic EBV infections, and sleep apnea. When my headaches are at the maximum pain level, the pressue is intense and the left side of my face swells. (This could be due to scar tissue from brain surgery in 1996. Nobody knows the answer to that.)
My PCP is a small town doctor and just lately has thrown up his hands and does not know what to do with me. I made an appointment last week to meet with him to ask him to clarify something in his notes that was submitted to my disability insurance company last year. It was a statement that my attorney believes the disability insurance company used to stop my disability payments after 18 mos. regardless of contrary remarks made by other physicians, including a few neurologists.
My doctor would not take the time to write a letter. All he did was jot down some notes about our visit and made a copy of the notes and handed them to me. I can barely read his writing. What am I supposed to do with his scribble of notes now? I was so upset that the paperwork that was sitting in my lap was full of teardrop stains. I was so determined not to cry during the visit but I was so frustrated.
His file on me contains all the tests and remarks from all the specialists I have seen and I believe they leave it up to him to determine whether I am well enough to work but he refuses to make that decision and says that I should get letters from all my specialists instead. I wish doctors would communicate like they used to ...
Just had to rant and rave a bit ...
Has anyone else had this problem?

[fibromed]

i did finally get cpp (canada) but i put all the papers in a box and do never want to open that box again - i know i need to keep the documents and my letters of woe that often fell upon deaf ears but as thester6474 says - it only takes one - and occupational or physio - higher up the better maybe - therapist can fill out the forms - get letters from anyone you can - its good you have legal

[thester6474]

I am sorry that you all are finding it so hard to find a decent PCP..I am lucky that even before diagnosis, my PCP was okay with putting me on disability...He knew that the symptoms had worsened, and before I could get the words out of my mouth..He told me to bring him the paperwork...And so on...I noticed though that in my area, the Specialists seem to be total butts...The two I asked would not sign for me..But keep in mind it only takes one, so keep asking...

[fibromed]

im new here but not new to fibro and the ignorance of many - i cant remember many visits to the doctors that i didnt come out crying for one reason or another - and how rude and hurtful some people can be is well...unfathomable and deeply depressing - maybe you could type or have someone write what you would want the doctor to say (or what you think he/she should say) and see if the doctor would sign it for you - remember to date all correspondence and make sure the date of onset match - i know doctors that the gov or ins people send you to are paid too much ($1,500.00/per visit here) to say no-you dont qualify for benefits
good luck

[texasrose204]

I can relate to you with the dr issue! i have been off work medical leave since oct. my rheum. said he doesn't usually sign these kinds of paper!  (said he made a exception in my case) that was for my employer but wont sign my dis. insurance papers just send him my notes! he says i would need to go to my primary dr, well he is not the one treating me for this condition! iritates me and i guess it would be the same answer if i was to file ssdi?  why do they act like it is taking money away from them personally? and he may be the dr but i would like for him to step into our shoes for a week!