I can not believe my doctor!!!! What do you guys think?

[kimmie305]

I was diagnosed about a year and a half ago with Fibromyalgia; I also have DDD and scoliosis.  I am a 29 year old female and the winter is really really hard on me.  My arms hurt, my legs, my neck, back, and hands hurt; my skin burns and I get really bad migraines.  I was going to a pain managment doctor and he was extremely rude to me.  I would end up crying after every visit; he basically accused me of lying to him.  Every doctor I have spoke to in fact has told me that I am too young to have this many problems.  One of my really good friends works for the doctor I am currently seeing.  He was really great and understanding.... At first.  He told me that he could help me and that Eventually this would all "go away."  My son recently got a rash on his stomache and arms, so I called his doctor and scheduled an appointment.  I was scheduled to see my doctor on the 23rd of this month; however, he prescribed my meds on the 19th... well anyone that has medication of any kind knows that the next month my meds would be available on the 18th and then the next month on the 17th because 30 days is always one day shy of the first RX accept in months of 29 days.  My sons appointment was today so I asked if I could get into my doc today.  The nurse asked me what I was there for and I told her I had to get my refills because I didn't have anymore so that is what she wrote on my chart.  My doctor came in very aggrivated and told me that he could not "take part in this" and that I am ADDICTED to my medication.  He then told me that because I am not making an effort to go walking outside *BECAUSE THE COLD HURTS ME SEVERLY*  that I am not even making an effort to get better.  He then asked me how many pills I take a day.  I am prescribed to take 4 lortab a day and lately I have had to take  4 a day and I am not sleepin well at all.  The cold makes my whole body ache terribly.  He told me that I had to be taking more than that because I was out of pills.  I looked at him seriously confused and said NO SIR I am not out of pills I asked to see you today because My sons doctor is RIGHT UP THE STREET FROM YOU. AND I hate to drive my son in this type of weather.  It is horribly cold, snowing, and icy.  Needless to say he had me so upset I began to cry.  He then told me that He would switch me to a pain clinic and offered me THE PAIN DOCTOR I HAD JUST LEFT and another one.   ????????????????????????
I just do  not understand SERIOUSLY.  I am beginning to seriously believe that there are NO good doctors out there.  How can a doctor sit there and tell you that you don't hurt like you say you do and ACCUSE you of being addicted???!!!!???!!! WTF???  excuse my language but i am seriously soooo tired of this bulll crap.  Because they go to school for a lot of years they have the right to sit there and demean me and my feelings and my pain?????  I am seriously starting to become depressed... I am at the end of my rope.  I do not enjoy hurting, I do not enjoy taking these meds and I do not think this is funny or some game.... THIS IS MY LIFE.... If it wasn't for my son I would seriously give up and shoot myself... But I can't because he needs a mommy and he is my whole world... he is the reason I fight everyday to get up and keep going....
Do I sometimes take a extra pill a day? YEP I sure do if i am in serious pain I will take one... does this make me a addict?  am I a horrible person because I do not like to lay in agony?  I take hot baths, I use heating pads, I have a heated blanket for goodness sake... I have done everything and tried everything that they have EVER asked... and yet EVERY doctor ends up treating me the same way...
WHAT DO I DO???  What do you guys do?  Anyone who takes the time to read this THANK YOU... SINCERELY... I am just soo sick and tired of this... its not right... i shouldn't be sitting here crying right now wondering if I am losing my mind and crazy.... I do not imagine this pain it is real... and yet every doctor I go to seems to think I am a liar..... I just wanna give up

[kimmie305]

I am sorry to hear that you have to deal with these problems as well.  I think that is the worst thing- people think that you are really being lazy!! Or they think are faking or pretending... who pretends to hurt like this?!?!? Who in their right mind would want to be looked at as if they were a liar or crazy or simply lazy??!??! It makes no sense to me... the more I hear of you guys hurting like i do, it makes me wonder how ANY doctor can actually look at us and say the things they say and do the things they do.... it makes no sense... If i were a doctor, i would want to help people!  I would want to go over every symptom over and over again until i could really truly help them and figure out what will work for them... why can't i find a doctor like that???  why can't we all find a doc like that?

do you have a good doctor?  were you able to find something that helps? You said that yiou have hurt since you were 7... i am so sorry... honestly i am..... keep praying... i do... and i look into my childs eyes everyday and i find a reason to get back up and keep fighting this battle... bc no one else is going to help us... we are going to have to keep fighting and searching ourselves

[ticked]

I think doctors are useless.  Its actually pretty funny because I think patients know more then the doctors at time and that is what gets the back up of many doctors.  

I have had no choice but to do my own research and find the right doctors etc etc because if I didnt I probably would have committed suicide a long time ago.

They make you feel like a piece of crap.  Its hard when your own doctor does not believe you.  I have switched to so many different doctors, actually I cant even remember them all there were that many. So half of my records are probably lost some where.

FMS and CFS suck I hate it and it has taken over my life.  

I could write a book about my journey in life.

emmy: I am there with you on having problems since childhood.  I have never been well. I have always suffered from headaches and body pain as long as i can remember.  I feel like I am 80.

[kimmie305]

I agree with you! Patients do know more... in some ways I think it is because we live it EVERYDAY... A doctor can never actually understand the pain we deal with... They have never had to deal with pain that is unexplainable and does not ever go away.... One doctor actually told me that because I am having a lot of trouble working out during the winter that it is my fault i hurt because ppl with fms HAVE TO HELP THEMSELVES....... Seriously... I just feel lost... my own boyfriend doesn't even understand it... he tells me its in my head... somedays i really wonder if it is worth the pain to continue on... but my child reminds me... he is my reason for keeping on going when I don't feel that I can.... ;As you said this stuff simply and utterly *****..
Im in a glum mood tonight... I tried to go shopping with my aunt, cousin, and my mom... i'm exhausted and I hurt all over... wanna sleep but can't bc i hurt... and honestly I am soooooooo tired of living like this...
Somethings gotta give... I wish I knew of ONE good doctor in ohio... I would travel where ever... I just want one doctor who wants to help me, who believes me, and who is seriously interested in what is happening in my body....

[windingdown]

My illness has chased off friends and some family my teen is all I really  have left, and that is becuase I never let her know just how bad I really am. When she comes home from college dorms on the weekends I make sure I have saved up all my eneries for her, and when she goes to work I am flat out again, its not a normal way to live I cant even get in the holiday spirit!! SAD!

[ticked]

Its funny how the things that people say can hurt so bad.  My sister once told me that I ruined our whole family with all my so called health issues.  From that day forward I cut her off and I dont make any efforts talking to her.  

Now that she has had her child she has problems of her own and I really dont care.  

I know thats bad because I am not that type of person but what was said by her at many occasions cut through my heart.

I dont think that there is one person that I know that can understand what I am going through.

It friggen ***** to live like this.

[jammin03]

Fibromyalgia and Chronic Myofascial Pain: A Survival Manual (2nd Edition) by Devin J. Starlanyl and Mary Ellen Copeland (Jun 30, 2001)

It seems like I have suffered most of my 63 years with CMP. An auto accident in 1996 pushed me over the edge with (undiagnosed) fibromyalgia. I went through every test and treatment before I got pro-active. My daughter brought me the above book (along with Starlanyl's other 2) in 2003 and it really helped me sort out what was going on. I remember that I was seeing a physician for my symptoms and he sort of shined me on. Then about a year later (I STILL hadn't fired him, silly me) he pokes around at my collar bones and says, "Why, you have fibromyalgia!" that was 2005 and he prescribed Cymbalta and Lyrica. You've got to figure than these docs who got out of school b4 anything was known about the syndrome are going to have a slower learning curve.

Fortunately, I changed docs and got one who understands that I have thoroughly researched my symptoms and conditions and am coming for a professional opinion and cooperation. We work together. She was a little shocked the first time I requested medical marijuana authorization, but I gave her a CD full of research on the effect of THC on muscle spasm and now she just adds authorization renewal to my yearly check up. I completely believe in educating doctors. This really is how medicine works today. You have to be able to tell them what is going on inside. In the 90's I had a team of 7 doctors treating me! Nobody had any answers and none of their prescribed treatments worked. The ones who helped most were a psychologist (who offered biofeedback to help me deal with chronic pain) and the rheumagologist who explained that some people have trigger points and some don't (CMP) and who referred me to the above psychologist.

What I have learned is that I have to treat myself if I want to live. If I lay around I will once again become unable to walk and that creates all sorts of other medical problems (heart, lungs, digestive) that I don't want. Being active, moving the blood around, is the best thing for me. I have horses now and getting up to feed them everyday in the snow and ice is a challenge, but it gets me out of bed when nothing else could. I doesn't matter how much I hurt or how tired I am, if I can just get out and take care of their needs my day will be a success. The bonus is that I usually stay up and do so much more that the pain goes away (if you have chronic pain,you will understand this phenomenon.) I remember the bad doc mentioned above saying I couldn't be disabled if I had horses. More stupidity!

I try to keep pain meds to a minimum but in this cold season when all the other aches and pains kick in on top of the fibro I find that I usually use 1 vicodine before the day is over. . .In summer when the days are longer (I live in the NW) I take a nap  midday and can get by w/o that except for flares. I know about the kick-back of narcotic pain meds (make you hurt more when they wear off than you did before taking) and so I walk a fine line of not being dependent on them, but also staying ahead of the pain (and avoiding the ER!)