platelet;
Thank you for the response. Yes! I would love that information. went to the neuro yesterday and he wants me to have a LP. Seems so silly because having the Sarcoidosis there are going to be o-bands in the spinal fluid. And....that's what he is looking for O-Bands to dx w/ MS. Makes no sense to me.
Melissa;
I know what you mean about losing faith in the doctors. Been there and still there!
~T
My BP only goes down when I stand or sit....I'm glad to know what it is now though!!!
My doctor said it is common but I'm not sure if I believe him. I guess I'm losing faith in him.
Your post is interesting. The reason why I say that is because the protocol I was originally on was the Marshall Protocol. Dr. Marshall was told that he had only so many months to live (he was diagnosed with sarcoidosis) and he saved his life with his protocol. If I remember right, he discovered that the same pathogens involved with CFS were involved with sarcoidosis... and other illnesses as well. There are different sub-species of mycoplasmas. He's currently treating MS patients, lupus patients, sarcoidosis, Sjogren's, many CFS and fibro patients. And he's having success. I switched to a protocol that does the same thing, but without the antibiotics. And I'm still making progress, but it takes time.
Let me know if you would like some helpful links on this.