Hello everyone- This is a long post, so I apologize.
I have been having some "mysterious" health problems since December, and none of my doctors have been able to figure anything out.
Below is a list of all of the problems that I have been experiencing since December.
History of "recent" health
- Fibrocystic Breast Disease 2010- present
- Mononucleosis in 2007-2008- sick for almost 11 months
- Low platelets, white cells, viruses, diagnosed with Epstein Barr Virus
- Eventually recovered, hematologist considered Bone Marrow Biospy during this time, but not completed.
- Constantly swollen Lymph Node in left armpit
December 2013
- Exhausted, sleeping between 8-15 hours a night. Never enough.
- Can't wake up to alarms, or even to being shaken or told to get out of bed.
- Noticed muscle pains, joint stiffness and bone aches.
- Dizziness/headaches
January 2014
- Exhaustion continues.
- Notice severe bruising from bumping into simple things- figured I had Mononucleosis again as symptoms were mirroring my past experiences.
- Sleeping through alarms- sleeping still between 8-15 hours a night. Not enough sleep.
- Bout of confusion occurs in late January- initiates first doctor visit.
- First visit- doctor identifies severe bruising, running a fever, bone/joint/muscle pains, low platelet and white cell counts, orders CT scan of my head to explore potential causes of confusion (came out normal).
- Referred to hematologist
- See hematologist- initial reaction- Bone Marrow Biospy and monitor blood counts
- Go to ER for extreme abdominal pain- diagnose Thrombocytopenia and "abdominal pain", sent home with pain killers and put on all liquids diet.
- Dizziness/headaches
- 3 days later-Awakened by nausea, nothing for body to get rid of, incredibly sick, fevers.
- Next day, hematologist- low platelet and white cell counts still, but improved, tenderness in abdomen to the touch. See back in 2 weeks.
- Problems walking, physical difficulties lifting myself up to get out of bed. Minimal appetite, night time chills.
February 2014
- Went back to initial doctor for excruciating abdominal and back pain. Treated for Kidney infection with anti-biotic shot. Helped some, problem continued.
- Extreme fatigue and exhaustion, continued bone/muscle/joint aches, periodic fevers. Ready to sleep after minimally demanding tasks. Difficult time focusing on coursework.
- Diagnosed as recovering from Epstein- Barr Virus and Mononucleosis (again)
- 1 week later Back to ER again for abdominal and back pain. Abdominal CT and X-Ray- normal. Low blood counts.
- Saw hematologist- told my counts are good. See back in 2 months. Asked the hematologist why I still felt terrible. Said to get more sleep and go back to a regular diet.
- Saw a G.I. Doctor- went through my whole history and was not sure if he'd find anything. Scheduled a colonoscopy.
- Saw family doctor- somewhat discounted by doctor. Said because I am young that symptoms would be more concerning if I was older. Also said sometimes it takes time for a disease to show itself.
- Dizziness/headaches- attributed to fairly low blood pressures
- Problems walking, etc. Need help getting out of bed at times, chills. Minimal appetite. Some weight loss.
March 2014
- Bone/muscle/joint aches
- Ready to sleep after minimally demanding tasks. Difficult time focusing on coursework and concentrating in class.
- Returned to doctor for NEW symptoms- Shortness of breath and night sweats. Discounted- tested for strep..negative. Had a fever. Said I might be fighting something viral.
- Colonoscopy/endoscopy done- everything looks normal.
- Exhaustion to the extreme.
- * New symptom- night sweats
- *New symptom- paresthesia over night- awakened by feeling incredibly warm and nausea, ENTIRE body went numb, was tingly. Could not move arms, legs- had problems speaking and articulating words clearly. Left eye has continued to twitch since.
- Dizziness/headaches/chills
- Back to first doctor because I trust them and they showed actual concern for ailments. Referred me to have an MRI and MRA completed after paresthesia event. Had that completed yesterday- seeing a neurologist on Monday.
I am hoping that someone might see a pattern in these symptoms or have potential recommendations as to what could be wrong with me. I am starting to lose faith in some of my doctors, especially since my symptoms have not always been taken seriously. I feel absolutely dreadful and am getting to a point where I no longer even want to bother calling my doctors back when they call. My apologies if it sounds like I am whining, but I am sick, there is definitely something wrong, and no one has yet to pinpoint a problem. I am looking for help because everything listed above has been adversely affecting my life in an unbelievable amount of ways. If someone has any ideas, please let me know. I am incredibly concerned, and, if I am able to understand what is wrong, I will be able to begin recovering or at least slow down the progression of whatever is ravaging my body.
Thank you