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how do i help my family understand my pain?

Why do I feel like I have to continually explain why I feel so tired and the pain I suffer just to justify having a rest?


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1530171 tn?1448129593
perry350, hi!
Welcome to the forum.

You're one of many in the same boat.
I have been through all that myself.

There's a misconception of many -some in a subconscious level-, that the more attention they pay to the the discrepancy between how they feel about their own pain and suffering and how their family views this, the more likelihood that this will change!

Not a chance! It seems that it's like adding more fuel to the fire, at times.

There's a fundamental law in life that states:
Thinking about something, paying attention to something, makes it grow.
It's one of the basis of the law of attraction.
If you want less of what you're experiencing, you must deal with it in a deeper level!  As I stated previously, letting go and forgiveness, will set you free from all this, like NOTHING else.
Unfortunately there's often an emotional/mental aspect of illness, that may
make this suggestion, difficult to apply.

Venting is OK and sharing your feelings with others helps, nevertheless, you need to conserve your precious energy, for taking care of your health issues and wellness.

Take care.
Niko

Helpful - 0
Avatar universal
I feel exactly like that, hurted from being doubted and finally ignored.  They even said to me stop shouting because you do not repect the others! i felt completely IGNORED and ALONE.Although when THEY needed help they had it from me.
Helpful - 0
1530171 tn?1448129593
Hi panners.

Sometimes the Truth hurts, as it is our Ego that makes us feel this way.
From the other hand, the Truth "shall set us free", as it is our Spirit that makes us feel this way.
It is time to let go. You have suffered enough from "holding on" to this
sentiment. And the only way to let it go is to FORGIVE the people around you, for their ignorance and lack of understanding of what you are going through. Their reasons for this are NOT important. They are who they are!

Forgiveness is free, it has no cost and it offers freedom.
Judgement on the other hand, yes, it is judgement, even if you are truly suffering, brings with it only pain .
Forgiveness may remain a threatening idea to you, until it becomes clear
that forgiveness brings peace of mind and freedom.
View the world outside of you with resentment and you will believe that the world within you is ill.

The Truth may hurt at present, but it will set you free when you are ready
to accept its liberating power.
Blessings!
Niko

Helpful - 0
Avatar universal
I've had fm for 9 years now and confirmed diagnosis for 7 years now. I still get scared to show my family how much I am suffering as I just get funny looks and snidey remarks. Sometimes I wish I could pass my pain to them for just ten minutes so they knew how I felt but that would be cruel as I wouldn't wish my pain on my worst enemy. I sympathize with anyone who suffers pain for whatever reason and I would never doubt them as I know how hurt I feel to be doubted xx
Helpful - 0
Avatar universal
Thankyou so much for understanding, your words were so true to how I feel. Thankyo! I think it is time for me to put myself first now and stop trying to push myself just to please others. Xx
Helpful - 0
Avatar universal
Nice to know that others know how I feel =o(.
Helpful - 0
1530171 tn?1448129593
Hey panners.
Welcome to the forum.

I know EXACTLY how this feels!
It is tough, but you must gather enough inner strength,
to rise above all this.
Take it from someone who has managed to turn life around,
from "Hell to Heaven" by believing in the impossible.

Just a few pointers.
1. The only person you can depend on 100% is YOU!
  YOU is a much larger and powerful entity than what you currently think.
  Your Inner World is the part of you that is going to help you
"Make it or Break it"!
  By changing your Inner World you will change your Outer world.
  The ONLY thing you are able to influence and control is your Inner World.
  Anything OUTSIDE of you cannot be controlled. And this includes the way
your family and friends think and behave, in regards to your suffering.
Trying to convince them might be not just a vain attempt to gain their sympathy and understanding, but also the fuel to make their ignorance
even stronger.
Immersing myself in self-help, personal development, positive thinking,
meditation, hypnosis, psychology, holistic health, spirituality made a  phenomenal difference in my life and consequently in the lives of many other people.
You can do it too. It's not easy by any means, but it is doable!
There will be Angels in your life. You need to listen to them!
Most of the time you cannot, because you're consumed by dealing with
unresolved emotions and physical issues, that there's very little opportunity to even acknowledge their presence. And that's all right. It is the way that society has conditioned people to respond to such events.
Beware of what you give attention to, as it will grow.
It is a fundamental rule in life.
By accepting your situation-something very difficult to do-you are dis-empowering your medical condition and the way people treat you.
By focusing your attention to your improvement and your wellness, you will start inviting answers and solutions in your life.

2. Do a search in the previous page (back to community) under: Search this community, for "IWILLDOTHIS" to read some holistic recommendations that might help you with your Fibro symptoms.
  Also look into "Gut Dysbiosis", "Leaky Gut Syndrome" and
"Adrenal Fatigue" for some answers.
Consider doing "Dr.Coca's Pulse Test" -free download- as well.

3. If you need further support and  advice, please post again with
some more details about your condition- and also anything in regards to unresolved past traumas and emotions.

Many blessings!
Niko
Helpful - 0
553995 tn?1332018840
This has been my Bain of existence. I have FM for 15 years and it has been years of me doing what I NEED for myself and 13 years of people coming to the wrong conclusion about why I didn't come to their event.
Unless people suffer like we do, they have not walked in our shoes, the best we will get is them giving us space. As far as understanding completely, we have to give them permission to not understand completely.
I've mailed my family links to symptoms and even then, if I sound good I'm cured...yay!
Look up Invisible illness and Letter to Normals. Good clear info. and letter for those you hope to understand.
We have a chronic pain condition. Even when I tell my family that it is a life sentence and detail my pain and physical dysfunction, the next words out of their mouth is an invite way beyond my capabilities.
Do not despair. It's ok for you to stick to doing what is best for you!  They'll get it in some way. Try not to let anger about it get to you.
I've said " wear tight shoes 24/7 then spread that pain up your body, that is near how I feel".
Facebook has a group " fibromyalgia network" which is excellent for seeing we are not alone.
Hugs
Helpful - 0
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