Thanks everyone for the advice. The attorney agreed to take my case but said I was unusual... Go figure! He said the biggest issue is that even though I was seeing the rheumatologist and not doing well, I continued to work for quite a while. I forced myself to continue as long as possible, until I lost my job due to a shoulder injury. I can't go work for another company as I had job protection under the "intermittent FMLA" through my employer and missed work frequently. A bit confused that it hurts my case because I kept working???
As for the mouth issue... Turns out I have Lichen Planus and it has now manifested in my genital area, feet, legs, arms and nails! Has anyone dealt with this and is there a relation to Fibro? I pray no one has to deal with it, extremely painful and frustrating and just as Fibro...NO CURE =(
Hope you are all finding some relief :)
If you do get approved for SSDI it's retroactive! It took me about 6 months to get approved I didn't use an attorney because I knew I wouldn't be denied because of my condition. Your attorney will let you know what papers you will need I do hope your attorney is a disability attorney!
Prof. Donald Scott, the editor and publisher of the journal of Neuro-Degenerative Disease is also a consultant for compensation claims
regarding MS, CFS,FMS in relation to Pathogenic Mycoplasma Infections.
Please do a search. He is located in Sudbury, Ont. Very approachable.
He may have some interesting advice regarding your case.
For your mouth issues, I recommend you try oil pulling with
extra virgin coconut oil daily for the next couple weeks.
Just do a search for this also. I have been oil pulling for over a year and my oral health has never been better!
There's a chance that you are deficient in some minerals. Very common with Fibro, Suspect are Magnesium and Zinc. Check this out too.
Hair analysis works better than blood tests for many mineral deficiencies.
Finally, have you actually ruled out Lyme Disease and Pathogenic Mycoplasma Infections? The majority of CFS/FMS/MS sufferers
have such infections or co-infections.
Only LLMD doctors and Pathogenic mycoplasma specialists are able to
figure this out for you. Research, research,research and you may have a chance to get your life back . There's a treatment available for this.
( A strong immune system is instumental for the success of the treatment)
Dr. Garth Nicolson the expert in this field, and has been a medhelp contributor.
Let me know if you need more info.
Blessings,
Nikodicreta
first i went to ss office n they filed the first claim for me which of cours was denied i signed releases for med records n they got them to n they sent me to there drs for evaluation it took 4 or 5 mounthe for the denial then i re filed before the time was up n was denied again that time took 3 weeks n they said i would never get ssi so dont bother filing again so i then got a lawyer n was approved a year later it takes a while but hang in there
First, I wish you the best of luck with your lawyer and getting SSDI. I hate to say it, but even with the help of a lawyer, be prepared for a long process.
It sounds like you have some really good documentation and paperwork to submit that will help your case. Having the letter from your doctor stating you are not able to do ANY type of work will definitely be beneficial.
One thing I can suggest you also make and take with you is a list of all your medications and any side effects that you get from them. The reason I suggest that is because sometimes if your medications cause side effects that interfere with your normal life (and of course your ability to work), that can also add "fuel to the fire" so to speak in showing how you are not able to work in any capacity. Your medication list may be in teh notes from some of your doctors, but just in case, it wouldn't hurt for you to write out one of your own.
Best of luck and please keep us posted on how you're progressing with it.