Hello I am new here

[alicia27lmt]

I have just recently been diagnosed with fibro.  I was wondering how many or if anyone else has run into doc's who don't treat it, cause they don't believe in it??  I have had that happen twice, and when my neuro sent me for pain management the guy was pretty mean, I was crying in pain, and he just walked out of the exam room and said just get dressed you are not going to listen to me anyway....My husband (thank God) was there also and he came in and then the doc said I should get checked out for PTSD??? That sometimes people with PTSD have symptoms that mimic fibro.  I feel lost and confused and don't trust doc's too much anymore, except my neuro who really cares about me.  I have a rheum already, and am going back to her again.  I just want and need support and other people who can relate to me.

[Sunshine1960]

Hi - this is my first time writing on this board. I have been dx with bc (LCIS left breast & DCIS right breast). Beginning 11/07 - several biopsies, three breast surgeries, several infections, radiation and so on, I was just dx with fibro. I have never felt so much pain in my life. Surgery was easier than what I am dealing with now. My family doctor did the blood work & it was perfect. I decided to go to pain management which they are great. I am very lucky to have found them on my first try. My family doctor gave me pain meds and pain management is going to help me by therapy, muscle relax., lanacain pads & ointments for local pain. I wish everyone peace of mind and hope they find the right help. I know what everyone means when you just cry and wish all that pain would go away. Even typing this, my hands hurt. At night the pain wakes you up. I don't know what I would do if it wasn't for the support of my husband and all the doctors. Just don't give up, there is help out there. PlateletGal had given you alot of good info. I wish you well and a pain free life or a comfortable life. Hang in there and good luck, Sunshine

[VaBreeze]

Welcome.  We do understand where you are with this.  Many here have suffered with FMS or CFS for years without a proper dx.  We are the ones who are shuffled from physician to physician with our variety of symptoms, fork over massive amts. of $ for little or no information and then turned over to psychiatry because "It's all in our heads."  We now have proof that it is (because it effects our Central Nervous System), but not in the way that they mean it.  

Only you can answer whether or not there is something that may have happened to cause PTSD, but it won't change your dx of FMS.  I can't argue with counseling for cognitive/behavioral reasons because I believe it does help one see how their past has shaped their life.  Whether or not you chose to attend would be a personal choice, but I feel everyone here can relate to the anxiety and depression that comes from being chronically ill and the frustrations with some doctors (who are ill-mannered because they are behind the times in medicine).  

Please take care.

I'm so sorry that you happened across such an insensitive doctor and hope you can find someone who will help with your treatment.

[PlateletGal]

Frustrating, isn't it ? I don't have fibro (at least not primary)... but I have CFS and it is RIDICULOUS what we have to go through to get an accurate diagnosis and treatment.

For anyone who is newly diagnosed and/or looking for a competent, pro-active physician... here is my advice:

1) Consider googling, "Co Cure's Good Doctor List" for a list of physicians who frequently diagnose and treat fibro and CFS.

2) Make sure your other physician has ruled out Chairi Malformation and lyme disease. Testing for lyme disease is often screwy.... for more information on the preferred test (after you try the others), check out: http://www.medhelp.org/posts/show/746480

3) Here is one of my journal entries on physicians who were chronically ill with fibro, CFS, sarcoidosis & lyme... and successfully treated their own conditions. All of these physicians now help other patients with these conditions. These are the physicians that I listen to:

http://www.medhelp.org/user_journals/show/44526?personal_page_id=1064

4) Check out our health pages (look to the upper right to your screen).... you may also want to read the discussions we've had with our MedHelp guest physician, Dr. Garth Nicolson, in October. Dr. Nicolson and his team have discovered L-form bacteria in fibro, CFS and patients who have autoimmune diseases. Just like lyme disease, many of these patients respond well to antibiotic therapy. There are also natural formulas available. The key is to do your research and then I would recommend printing it up and handing it to your physician. Dr. Nicolson's website address is http://www.immed.org

I am happy that your neurologist cares about you and you have him or her on your side. I would recommend firing your other physician and checking out Co Cure's list.

I hope this helps.... stick around !