Aa
fm and cfs?and MPS
Hi All
I see alot of you on here have CFS or ME as we call it in the u.k and fibro, can you tell me the difference between the two is it just the fatiuge and sesitivity to medication and not having pain.
i was told by a physio i had myfacial pain sydrome which i've heard can come along with fibro is that the same as CFS coming along with fibro?
sam
I see alot of you on here have CFS or ME as we call it in the u.k and fibro, can you tell me the difference between the two is it just the fatiuge and sesitivity to medication and not having pain.
i was told by a physio i had myfacial pain sydrome which i've heard can come along with fibro is that the same as CFS coming along with fibro?
sam
I must clear up a mistake from earlier. I thought you were speaking of MCS (multiple chemical sensitivity), which is common in both FMS and CFS. However, it was MPS that you mentioned which is totally different. I apologize for my 'brain fog', lol.
I'm going to send you a PM to answer your questions. Look for me there. :-)
Have a great day.
I'm going to send you a PM to answer your questions. Look for me there. :-)
Have a great day.
Hi,
I hate that sesitivty i get that in bouts and had it for 2 mths once when i was bedridden my husband could not touch me nor my ids and my clothes just hurt!! didnt even now there was a name for it lol
I was dx Jan 2008 but got really ill in Jan 2007 and stopped work in May 2007 and been on disabilty ever since, i had a car accident in Nov 2006 my third one in 2 years of driving all bad whiplash and after having odd sx like balance problems and jering eyes skin sentivity and numbness and muscle weakness i was refered to a neuro in feb 2007 after seeing him for a while and waiting 12 weeks for a mri ( nhs not private) inbetween that in may i started having all over body spasms that shook me to my core and was so painful i was put on amitripline when that didnt work was put on lyrica after 3 mri brain,cspine throric and pelvis apart from finding disk degenaration and bulging disks at L4/5 and S1 they found no lessions so did a LP and another test with elctrodes which escapes my mind lol all came back clear so i was writian off the neuro books and refered to a NHS rheumy who said i had a pain condition but didnt know what!! then a kind lady from my church paid for me to go private and i went to london to see a professor Davies and he diagnosed fibro with nearly all the 18 tender points after much treatment with him and a pyscotic episode under my belt i swapped to NHS with him and saw him at Guys hospital in london but also got a local rheumy through the NHS to take me on as i only see him every year yet i see my rheumy every 3-4 mths. The professor looked at my health record and said i prob had fibro for ten years and all that time i'd been working had my 3 kids not easy pregnacies i must say, But for some reason maybe the last car crash the stress i was under it sent my CNS into hyper permant state and i went from having bouts to constant pain and i never have a good spell now maybe i'll get one day out of the year but most of it is a battle and with this new dx of menieres disease i really am struggling, my husband left me august last year but we are trying to work on things but it hard enough to work on a marriage when your well let alone when your ill and have 3 kids lol
I have 3 carers a day and since carl left i am soon to get carers to help with my kids 3 nights a week. I have no family to help me although the church are very supportive to us.
I used to be a carer from 17 till 33 thats what i am now 33 will be 34 in april, how old our you? do you have a family? nosey i know but i love to meet new people specially people who understand the condition we live with.
what meds are you on?
i'm on 100 fentanal patches change every 72 hrs and requip and sertrailine and clonazapam. and bethistimine for my menieres.
take care sam x
I hate that sesitivty i get that in bouts and had it for 2 mths once when i was bedridden my husband could not touch me nor my ids and my clothes just hurt!! didnt even now there was a name for it lol
I was dx Jan 2008 but got really ill in Jan 2007 and stopped work in May 2007 and been on disabilty ever since, i had a car accident in Nov 2006 my third one in 2 years of driving all bad whiplash and after having odd sx like balance problems and jering eyes skin sentivity and numbness and muscle weakness i was refered to a neuro in feb 2007 after seeing him for a while and waiting 12 weeks for a mri ( nhs not private) inbetween that in may i started having all over body spasms that shook me to my core and was so painful i was put on amitripline when that didnt work was put on lyrica after 3 mri brain,cspine throric and pelvis apart from finding disk degenaration and bulging disks at L4/5 and S1 they found no lessions so did a LP and another test with elctrodes which escapes my mind lol all came back clear so i was writian off the neuro books and refered to a NHS rheumy who said i had a pain condition but didnt know what!! then a kind lady from my church paid for me to go private and i went to london to see a professor Davies and he diagnosed fibro with nearly all the 18 tender points after much treatment with him and a pyscotic episode under my belt i swapped to NHS with him and saw him at Guys hospital in london but also got a local rheumy through the NHS to take me on as i only see him every year yet i see my rheumy every 3-4 mths. The professor looked at my health record and said i prob had fibro for ten years and all that time i'd been working had my 3 kids not easy pregnacies i must say, But for some reason maybe the last car crash the stress i was under it sent my CNS into hyper permant state and i went from having bouts to constant pain and i never have a good spell now maybe i'll get one day out of the year but most of it is a battle and with this new dx of menieres disease i really am struggling, my husband left me august last year but we are trying to work on things but it hard enough to work on a marriage when your well let alone when your ill and have 3 kids lol
I have 3 carers a day and since carl left i am soon to get carers to help with my kids 3 nights a week. I have no family to help me although the church are very supportive to us.
I used to be a carer from 17 till 33 thats what i am now 33 will be 34 in april, how old our you? do you have a family? nosey i know but i love to meet new people specially people who understand the condition we live with.
what meds are you on?
i'm on 100 fentanal patches change every 72 hrs and requip and sertrailine and clonazapam. and bethistimine for my menieres.
take care sam x
lol...I totally understand! Don't even worry about it. :-) I'll prob. do the same thing myself.
I was actually given the dx in 2004, I believe it was. However, I can trace it back to my teen years as that is when my first spell with 'fibrocytis' came up (when the skin is so sensitive that one can't wear clothing without it hurting). I also experienced the balance disorder back then and migraines. Now I can look back and see all of the symptoms I had from my teens through adulthood and what they really were attributed to. So, I have had what they call fibro just shy of 40 yrs. However, until I received the dx I had no idea what FMS was, nor that it could have so many symptoms.
It's a bit of living with the illness, along with reading many articles and such. Believe it or not, i've learned so much from everyone here too. With the HealthPages, what PlateletGal has given me insight to, along with others experiences...i've grown in so many ways. We've got to have knowledge in order to fight the battles we face every day.
Have a great evening Sam.
I was actually given the dx in 2004, I believe it was. However, I can trace it back to my teen years as that is when my first spell with 'fibrocytis' came up (when the skin is so sensitive that one can't wear clothing without it hurting). I also experienced the balance disorder back then and migraines. Now I can look back and see all of the symptoms I had from my teens through adulthood and what they really were attributed to. So, I have had what they call fibro just shy of 40 yrs. However, until I received the dx I had no idea what FMS was, nor that it could have so many symptoms.
It's a bit of living with the illness, along with reading many articles and such. Believe it or not, i've learned so much from everyone here too. With the HealthPages, what PlateletGal has given me insight to, along with others experiences...i've grown in so many ways. We've got to have knowledge in order to fight the battles we face every day.
Have a great evening Sam.
lol you and me both i should check my post before posting but dont and cringe at what i write sometimes lol
how long have you had fibro for? you have alot of knowledge is that research or just living with the condition so long.
take care
sam
how long have you had fibro for? you have alot of knowledge is that research or just living with the condition so long.
take care
sam
You're quite welcome.
Of course that word should have been "understanding"...my brain was moving when my fingers weren't...lol.
Take care.
Of course that word should have been "understanding"...my brain was moving when my fingers weren't...lol.
Take care.
Hi Sam -
My understand of the differences is this:
Those with FMS present to the doctor with a complaint of pain being the primary issue.
Those with CFS present with a complaint of fatigue being the primary issue.
The MCS is a symptom that both FMS and CFS can have.
Yes, myofacial pain is a symptom found in those with Fibromyalgia. Both of these illness carry much the same symptoms and the only large difference is fatigue and pain and which is most predominant.
Hope this helps somewhat. Take care.
My understand of the differences is this:
Those with FMS present to the doctor with a complaint of pain being the primary issue.
Those with CFS present with a complaint of fatigue being the primary issue.
The MCS is a symptom that both FMS and CFS can have.
Yes, myofacial pain is a symptom found in those with Fibromyalgia. Both of these illness carry much the same symptoms and the only large difference is fatigue and pain and which is most predominant.
Hope this helps somewhat. Take care.
Have an Answer?
You are reading content posted in the Fibromyalgia Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
