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Upcoming Nissen Fundoplication - Looking for Guidance & Support
Hey Everyone,
This is my first time posting here but after doing a lot of research on Nissen's, this forum seemed to be the most updated. I am 32 and have been suffering from GERDS since I was 18 when I was diagnosed with it after it put me in the hospital for trouble swallowing, shortness of breath, and chest pain. On the 3rd day the Dr's did an Endoscopy and located several ulcers in my esophagus and said I had GERDS.
My family doctor treated me for about 8 years but every new medicine that he would give me would last around 2 years and stop working. Finally, he referred me to a digestive disease doctor. He continued with medications and performed an Endoscopy on me every two years. Again, around that time the previous medicine would cease working. Eventually, I ended up taking the most recent medication, Dexilant (formerly Kapidex). I started off at 30mg, then 60 mg. Back in December it stopped working and he then put me on a cocktail of Dexilant, Pepcid, and Protonix. That cocktail worked for 3 weeks and quit working in January.
My GI Dr. said I was a great candidate for a Nissen and referred me to a surgeon trained in performing the procedure. I hesitated at first and decided against it, but the symptoms were getting worse. My last Bravo gave an above average reflux reading every 15 to 20 minutes with or without food. He told me that there were no more medications on the market so I went and saw 2 highly recommended surgeons in my area. After choosing the one I felt the most comfortable with, he scheduled me for the motility test (which by the way calling it hell would be an understatement) and then he also did a stomach emptying test on me.
I am scheduled for the surgery in June. I understand that sometimes the Internet can be the worst of enemies but it seems like for every 1 feel good story that I read, I am reading 9 horror stories. Needless to say I am not wanting to have the procedure done to simply stop taking medications, nor am I wanting to have it done because I have had reflux for only 6 months so I think after suffering from it for as long as I have, I would possibly have a more positive outcome then others who rushed into the surgery. But needless to say, after reading forum after forum, this procedure really has me scared. I had a ventral hernia repair done 4 years ago so I am well aware of the uncomfortable recovery that comes after a abdominal laproscopic procedure and I am prepared to handle that. But I just can't get past wondering if the side effects of a Nissen is better than living with GERDS which has just become a common part of my life?
The surgeon was very positive (of course). He did tell me the recovery would be long, that I would be on a liquid diet for 2 to 4 weeks, that I would not be able to burp or vomit, and that after 10 to 15 years the surgery MAY become ineffective so it wasn't like he blindsided me, but I am still very hesitant to have this done.
I am not sure if I am looking for support, reassurance, or just a reason to run but any comments would greatly help me either way.
Thanks everyone!!
This is my first time posting here but after doing a lot of research on Nissen's, this forum seemed to be the most updated. I am 32 and have been suffering from GERDS since I was 18 when I was diagnosed with it after it put me in the hospital for trouble swallowing, shortness of breath, and chest pain. On the 3rd day the Dr's did an Endoscopy and located several ulcers in my esophagus and said I had GERDS.
My family doctor treated me for about 8 years but every new medicine that he would give me would last around 2 years and stop working. Finally, he referred me to a digestive disease doctor. He continued with medications and performed an Endoscopy on me every two years. Again, around that time the previous medicine would cease working. Eventually, I ended up taking the most recent medication, Dexilant (formerly Kapidex). I started off at 30mg, then 60 mg. Back in December it stopped working and he then put me on a cocktail of Dexilant, Pepcid, and Protonix. That cocktail worked for 3 weeks and quit working in January.
My GI Dr. said I was a great candidate for a Nissen and referred me to a surgeon trained in performing the procedure. I hesitated at first and decided against it, but the symptoms were getting worse. My last Bravo gave an above average reflux reading every 15 to 20 minutes with or without food. He told me that there were no more medications on the market so I went and saw 2 highly recommended surgeons in my area. After choosing the one I felt the most comfortable with, he scheduled me for the motility test (which by the way calling it hell would be an understatement) and then he also did a stomach emptying test on me.
I am scheduled for the surgery in June. I understand that sometimes the Internet can be the worst of enemies but it seems like for every 1 feel good story that I read, I am reading 9 horror stories. Needless to say I am not wanting to have the procedure done to simply stop taking medications, nor am I wanting to have it done because I have had reflux for only 6 months so I think after suffering from it for as long as I have, I would possibly have a more positive outcome then others who rushed into the surgery. But needless to say, after reading forum after forum, this procedure really has me scared. I had a ventral hernia repair done 4 years ago so I am well aware of the uncomfortable recovery that comes after a abdominal laproscopic procedure and I am prepared to handle that. But I just can't get past wondering if the side effects of a Nissen is better than living with GERDS which has just become a common part of my life?
The surgeon was very positive (of course). He did tell me the recovery would be long, that I would be on a liquid diet for 2 to 4 weeks, that I would not be able to burp or vomit, and that after 10 to 15 years the surgery MAY become ineffective so it wasn't like he blindsided me, but I am still very hesitant to have this done.
I am not sure if I am looking for support, reassurance, or just a reason to run but any comments would greatly help me either way.
Thanks everyone!!
You had a breathing tube inserted to assist you during the surgery, and it is common for this to irritate your vocal chords. I had the same thing, plus also had my jaw lock up after my heart bypass surgery where of course a breathing tube was incorporated. I'm betting you will be fine in a week or two. Keep us informed.
That is horrible! I would definitely post this in a separate post, and not in addition to another post. And maybe in the surgery forum too. I pray it works out for you.
Twelve days ago I
had fundoplication surgery to repair a hiatal hernia . My voice was fine when I
went into surgery. I woke up with Velopharyngeal Insufficiency or deficiency .
I have a hyper-nasally voice and if I drink or eat to quickly it comes out my
nose. I have spoken with several doctors including my primary care surgeon and
an ENT all have said they never saw this happen to anyone for no reason after a
surgical procedure. The ENT said it happens after tonsil surgery but not after
hernia surgery. I have searched the internet with no luck. If you have ever
heard of this or know anything please get back to me I'm desperate. I want my
voice back.
had fundoplication surgery to repair a hiatal hernia . My voice was fine when I
went into surgery. I woke up with Velopharyngeal Insufficiency or deficiency .
I have a hyper-nasally voice and if I drink or eat to quickly it comes out my
nose. I have spoken with several doctors including my primary care surgeon and
an ENT all have said they never saw this happen to anyone for no reason after a
surgical procedure. The ENT said it happens after tonsil surgery but not after
hernia surgery. I have searched the internet with no luck. If you have ever
heard of this or know anything please get back to me I'm desperate. I want my
voice back.
How is the wine drinking going ? I am two weeks out and can't wait to try but am afraid.
I can't gag either I'm am two weeks out today. However I developed VPI after surgery, I woke up with it. No one seems to know why. i think it's the vagus nerve. I would love to know how you are now.
This is probably a question best answered by your doctor. I told I could have a glass of wine about 7 days after the procedure, just a swallow to see how it went. I don't take opiates of any kind, and found a glass of wine a nice way to ease stress and pain, but just a smallish glass for at least a month.
I marvel at those who can drink cokes, pepsi's and beer. I craved very, very cold water or wine for the first month. I literally gagged when I tried to drink some scotch on the rocks about two months after the procedure.
I marvel at those who can drink cokes, pepsi's and beer. I craved very, very cold water or wine for the first month. I literally gagged when I tried to drink some scotch on the rocks about two months after the procedure.
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