Aa
preemie with reflux
Cally, my four month old was two months premature due to double placental abruption caused by complete placenta previa. She was diagnosed with sleep apnea in the NICU. After a month long NICU stay we took her home, then took her back three days later when she stopped breathing while I was feeding her. After a week long stay and numerous tests, she was diagnosed with severe GERD and put on Axid, and her feedings were thickened.
We battled this reflux thing, the pain, the constant aspirating into the lungs...etc. People really do not realize how painful and hard this monster is to deal with. I get from other moms that "oh babies get reflux"...they say it's like spitting up, but you notice those babies don't cry in pain and arch their backs, and refuse to eat. It is so hard to get my baby to eat. You can see she wants to eat, but it's too painful. We also delt with constant colic (crying all day long), gas, and constipation from the rice.
About two months of age we switched her from formula to goat milk. Instantly, the reflux was gone. It was amazing. We discontinued the rice and she was a happy baby. We were able to get her apnea monitor off, and she no longer had problems. Then, about a month later Cally came down with bronchiolitis for the second time, three weeks later. The reflux had came back with a vengeance. It is just as bad as it was in the beginning. When I feed her, she gets a crunchy mucus sound in her back, which means it's going into her lungs. I spent last night just holding her and crying. Yes I'm sure things could be so much worse, and it might get better....but it's so hard to see her suffer, and refuse food. People's attitudes of "look on the bright side" like they think they know what my child is going through is very aggravating. I have to feed her almost every hour, because she'll only get down what a newborn eats at each feeding...and still each feeding is a nightmare.
I don't know what to do. I'm sad for my daughter. My pregnancy was a nightmare, and delivery, that was worse. I was unable to breast feed because there was so much trauma on my body that my milk never came in. I always felt guilty for not being able to breast feed. I tried so hard, and to this day I can't stand the sight of a breast pump.
I'm sorry I'm being so negative. I'm just having a very tough time and needed to talk to somebody. Thank you for listening. If you have any suggestions I am open to them . Thank you.
http://sites.bundleofjoys.com/cally/videos.php?id=1408#video
Cally's Story
We battled this reflux thing, the pain, the constant aspirating into the lungs...etc. People really do not realize how painful and hard this monster is to deal with. I get from other moms that "oh babies get reflux"...they say it's like spitting up, but you notice those babies don't cry in pain and arch their backs, and refuse to eat. It is so hard to get my baby to eat. You can see she wants to eat, but it's too painful. We also delt with constant colic (crying all day long), gas, and constipation from the rice.
About two months of age we switched her from formula to goat milk. Instantly, the reflux was gone. It was amazing. We discontinued the rice and she was a happy baby. We were able to get her apnea monitor off, and she no longer had problems. Then, about a month later Cally came down with bronchiolitis for the second time, three weeks later. The reflux had came back with a vengeance. It is just as bad as it was in the beginning. When I feed her, she gets a crunchy mucus sound in her back, which means it's going into her lungs. I spent last night just holding her and crying. Yes I'm sure things could be so much worse, and it might get better....but it's so hard to see her suffer, and refuse food. People's attitudes of "look on the bright side" like they think they know what my child is going through is very aggravating. I have to feed her almost every hour, because she'll only get down what a newborn eats at each feeding...and still each feeding is a nightmare.
I don't know what to do. I'm sad for my daughter. My pregnancy was a nightmare, and delivery, that was worse. I was unable to breast feed because there was so much trauma on my body that my milk never came in. I always felt guilty for not being able to breast feed. I tried so hard, and to this day I can't stand the sight of a breast pump.
I'm sorry I'm being so negative. I'm just having a very tough time and needed to talk to somebody. Thank you for listening. If you have any suggestions I am open to them . Thank you.
http://sites.bundleofjoys.com/cally/videos.php?id=1408#video
Cally's Story
Don't feel bad at all ...................my #3 had problems on Breastmilk & ended upon Nutramigen ---
A year later, my son was born (only 14mos apart) and his surgeon Dr. (he was born with an unrelated duplication intestinal cyst that was removed via bowel resection at age 12 weeks by another fine surgeon btw) tried to belittle me bcz I couldn't produce breastmilk for my son (due to having passed a gallstone during a C-Section I was very sick after the C-section and my body just could not produce, let alone heal properly grrrrrrrrrrrrrrrrrrrrr)
He nastily said to me, "Well, if you could have given him breastmilk, you wouldn't be here today" ...
yep, fired.
C~
A year later, my son was born (only 14mos apart) and his surgeon Dr. (he was born with an unrelated duplication intestinal cyst that was removed via bowel resection at age 12 weeks by another fine surgeon btw) tried to belittle me bcz I couldn't produce breastmilk for my son (due to having passed a gallstone during a C-Section I was very sick after the C-section and my body just could not produce, let alone heal properly grrrrrrrrrrrrrrrrrrrrr)
He nastily said to me, "Well, if you could have given him breastmilk, you wouldn't be here today" ...
yep, fired.
C~
I get donated breast milk from a couple friends of mine. She does REALLY well when she eats that. I give her one bottle each night. It really helps her sleep and wind down. I noticed most babies on formula have reflux :-( I really wish I could've given her the best. Goat milk is second best I suppose.
So far Cally is doing great. She has eaten all of her meals. WOO HOO! She still fusses after she eats but she's probably just getting used to the new food. BS molasses does have alot of iron and that could be irritating but she used to not tolerate it at all. She's eating great, only had one instance of reflux today, and it cleared up very fast...and she didn't cry. Will keep you all updated.
Also, I was wondering if the molasses is coating her esohpagus at all and acting as a nat'l protecterant?
The other thing for all of us to watch for with severe milk allergy is CARAMEL ... that is something to dbl. ck on the vanilla, too ....... if anybody adds it.
Is the molasses ok as far as preservatives .. kind of like the honey not for a year ? That was one other thought as we brainstorm here. Dark Karo syrupt always concerned me in that regard even when the docs said A-OK to put into a bottle for constipation.
I am so happy it is working ....!!!!
Keeping fingers (and toes) crossed!
C~
Is the molasses ok as far as preservatives .. kind of like the honey not for a year ? That was one other thought as we brainstorm here. Dark Karo syrupt always concerned me in that regard even when the docs said A-OK to put into a bottle for constipation.
I am so happy it is working ....!!!!
Keeping fingers (and toes) crossed!
C~
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