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biliary dyskinesia

I have biliary dyskinesia with an ejection fraction of 23%. I am on a very low fat diet and I eat very little dairy or wheat.I have become very skinny since this began-- about 2 years ago. My symptoms include stomach pain that moves all over my stomach area after almost every meal, but especially dinner, nausea, bloating, gas, intestinal pain, sore throat, sometimes a feeling of heaviness/pain at my sternum, but I do not have upper right quadrant pain. Isn't that the most common gallbladder problem symptom? The doctors suggest surgery, but I don't understand why it would be helpful to remove an at least partly functioning gallbladder? I understand why removing the gallbladder might help relieve pain in the gallbladder area if the gallbladder is irritated, but how will removal help with my symptoms? And, why will removing the gallbladder help reduce the the overabundance of acid in my stomach? Nobody has been able to answer these questions for me, and thus, I've refused surgery and have been getting acupuncture instead for the past 6 months. I'm flirting with the idea of surgery again because I'm not sure that acupuncture is going to be able to heal the problem. It hasn't so far, but it has helped to relieve some symtoms. I would be very grateful if you can help answer my questions, and I am open to any suggestions you have to offer.

Sincerly, amy
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Avatar universal
How have you been since surgery?  Pain gone away?  Weight loss possible again?
Helpful - 0
2827584 tn?1340579696
MEDICAL PROFESSIONAL
I sense that I am missing some of your history since one does not simply undergo an EUS to look for gallstones without a significant history. Also, this is generally not a method to detect pancreatitis. In the US, 95% of pancreatitis is caused by either gallbladder disease or alcohol consumption. The remaining 5% is a collection of medical issues or medication sources. In the absence of an alcohol history, surgeons generally advocate cholecystectomy for patients with recurrent pancreatitis. It is thought that many of these form either small stones or sludge that passes down the duct, causing the pancreatitis.
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Avatar universal
I was advised a couple of years ago I have pancreatitis. It was found during an eus to look for gall stones at that time. Polyps were found & I go periodically to have them removed. I had an attack last week that my DR said was text book gall bladder symptoms. My blood work was all normal including my pancreatic. (I take creon currently) I had an ultrasound done & no stones or abnormalities (small amount of fatty liver only) were found. I am having a HIDA scan tuesday & my surgeon has prepared me he expects to remove my gall bladder.  I am curious if it is possible if the pancreatitis could have been caused by an ongoing gall bladder issue?  I havent had the massive pain of pancreatitis, mainly mild pain & discomfort occasionally. I went gluten free and discovered I am intolerant there also.
I am wondering what the chances are that the gall bladder could be the main source. Also if it is will the pancreas go back to normal?
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Avatar universal
I have been dealing with this for 11/2 years, got really bad in the last 5 months, lost 23 pounds.
I have almost constant stomach/ chest pain, pain in Lower right rib cage that radiates to my back/right shoulder.
Sometimes feels like I swallowed a bone..when the pain gets bad, I get short of breath, my hands go
Ice cold, I sweat and get rapid heart beat. I feel dizzy most of the time. I wake up with right occipital headache
that radiates to my right eye almost every morning. I also get night sweats.
I had 2 endoscopes, colonoscopy, CT SCAN of chest/ abd/pelvis, had 2 ultrasounds, brain MRI,
saw neurologist, rheumatologist, had full cardiac work up, ruled out pheochromocytoma, carcinoid tumor.
Had HIDA scan 1 1/2 year ago, blood test...everything comes back negative, except the endoscopy showed mild
Gastritis both times. My stomach is so tender I can barely touch it.
I'm about to repeat the HIDA scan in 3 days. If it comes back negative, I really don't know what to do after this.
The only other background I can give you is that when 1 1/2 years ago everything came back negative, I had a parasite test and came back with Blastocystis Hominis, I took a round of Flagyl and I was feeling normal in 3 days
And was fine until 5 months ago. I did take antiprotozal medication again Tinidazole, Nitazoxanide, even tried
Diflucan in case it was candida...not better. My last parasite test came back negative.
I have been an acupuncturist for 20 years, so I'm drinking an herbal brew to calm inflammation in liver, gallbladder and stomach, it is helping, stopped my pain from being constant but still comes back after meals.
I have been on Dexilant for a month with no improvement.
Wondering if this sounds like anything to you and what other tests would you recommend?
Any insight would be much appreciated!



Helpful - 0
Avatar universal
oh and take acai berry pills white and purple lable that will help and water now i dont like water so that could be a factor eat salad with shrimp and eat good food do not eat junk food or fried foods
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Avatar universal
Also do an h-pylori test i had all those problems when i was young, acid reflux then they said gerd, but i think if i was diagnosed when i was young it wouldn't led to h-pylori and since 1999 i had gb problems i knew it but the drs couldn't find it, it does not show up on mri or ultra sound it will show up hida scan get that and check for h-pylori if that is positive take the meds double course do one course when finshed repeat it so you can kill all the crap that messed you up since you were 16 like me and then get a scope in your tummy test for cancer then do the hida scan if you have a low fraction get it removed lower then 40% mine is at 26 i been suffering since i was young now im 44 so all that time being pusshed to one dr to the next oh its gerd yeah ok well it was alot of stuff so please get those things i told you also take prilosec in the morning when you wake up every day
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