biliary dyskinesia

[coba37]

I have biliary dyskinesia with an ejection fraction of 23%. I am on a very low fat diet and I eat very little dairy or wheat.I have become very skinny since this began-- about 2 years ago. My symptoms include stomach pain that moves all over my stomach area after almost every meal, but especially dinner, nausea, bloating, gas, intestinal pain, sore throat, sometimes a feeling of heaviness/pain at my sternum, but I do not have upper right quadrant pain. Isn't that the most common gallbladder problem symptom? The doctors suggest surgery, but I don't understand why it would be helpful to remove an at least partly functioning gallbladder? I understand why removing the gallbladder might help relieve pain in the gallbladder area if the gallbladder is irritated, but how will removal help with my symptoms? And, why will removing the gallbladder help reduce the the overabundance of acid in my stomach? Nobody has been able to answer these questions for me, and thus, I've refused surgery and have been getting acupuncture instead for the past 6 months. I'm flirting with the idea of surgery again because I'm not sure that acupuncture is going to be able to heal the problem. It hasn't so far, but it has helped to relieve some symtoms. I would be very grateful if you can help answer my questions, and I am open to any suggestions you have to offer.

Sincerly, amy

[Esandem]

you need to get the hida scan and h-pylori test you might need your gb removed drs try to play that crazy stuff with me do not go see the funny farm dr if you know you are normal also get some prilosec but do not see a funny farm dr go to a gi specialist ok get the hida scan with chemical and get blood test for h-pylori if it is positive do the course 2 times as you may had it for a long tim i did and i still have to get my gb taken out places try to send me to funny farm because they dont believe me so forget that see anotther dr and another till you get the 2 test i siad done ok if your gb fraction is less then 40 remove it, im 44 and had this crap since 1999 before that so called gerd but i think all along i needed it out my mom had hers out when shes was like 20 and i was 4 years old but please keep trying a new dr till you get one that works with you and not againts you i had to repot one dr who denied my surgery that i needed he said you dont need it i said did you look at my hida scan cd he said no, i said so how do you know i dont need surgery? i was suppose to make an appontment when i was ready to get it cuz i was scared so i went to Guam he said i needed it urr long story but i think gerd and h-pylori and gb disfuntion are all linking to each other

[Maria8]

I have been having several symptoms for the past 5 months now, including: it started with diarrhea and a burning, gnawing pain in upper abdomen every morning. The diarrhea subsided after 3-4 days but the burning continued. When eating, I would suddenly feel very full after just a few bites, and often like something was going to get stuck in my esophagus. I experienced bloating and excessive burping any time I ate. All these symptoms were accompanied by pain or at least a nagging ache in my right side under my ribs. At times it was in my back, and when it was really bad, the pain was through my entire mid back region. There were at least 2 occasions when the pain was so intense in my right back  and ribs I was brought to tears. My Dr put me on Nexium for reflux treatment and the burning and the feeling of esophageal discomfort have subsided but the pains continued. (About 6 years ago I had an upper endoscopy and they found a very mild hiatal hernia and very mild gastritis.) Since several women in my family had their gall bladders out, my Dr looked into that as well. Ultra sound was fine, but HIDA scan showed that my ejection fraction rate was 1.4%. My Dr very casually suggested removal of the gall bladder, since it basically doesn't work. I have my consult with a surgeon in 3 weeks, but after reading some of these boards I wonder is there any danger of this gall bladder worsening or becoming septic since it doesn't work? Should I be following a particular diet as well? My Dr did not really explain things or go into details but she said take it out because it doesn't work and then you'll feel better. That's about it. I live with some sort of back pain (especially in the mid back) every day and it seems I can at least feel something (a fullness if not a pain under my right ribs.)
Any suggestions or information you could provide me with would be very much appreciated. Thank you!

[donald66]

Dr Waters
first thank you for the help you have given to evryone on this blog.  I have read it for years and you have even responded to me in tha past.  I have had right sided pain in my back for many years(in gall bladder area). However the pain is never severe (maybe 5-6 at most) but cronic and after 12 years is affecting quality of life.  Is often brought on by twisting torso (swinging golf club, exercise) but not always.  May be related to eating but not always either.  Also I often have extreme bloating with the pain & also sometimes belching. 4 HEPA exams 2006 55%; 2007 22%; 2009 33%; Jan 2013 5% but pain never reproduced during any HEPA. In 06 had GB empting study & no bile flow after Kinevac injection. Many Ultra Sounds but never any stones.  CT scans and many other tests normal. Over years several Dr's have suggested Biliary Dyskinesia.  Now with last HEDA so low am being strongly urged to have the gall bladder removed ASAP.  On this quick summary of the facts (particularly no pain with HEDA and pain not overly severe as most) would you agree GB most likely culpret and agree with the recommended removal.  Thanks in advance for reply
dpatten

[sattleycdc]

Hi, turtlelah,  I had weighed 145 and now am down ten pounds but actually should weight 150.  I have been trying to gain weight for over a year.  My HIDA scan ejection number is 14, and I have been diagnosed with biliary dyskinesian.  I follow a low-fat diet to help my gall bladder to digest food which (I think) helps prevent my nausea.  HOW ARE YOU GAINING WEIGHT???  Are you eating avocado, cheese, nuts, oils, and fried foods or just what?  Thank you.  

[turtlelah]

I was just diagnosed with biliary dyskenisia - I had a HIDA scan and my ejection fraction was 10%.  I am scheduled for surgery next week  As for weight gain...yes, I've been gaining weight non-stop.  I am a runner (I run 4 to 5 days a week and train for races - 5Ks up to half marathons) so I am definately healthy and should not be gaining weight, but losing it.  In the past month I gained 10 pds and no matter what I do I can't lose weight  Last year I weighed 128 pds I am now up to 146 (with continued running and exercise and healthy eating).  Other symptoms I have are bloating, gas, extreme pain in my right side all the time - I'm taking 3 ib profin every 4 hours so I can move and still exercise.  I'm tired all the time. I thought the fatique was from working full-time, taking care of 2 kids and training, but now I see gb disease causes fatique as well.  I also have right shoulder pain (esp. when I run) and a hard time breathing.  I'm hoping after surgery I can finally lose this weight, feel better and start training for my upcoming half marathon.

[elise672]

I have had the exact same experience, and ended up in emergency surgery since no one would do the Hida scan first which I asked for.  Nothing else showed gallstones or disfunctional gallbladder.  I lost so much weight and had migrane headaches for six months everyday.  I felt as if I was dying.  I finally ended up at a surgeon office demanding it to be taken out, and then in the ER, and they called him.  He admitted me right away, and did the surgery the next day.  It has been a difficult recovery since I was so sick prior for at least six months, and I am sixty years old. I had no choice since I was in serious pain and actually could not eat any more, since it would not digest.  I seriously felt like I was dying, and as sick as any terminal cancer patient. My primary physician at UCSD in San Diego, California was awful, and didn't help one bit.  I was on my own.