I am so glad that I came across the site! I have been so frustrated with getting the run around with the doctors. I have been having URQ pain for several months. I had mono for 5 1/2 months and 2 kidney stones so I thought that was what the pain was from. After testing everything checked normal. Nothing felt normal. After finding your site I went to the chiropractor today and had him check my nerves. My T11 was very hot. That is connected to every organ and the area that is bothering me. He is hoping with a couple of weeks of adjustments and me not over doing it I will be back to normal. I am hoping this will help all of us on here. I will try to let you all know if this helps. Hoping so for all of our sakes...
bro or sis you need to see a nephrologist and have the Kidney issue addressed. I was a CATH LAB DIRECTOR for years and that blocked renal artery can kill you from inside out. On your kidney are your adrenal glands which cause all kinds of hormonal and or physical problems. You really should have been told to have this tested because it can be very dangerous. I know you said you had a lot of test and this may have been addressed. It may be nothing to worry about; but better safe than sorry.
Check out Dr. Shoemaker on mycotoxins, mold & Lyme dz.
yes the pain is just under my right rib cage. Sometimes when I breath each breath causes great pain .I've taken several Ibuprofen so can bare the pain now, but otherwise I have to breath with short breaths
My wife's story is similar to yours. She has been struggling with this for 3 yrs now. Many tests, ER trips, hospital visits, bad drug reactions, etc. Had her gall bladder removed 3 yrs ago. Many misdiagnoses but no answers. It has been terrifying at times.
She was diagnosed with early PBC but they say that wouldn't cause this kind of pain.
The symptoms sometimes go away completely for a few months, and she can eat normally, then they will start up again for no apparent reason and go on for months. Difficult to get enough nutrition when you can't eat. When she is having symptoms the spasms start every morning, and on a good day will subside by late afternoon. Ativan seems to help the spasms and anxiety somewhat. Morphine helped the pain at first, but that seems to help less as time goes on. Diet consists mostly of Saltines, scrambled eggs, gatorade and a blend of apple juice/prune juice.
I've mentioned SOD to several doctors, but they are resistant to suggestions from the patient or family.
I was curious about the doctors you mentioned: Dr. Peter Cotton at MUSC, Dr. Martin Freeman at Univ Of MN and Dr. Sherman at Univ of IN. Other hospitals (such as Mayo, Johns Hopkins, Cleveland Clinic) also discuss SOD. Have you heard any feedback on success stories with those hospitals? For instance, Univ of MN versus Mayo?
OMG....thank you so much, for 15 yrs i have been though test after test and my gallbladder removed all due to pain as you have. Sometimes so bad im screaming in pain, hot flashes, nausea, sweating, and tossing what ever i ate and drank up. Been put in the hospital a few times with pancreoues issues, sometimes when at the ER I get tests are all Normal, so drugged up with thier strongest pain med and sent home and down knocked out for days. Been told to never come back at one in San Diego, my first time mind you there but he thought i was ther just for the pain meds, my husband at the time my boyfriend got so mad. He knew i was in so much pain. Im so tired of tests. Last hospital visit the doctor put me on gabapentien. For 3 yrs no issues until around Aug 2014 i started working again andnit started it back up, even my pain doctor upped it to 4 a day. Whcih i cant see no more until i pay them what i owe them from another issue proceder, so out of pain meds also and been in pain on and off in the day for over a month now. Anyways this so sounds like my issues. Doctors have said i have IBS, Acid reflex, and pancroues issues.my pain aint sent me to the ER since i was there 3 yrs ago and hopeing my pain dont get that bad, but i lost my job cause my family doctor hasnt did my work paper on what i can and cant do, also i have discs in my back disenagrating also. So now jobless and still waiting. Now im taking this to him and see what he says, my last doctor before she left was doing every thing she can to find out what was wrong with me. I just pray this isnfor sure it. Im so tired of researching also and want it done and over with. Im only 42 andthis as i said before started when i was pragnant with my now 15yr old. Again thank you for the new hope of finding out whats wrong with me!!!