Hi
i am 31 and i have all kinds of problems, its hard when people have more then one illness as it gets complicated, drugs for one illness may be bad an worsening for the other illness you have, so yeah, i have been running around for help from drs they dont seem to be off much help in uk, thinking of going abroad for better checks and treatment,
you mentioned gluten intolerance is linked to pancreaitis?
i have heard its linked to some liver, chronic diahrea too, i have chronic diahrea, also problems with liver results for many years and now otop my pancreas is under investigation, so it could very wel be gluten intolerance causing all this, also sugar intolerance too, the stomach symptoms you mention could be linked to h.pylori bacteria too, nasty bug.
imn going to try a gluten aand sugar free diet see what happens
i have just come across your post and i really felt for you for what your going through. i also have sjogren's syndrome,lupus, fibromylgia,celiac disease. i understand you pain and frustration with these condtions and with the medical world in general. i am 29 an i spent all of my twentys looking for why i felt like crap very day. it blows my mind that doctor are the only place that provide a service and will treat people with no respect, but that seems to be just fine. i have seen more doctors in my life than i can count and i have a feeling that may be that same for you. what has worked for me was i finally found a great family doctor, that listens, has understanding of my condition,caring. for me this has made the world of difference. i still see a rheumatologist every six months. i also just wanted to through out there has anyone ever talked to you about gluten? i am on a gluten free diet. the only reason i ask is because of pancreatitis. alot of the symptoms can over lap. it is very common for people with autoimmune diseases to have a intolerance gluten. i hope this was helpful
Pancreatitis would be best treated by a gastroenterologist. You should still see a rheumatologist for the inflammatory processes related to lupus. I am sure that you are well aware of the toll that lupus takes on your body and your life. It is common to see pancreatic and liver involvement with Lupus. Since pancreatitis is such a serious problem, I think that you need someone who specializes in pancreatic disease.