Since the Mayo clinic couldn't help - maybe it's time to try John Hopkin's hospital. angiomas do seem to have a mind of their own. Some do continue to grow and others are stopped by surgery. it is one of the mysteries of science and would have to be researched by someone who knows more about them. Do you get the Medical Mysteries on your TV? Perhaps you can find someone who knows how to stop the growth or the arteries from spreading... So sorry this is happening to you..
It is not just a cyst. I do know that much for sure. I have had many many surgeries by many surgeons at Mayo Clinic to have it removed and each time it doesn't go away - actually it continues to progress. Which is one of my concerns regarding having another surgery. If they say I will lose my finger for my next surgery, it will still not resolve, as it is now down into my palm of my hand and, even if they remove the finger, if it's past "behavior" says anything, it will keep progressing regardless.
My concern, I guess is that it isn't what they are saying it is and they aren't treating it the way it needs to be treated.
So, I guess I am looking for someone who can either tell me what it might be and/or direct me to a specialist that might know what it really is (and not assume what it is based on my records) and might be able to suggest alternate treatments.
Its just a ganglion cyst you will have to get it surgically removed.
Hi and welcome. In cases of this, would be to your best interest to have multiple opinions. But bottom line, if all opinions are to lose the finger to get this resolved you might consider it. Why dont you start by having another biopsy to determine what this is. Have they done a biopsy before?