*knock knock* Anyone home?
Oh well... Though, I do think its cute you guys call this a "Community".
Oh I am sorry I am a visitor here we do have a good community I think you just clicked onto the wrong forum go back to the forums page and take a look at the 'Menu' I am uncertain which one but I will also check it out and send you a note ,Good Luck
I have just spotted that it does say that Ehlers is on this forum, well I wonder if you check the expert/Doctor forums on the right , of the forums page .
SUCCESS it does have an expert genetics forum, so go to the forums page and click on the right on genetics .
That is actually where this post was made. Thank
you though for your reply I was beginning to think no one was here.
I read your message and I have a question for you.
Doctors suspect me of this syndrome (view my post http://www.medhelp.org/posts/Genetics/genetically-deficient-collagen/show/1037573
but in my country are not testing for a clear diagnosis of the disease (I live in Romania (Europe)
please tell me what investigations, analysis you did to establish this diagnosis
im 17 and i was diagnosed about a month ago too. lol. im going to a genetists to finalize and to see if it is for sure just the hypermobile type, have suspissions that it might be more, hope not though.. anyways, always be completly truthful with your doc even if you think it have nothing to do with your condition, because it might.. example i am awful at using scissors and have also had speech problems. symptom on eds.
so my advice is, bare your soul, tell them everything, it will help you in the long run.
Normally, the immune system which includes antibodies, white blood cells, mast cells, complement proteins, and other substances defends the body against foreign substances (called antigens). However, in susceptible people, the immune system can overreact when exposed to certain chemicals (allergens) in the environment, foods, or drugs, which are harmless in most people. The result is an allergic reaction. Some people are allergic to only one substance. Others are allergic to many. About one third of the people in the United States have an allergy.