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Avatar universal

I am in the final stage of HIV

I had unprotected sex in 2014 and never tested for HIV post exposure i was not aware of HIV/AIDS also thought why would this women have hiv as she was my neighbour.  

After 4 years of the incident suddenly lymph node got swollen in supraclavicular region and a breathlessness happened post which i have all AIDS related symptoms. Not been to office since last 4 months due to extreme fatigue. Loss of muscle bones have become fragile blurry vision and lack of sleep and neurological problems with dementia. I did HIV ab and ag test to confirm hiv. All came negative. I also did CD4 count and it is only 467. I have read my articles where it says that hiv ab/ag will be false negative when the immune system is completely destroyed. But no doctor is ready to accept that i have HIV rather they are going based on reports. I have hairy leukoplakia as well. When i show this to doctor he says its because of dehydration. I tell them why can't you consider my case as a rare one.

But to my fate no one is ready to accept my aids related symptoms. I don't know what to do in my life. I am planning to commit suicide but no guts to do it. I had never thought i would get aids. India has 130 crore population out of which only 3 million people are hiv positive. I never thought i would die of AIDS. I simply wasted my life.

I am the only son to my parents and now regretting for the biggest mistake done in my life. I can't even tell to my parents that i have this disease. No person will tell there family at least in India that they have HIV.
3 Responses
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15695260 tn?1549593113
We are sorry you are so worried but at this point, our forum has answered your question that HIV is not the reason for your symptoms.  A cold can cause a lymph node to swell.

We do hope you continue to work with your doctor on your anxiety and depression.

***  thread closed ***
Helpful - 0
20620809 tn?1504362969
Wow, you are really in anxiety deep.  You don't have HIV. Your tests are negative and hey, I had a lymph node react and stay swollen for 3 months because I was exposed to a virus. That's what our lymph system does.  I don't have HIV (neither do you).

Strongly encourage you to work on the mental health aspect to this. For both anxiety and depression.  I'm sure this has been suggested to you before.  How is the mental health care in your country?  Here we have psychiatrists, psychologists and medications along with those who teach coping skills to help people recover from mental health issues.   There is also online help as well.

HIV is not your issue but the underlying anxiety and depression.  I hope you are able to speak to someone about this and begin the process of getting well.
Helpful - 0
2 Comments
Guitar Rox

Thanks for your comments.
Why my muscles have lost stifness and bones have become loose?  Why am i loosing weight and strength?  I have developed dementia as well.  Yes i have visited many psychiatrist and prescribed anti depressent and sleep pills but nothing is working.

Could you please tell me what is lymph node react. Which virus caused it?  Doctors here are not able to diagnose it. Also why my cd4 is only 467?
Please help me. I haven't been to office for 4 months now due to my illness.
Avatar universal
First of all, you need to pull yourself together. You don't have end stage AIDS and you're not dying.
Secondly, you claim to have had more than 1 negative HIV test and the doctors you have consulted have confirmed that you do not have HIV.
Third, there are many other viruses and bacteria which cause the symptoms that you're having. If you want to get well then you need to take charge of your own healthcare and seek out doctors to run diagnostic tests and exams to figure out what's wrong and then determine a treatment. But you have already conclusively ruled out HIV, so that is not your issue.
Helpful - 0
5 Comments
Thanks for your answer. I really accept your view. Could you please tell me what other viruses causes these symptoms other than aids ? Do you want me to take pcr rna quantitative to know if i have hiv copies in blood? Seriously i have lost all the energy and not able to even stand for 10 mins. Lost 8 kgs in 4 months. I have read many articles where some patients test false negative when immune system is fully compromised is it true?  I am fully exhausted. I even can't hold the plate when i eat.  I have never felt this way in my life. I think the immune is fully compromised.
I am from India and have been to 15 doctos and no is able to diagnose my symptoms. I am dying day by day with no treatment. I also had surgery for my swollen lymph node in collar bone area. Which confirmed that i have TB. I was very healthy and not a kind of person to get TB. What i feel is i have got this virus in 2014 but never tested for it ( am a dumb) then the immune system was fighting HIV and cd4 were gradually decreasing. When cd4 were severely decreased and viral load started to mount all of a  sudden it turned into aids as i was never diagnosed for HIV.
The weight you lost is only 1.1lb a week that’s not that’s crazy. Depression would do that to you.   If you take tests and there negative esp More then one, it’s kinda nuts to think your an extreme case and that’s what their going to tell you here.
What should i be doing next.  Are there any specific tests to rule out that i have advanced stage? If not HIV what else it might be. They are saying its not cancer as well. I am not getting sleep because of depression rather HIV has damaged CNS.
Your anxiety is a bit of a mental health issue at this point so see your doc to discuss your fears of disease when you don't have anything wrong. Also consider a mental health therapist, because it is abnormal to do a self diagnosis that you are in the final stages of hiv when the doctors told you that you don't even have hiv.
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