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Nurses mistakes.

Hi I have been on this forum for a little while and hope I have helped some people. I have cetainly learnt a lot about testing. Sometimes the stories here can get to you, because it reminds you of your own situation.
On Feb 15, I made a mistake a got involved with 2 men at the same time. No anal sex, but oral. I realised I would have to go and get tested.I went to my local NHS GUM at 3 weeks for advice (not knowning the window periods.I wonder if the nurse also did for she decided ti to test me at 24 days (this to the best of my knowledge was a 4th GEN).
I had to wait 2 weeks for my results and after a VERY stressful fortnight, they came back negative. Relieved, at week six I got a very dry mouth. Concerned, I phoned up the GUM clinic again, there a health adviser told me the nurse had got the timing wrong and it should have been 28 days.'Come back in 12 weeks time'.
By 8 weeks I was a nervous wreck and my work was suffering, so I decided to go back to the GUM clinic. Another nurse saw me and sensing I was highly stressed, had a heart to heart talk with me. I expressed my concerns about the time period ( that it should have been 12 weeks). She told me I had (in her opinion) a low risk experience, but she would if I wanted give me a 12 week test. She then calculated the day's on her fingers,but because I had told her that the incident happened on 15 Feb, she came up with date, 15 May (thinking that was 3 months). I now realise that is 82 days.
I take it was 4th GEN test (they have told me), I also had instri rapid (one minute) result, which was negative.
I had to wait a week and a half for my results (which were negative)
When I got my results, I quaried the clinician and asked him if my results were conclusive and he said yes, because the test looks for the antigen as well. I also wrote to Dr Hook and Dr Sean and both had great faith in my result's ('no need to retest'),The man who also did my test told me that my results would be conclusive.
Relived, a few months later I came back on this forum to help and argue the case for 4th GEN test. Things had changed, the expert Dr's were no longer here (supporters of 4 GEN test) or Teak (who took a more sceptical view). The CDC had updated their guidelines.
The point is my mind was totally relaxed with my results, but
reading so many things on this forum and other websites, you begin to doubt yourself. I am seeing a professional councillor. Am I OK and negative? Or do I need retest. Why can't the staff at my GUM clinic get their numbers right? I do not need this before Christmas. I phoned my GUM clinic last week and spoke to man who tested me (though he did not know it was me), he confirmed it was 4th GEN test. I asked him if 82 days were conclusive, very accurate he said, but are guide line are 12 weeks.'Should I retest again,' I asked. ' That is entirely up to you, Sir.'
Any advice?
13 Responses
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Avatar universal
Cheers James, I appricate your help.
Helpful - 0
Avatar universal
Pleasure Sharky - keep up the great work with things yourself, you have helped many many people out on here.

James :)
Helpful - 0
Avatar universal
Hi James, Think I appricate your reply more than anyone (not that I think Vance, Nursegirl and curiosity aren't brilliant, they are brilliant).
The thing is I had such a horrible time waiting through window period and was pleased to be given the all clear, I thought I should help others going through same situation.

I know what a big responsibility it is to give true and right information (that's why Vance and Nursegirl stuck with the CDC guidelines and accepted the new updated information when they changed them in June this year).
Like you I 100% believe in the truth that Duo gives accurate, conclusive results before 12 weeks.
I think what got me down was looking at NHS website's and seeing how they contradiced each other, (some saying 3 months, others saying 4 weeks, one according to Terance Higgins Trust that they do DUO, then their own website saying antibody only. I felt no
wonder people feel confused.
I admire your writing style and the way your words make people feel better.
I know I am OK. But guess it all got to me today.
All the very best, James.
Sharkboy67.
Helpful - 0
Avatar universal
Hi James, Think I appricate your reply more than anyone (not that I think Vance, Nursegirl and curiosity aren't brilliant, they are brilliant).
The thing is I had such a horrible time waiting through window period and was pleased to be given the all clear, I thought I should help others going through same situation.

I know what a big responsibility it is to give true and right information (that's why Vance and Nursegirl stuck with the CDC guidelines and accepted the new updated information when they changed them in June this year).
Like you I 100% believe in the truth that Duo gives accurate, conclusive results before 12 weeks.
I think what got me down was looking at NHS website's and seeing how they contradiced each other, (some saying 3 months, others saying 4 weeks, one according to Terance Higgins Trust that they do DUO, then their own website saying antibody only. I felt no
wonder people feel confused.
I admire your writing style and the way your words make people feel better.
I know I am OK. But guess it all got to me today.
All the very best, James.
Sharkboy67.
Helpful - 0
Avatar universal
Sharky.. You have given some great advice to,people and helped so many people,out with your own unique fashion, you should be proud.

The thing to remember is that if a test says 12 weeks, no one turns positive at 11 weeks ten days, no one.

I hope this comment makes sense and does not offend, I am simply stating what I was told when I was worried... The reason the window periods have not kept up with testing is that in high risk individuals, such as gay men, their risks can be multiple over a period of time, none of us remember the date six weeks ago when we were drunk and got laid, with the potential for high risk individuals with many different partners, a Comeravtive approach to the timeline is the safe option, just not for the worrier of course.

Think back to cars of the 80's, the metro, montego, 205 etc, they are crap by todays standards but we're good in the day, this is the same as HIV testing, it has moved on, there is no way ever that you have HIV following your testing, enjoy your new job safe in the knowledge you are HIV Negative :)

James

Ps - how many people have you factually heard of turning positive after four weeks with a 4th gen test, erm, none! :)
Helpful - 0
Avatar universal
Thank you curiosityb.
I know all the people here are right and talk commonsense. Think I have spent too much time on internet.
Start new job tomorrow and I guess the stress of everything.
All the very best.
Helpful - 0
Avatar universal
duo test is conclusive in 28 days. you do not have hiv man. move on and enjoy with your life.
Helpful - 0
Avatar universal
Hi Nursegirl.

A couple at the beginning, just as time go' on, you wonder. But sure I had 4 th Gen anyway; so 82 days is plenty of time.
All the best.
Helpful - 0
Avatar universal
I know Vance. Everyone tells me the same.
Dr HHH and Dr Hook would say the same and of course they would say you have had tests to prove it. I miss their input.
All the very best.
Helpful - 0
480448 tn?1426948538
Isn't this the same thing you have posted about in your other numerous threads?
Helpful - 0
Avatar universal
Answer is not going to change
Helpful - 0
Avatar universal
Thanks Vance,

Even though I was mainly the receiver. I did put one man's penis n my mouth for about 5 seconds. There was no ejectution band I made special care no to touch sides of mouth. I got taste on my tongue and immediately withdrew and spat out.I worried because I noticed I had bleeding gums next day, especially when I cleaned my teeth.
Helpful - 0
Avatar universal
You had no risk
Helpful - 0
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