Post Kawasaki's Disease

[usafbratt]

Hello was wondering if anybody else has a child post Kawasaki's Disease. My son was 3 when he developed KD. Now he is 15, but has numerous other health conditions now. excessive protein in urine the Dr. said don't worry no other follow-up was done.

Excessive Protein in Urine on random and 24 hour, Psoriasis, Grannuloma Annulary, Hyperkaratosis Acanthosesis, tired, Remittent Hands and Feet peeling, Stomache pains all the time,Joint pains even in the spine, Headaches.

These are some of the problems I can think of right now. If anyone can help it would be appreciated. Lisa

[Mister9]

I just commented on another post about how I have indescribable back pain in the lower part; it feels like my spine is falling out of my body.  Also, another strange parallel is the excess protein in urine- this has been boggling my fiance for months.  I have always had really dark urine (and kind of stinky :-P ), I've gotten it tested and they always tell me to drink more water.  I drink tons of water- the only thing that makes it normal is adderall but then I pee like every 10 minutes.  I'm just going to throw is out there but does he ever complain about hemorrhoids?  At least thats my self diagnosis.  Sorry for rambling, but this is kind of exciting to be able to relate with others on this.  I was always told I have to get my heart checked at the age of 30 due to heart risks but I was always like "30?! that's forever away!"  Well... now I'm old.

[SueNYC]

Dear Lisa,

My daughter is always complaining of joint pain after KS.  She is now 8.  I took her to Hospital special Surgery and they didn't find anything.  I wpuld take him for a stress test - my brother -in-law, a nuclear cardiologist, found some aneurysms in post KD that were clear on Echo.  So far, joint pain is only symptoom post KD - along with sleep apnea - it seems her adnoids never went down.   We had them removed. Good luck.


Susan