Hi, Im new here, and just looking for help and answers. My son is 14 yrs old. Born when I was 6 months pregnant. He was born with lung and heart issues and spent the first 2 years in Childrens Hsp in Cinci, Oh. He was diagnosed with Laringomalcia, Trachiamalcia, A heart murmur. A heart artery that crossed his trachia that made his asthma worse than normal. We fought for years to keep him alive. He began to get better as he grew. Began playing sports at age of 6, with mom holding all meds on the side lines. Has played ball up to this year, where we have had a battle keeping him well. He began having chest pains during the summer, Wasnt playing out side fought asthma really hard. Took him to doctors all the time. Called a pediatric cardiologist out of Louisville Ky to check him out. Found out he has two leaking heart valves that are still considered in the normal range. And is now required every three months to have and EKG. I take him in Jan for another EKG and a stress test. But my worry is, he seems to be sleeping more, tireing faster, not riding his bike, not playing basketball in the yard. Did not sign up for sports this winter. And he is so pale with resessed eyes that are always surrounded with dark circles. I dont know what to keep an eye out for, Im so lost. I know his asthma sometimes when he coughs I know it is an asthma cough and other times Im lost. He cant play or wrestle in the floor he starts coughing and holding his chest I noticed he is using his nebulizer a lot more. Like he has terrible shortness of breath. Please can anyone help me. Im sorry I have rambled on here but I am so scared and just need some advise. Thank you
BubbasMommy