A LOT of the symptoms you talk about seem to be in line with a form of dysautonia, which I only know a little about...I read a good book about it years ago by a Lyn Fredrickson... Confronting Mitral Valve prolapse syndrome...the book is rather old but I think a lot of principles of dysautonia relates to a lot of us.
I'm SURE I have some form of this condition as I have had episodes of tingling (MDS thought might be MS but not) as well as a feeling of being in a total fog and/or mild dizziness. I have also suffered from GERD and other abdominal issues.
I'll tell you what though...I have none of those other symptoms now but I would take them ALL back together if these damn PVCs (thousands a day) would stop...LOL...
You may wabnt to check the book out...it is a little dated but I think you will find it is pertinent for you...BTW she discusses that a LOT of patients with dysautonia do NOT have MVP syndrome...
That is intresting to me because 30 years ago, I was diagnosed with MVP but as the echograms have improved MVP has been ruled out...but not a dysautonia...
Feel better!!!!!
Thanks for the reply. It is a mystery. I hope it is just a post-viral syndrome...that is, one that will go away with time. It certainly could be auto-immune, but if that is the case I will deal with it as best I can. I am 34 years old, and still want to have kids but do not have any yet.
The doc is concerned, but not so much about the PVCs vanishing. He is running some more blood tests (liver, sugar, thyroid, b12, ANA and sed rate) to get a better picture and hopefully cross some things off of the list. I also am going for EMG/NCV testing later this week. I worry that the PVCs vanishing has to do with loss of vagal tone setting in due to autonomic nerve damage. It is unfounded?
I feel very tired, shaky and cold most of the time, especially in the morning. My chest hurts, but I think it is stress more than anything. I hope so.
Hope all of you are feeling better than I am...
God Bless,
Bill
I've read your post, and I know you are anxiously awaiting a response from someone who might have advice or input. I wish I were that person for you. I've no information, however. I don't know what in the world would cause this shift. Obviously you've been checked by a doc recently (i.e. the test results) but you've not alluded to what he/she said to you about all this. Can you share? Perhaps that would give me/us an idea what direction to take.
Also, PVC's disappear for many of us for no reason at all. Unfortunately, that seems to go both ways, and they reappear for no reason as well. It's the shift in your other presentations that has me, and you, perplexed. I would be asking docs the same questions and having tests if I were you. But, as you have done this, and the story has not changed, you seem to have joined the club of the sickest healthy person in the world.
Keep in touch
I know the question is long, but could someone please give me some ideas? Thanks.