Happiness short lived

[rockymoe]

Happiness short lived
My hep c NP called me today and said I have bad news for you, you are done treatment. I guess well I was in lala land in the ER they did chest x-rays and all kinds of test. I guess the chest x-ray was bad. Of course my mind went into shock mode and I can't remember what the two lung conditions she told me I had but she did say that the interferon makes it worse. Whatever it was she said it makes the outside lining of the lungs become hard and it is irreversible. I will post more when I have answers. It is really scary, I made a joke and the NP was like deadpan serious and she said you are a very sick woman and need to see your Pulmonologist this week. I'm still in shock.
Can -do -man I completed 40 out of 48 weeks. They acted like that was a minor issue compared the lung issues.

[Idyllic]

Please keep us posted on your lungs & all your test results!!

[frijole]

super news that you are still UND.  Got my fingers crossed
bean

[BoceprevirGal]

That is excellent news, on you remaining Und!!
I will be hoping and praying for more good news about your lung health, as well!
   Have you noticed any major feelings in your over-all health, since your Tx was discontinued, and have they been testing your HGB, etc?

[rockymoe]

I had a VL last week still UND. Haveto have another cat scan of lungs Thurs. to check the blood vessels then stress test.

[JasmineT]

Oh my.  I hope you are clear of hep c now and the docs can get the lungs under control quickly.  It would be good for you to bring someone to the docs with you to help take notes and ask questions.  Get well.

[printze]

Sorry to hear that  hope things do get better for you

[stormy456]

I'm so sorry.  You must be incredibly disappointed and scared for good measure.  You've received some good info above, so I'll just send some hugs to you from So Cal.  

[poppy27]

Prayers for you!  Keep fighting, do not give up.  Positive attitude gives positve energy to your body.  Stress does damage, so stay focused on ANYTHING that makes you smile.

HUGS...

Poppy

[blondie717]

So sorry to hear this news.  I wish you the very best outcome. Ginger

[frijole]

rockymoe - it has got to be all related -- the heart/lung thing.  Maybe it has been ongoing for a long time because you have the asthma but exacerbated by the interferon,  but when the lungs can't pull in enough oxygen, the heart has to work harder and it enlarges.  My mom died of COPD at the young age of 65.  She would have had to have had a heart/lung transplant.  You could actually see that her chest around her heart was bigger.  

I am really surprised the lung specialist is backing off of this.Is it because of the results of the CAT scan?

bean

[Dee1956]

I am so sorry to hear of additional problems.  I agree with everything Hector said as well as everyone else.  Just wanted to add my support to you as well.  It is a shock.  I think when I was treating I thought everything else would wait until I was done.  If you have done 40 weeks, not sure what you used, you could remain UND and get to SVR.  I agree that right now you have to worry about your lungs and heart
I am praying for you
Dee

[kmatucson]

Sending positive thoughts your way.  Keep up the fight.. Hopefully, the 40 weeks was enough for the Hep C and they find your other issues treatable.
Please keep us posted..

[Idyllic]

Oy I have been thinking and wondering how you are all day. Glad you made some head way with tests and gaining at least a general idea what is going on with your heart & lungs and all. Please keep posting! You do not have to go through this alone plus - as you know there is lots of experience and knowledge here♥

[Revalation]

I will keep you in my prayers.
Hang in there!
We'll all still be here for you.

Regards, Reva

[rockymoe]

Thank you for all the kind words, hugs and prayers and positive thoughts. I went to the lung guy today and now he says it's my heart He thinks the right side is enlarged so now stress test, another cat scan of lungs to check the blood vessels, stress test(like I can do this) but I will do it. Also another breathing test. I will keep everyone postd.

[rockymoe]

Thanks hoping for my miracle!

[rockymoe]

Thank you for your post. You are a warrior and it sounds like we have the same feeling I have to beat this. I will not let it kill me I want to see my children's, children grow up. I would be doing the same fight you are if they found a tumor. I saw the pulmonologist today and he says it's my heart so now a stress test, another cat scan of lungs to show the blood vessels, and another breathing test. I am still being optomistic for SVR if not there will be another treatment out there another time. I am determine to slay this dragon
BTW I have mild cirrhosis.

[aj7538]

Take a deep breath. Take care of ur lungs first. Hep can wait. So sorry fir ur troubles.

[Idyllic]

¡Hola Cristina!

Seriously?  You had your x-ray.......lemme see...on May 6?
11 (eleven)  days ago?
The day the doctor told you to stop your asthma meds?
I was taking heart in the fact that so much time lapsed between
your x-ray and well....right now.

You clearly need more info. Maybe when you are calm
and have a clear head you can call back with a pen &
paper handy. Or better yet just to to your doc in person.
Google can be a dangerous prognosticator when one has
less than half the facts and no real context.

Sorry all this is happening. Please post soon,. You do
not have to go through whatever this is alone.
I hope you take a friend or family member with you
when you talk to your doctor.
Hang in there!

[mollybaby]

you have alot of support here and i think you have alot of fight in ya! So hang in there because you are worth the fight! to want to live. Like Hector said none of us volunteered for this and yet we are walking thru it. You in my thoughts and prayers and some of these medical folks just dont have a heart so dont let that bother you we all have our own way of dealing with serious stuff for me I just go blank..and dont feel anything till later. So hang in there hun everyone is pulling for ya!

[orphanedhawk]

My words can only duplicate what others have already said.
You indeed may have beat hep C, and you may indeed jump this next hurdle as well.
Wishing you the very best~
OH

[candyce1953]

I am so sorry to hear about your lung issues, I was going to do 3x and then found out I had a form of lupus possible drug induced from my ruptured silicone implants or Wellbutrin, so I didn't go on it for fear of aggravating it, waiting for all orals

You may have cleared the HCV with 40 weeks, but if you didn't the orals are an alternative

Wishing you all the best and see your pulmonary md , many lung issues can be reversed with medication

I have asthma, have had pneumonia, serositis and various Lung issues, nodules from exposure to fungus, you can recover from many things
Xoxo C

[Jillybean65]

Sorry to hear this after all your valiant efforts. I am adding you to my prayers.

Jilly

[mikesimon]

I'm sorry that you have to deal with this.
I wish you the very best going forward.

Mike