Aa
6 Months Post, African American
Geno 1, female, African American. Triple therapy with VIC. Sept 2011 - March 2012.
No SVR for me. I am devastated. I am shocked. There are no guarantees but things had been going so well during tx, I felt for sure I would kill this dragon. But in turn, it seems like I only silenced it for awhile. Like fleas -- if you kill all of them but 2 -- before you know it you have a house full again. My nurse said the all orals will be out in 2014 but I am not rushing to ne a guinea pig, again.
From July 2011 - March 2012, my MedHelp buddies kept me going. I just knew this would be a distant memory. Instead, I feel like I have been tossed in the Hep C blender (again). That vortex of emotions and anxiety about the now, the tomorrow and the future. Thankfully, I have strong faith in God and am still on the AD's.
Anyway, for those of you who shared my journey, I posted some of my labs so I could see the patterns. I achieved UND 4 times. I am so glad I journaled about my symptoms, side effects and remedies. My faith is still strong as ever. I am blessed not to be in pain. Wishing everyone else here all the best.
Bee
No SVR for me. I am devastated. I am shocked. There are no guarantees but things had been going so well during tx, I felt for sure I would kill this dragon. But in turn, it seems like I only silenced it for awhile. Like fleas -- if you kill all of them but 2 -- before you know it you have a house full again. My nurse said the all orals will be out in 2014 but I am not rushing to ne a guinea pig, again.
From July 2011 - March 2012, my MedHelp buddies kept me going. I just knew this would be a distant memory. Instead, I feel like I have been tossed in the Hep C blender (again). That vortex of emotions and anxiety about the now, the tomorrow and the future. Thankfully, I have strong faith in God and am still on the AD's.
Anyway, for those of you who shared my journey, I posted some of my labs so I could see the patterns. I achieved UND 4 times. I am so glad I journaled about my symptoms, side effects and remedies. My faith is still strong as ever. I am blessed not to be in pain. Wishing everyone else here all the best.
Bee
bee, I want to tell you how grateful I have been to be on the board when you were here. You have started many threads that have brought out issues that I have had too. You have brought much humor to the board (and I love your VIC raft) and it has been a pleasure to know you.
That said, there are two disturbing sentences in your posts:
...I believe at some point I was told that the docs could tell from comparing my labs whether a biopsy was absolutely necessary
Bee, you know I have early cirrhosis. Yet, my ALT and AST have always been in the 20s. My platelet count exceeds 200. My other labs which might indicate cirrhosis have always been in range. I encourage you to get a biopsy to be informed. Firbroscan? Don't know much about them. Not available in Dallas but maybe you can do one in LA. The biopsy although invasive is just not all that big of a deal.
...Appreciate you (and everyone here) looking out for me. With reference to the <43.....my doctor and tx nurse were confident that it was due to the RIBA reduction
This should have been a giant red flag. If your undetectable status teetered on the edge of detectable and a mere riba reduction could have thrown you into detectable status, I would think your doctors would have changed course at that time.
I am sorry you will have to treat again, my dear. I hope the meds are kinder when that happens.
your friend, bean
That said, there are two disturbing sentences in your posts:
...I believe at some point I was told that the docs could tell from comparing my labs whether a biopsy was absolutely necessary
Bee, you know I have early cirrhosis. Yet, my ALT and AST have always been in the 20s. My platelet count exceeds 200. My other labs which might indicate cirrhosis have always been in range. I encourage you to get a biopsy to be informed. Firbroscan? Don't know much about them. Not available in Dallas but maybe you can do one in LA. The biopsy although invasive is just not all that big of a deal.
...Appreciate you (and everyone here) looking out for me. With reference to the <43.....my doctor and tx nurse were confident that it was due to the RIBA reduction
This should have been a giant red flag. If your undetectable status teetered on the edge of detectable and a mere riba reduction could have thrown you into detectable status, I would think your doctors would have changed course at that time.
I am sorry you will have to treat again, my dear. I hope the meds are kinder when that happens.
your friend, bean
Oh Baby B I just saw this post I havent been on for a while. I am devastated for you.
I am just so sorry. You know God is in your corner, Oh man. Nothing I say can take this sting away.
I'm just SO sorry.
Love Deb
I am just so sorry. You know God is in your corner, Oh man. Nothing I say can take this sting away.
I'm just SO sorry.
Love Deb
Dear Bee, you and I started on the same day, you on Vic, me on Inc
I am heartbroken for you. You tried so hard, did everything they told you to. You have been a real trouper.
After I relapsed the first time Dr Dietrich advised me to rest, recuperate my body and soul, wait a year and see what was out there.
Again, I am more sorry than words can say. I am in shock.
Hope and a prayer
Dee
I am heartbroken for you. You tried so hard, did everything they told you to. You have been a real trouper.
After I relapsed the first time Dr Dietrich advised me to rest, recuperate my body and soul, wait a year and see what was out there.
Again, I am more sorry than words can say. I am in shock.
Hope and a prayer
Dee
Sorry to hear that you relapsed Bee :o(
As a 3 time relapser myself, I can definitely relate.
It's sounds like from everyone's comments that you did what you were supposed to aand I know that after the shock and disappointment that you will be right back doing what you need to to keep on keepin' on!
Keep your head up and as my doctor says "go live your life" and as John Lennon said "life's what happens to you while your busy making other plans" so don't forget to live it every single day. Don't know about you, but my day starts of much better when I remember to give thanks for another day to fight on.
Today I was walking my 5 yo home from kindergarten and he said "Dad, if you could wish for anything, what would you wish for?" I told hime that's a tough one and he said "well, I know one thing you would wish for, that you weren't so sick and you could play with me more" That brought tears to my eyes because that is one of the things that really bugs me about this disease. But just him saying that, let's me know that he loves me no matter what. Definitely a God moment for me.
Hang tough and stick around because you been through a lot and you have the credability to help the next person to need help!
Peace Out,
Chris
As a 3 time relapser myself, I can definitely relate.
It's sounds like from everyone's comments that you did what you were supposed to aand I know that after the shock and disappointment that you will be right back doing what you need to to keep on keepin' on!
Keep your head up and as my doctor says "go live your life" and as John Lennon said "life's what happens to you while your busy making other plans" so don't forget to live it every single day. Don't know about you, but my day starts of much better when I remember to give thanks for another day to fight on.
Today I was walking my 5 yo home from kindergarten and he said "Dad, if you could wish for anything, what would you wish for?" I told hime that's a tough one and he said "well, I know one thing you would wish for, that you weren't so sick and you could play with me more" That brought tears to my eyes because that is one of the things that really bugs me about this disease. But just him saying that, let's me know that he loves me no matter what. Definitely a God moment for me.
Hang tough and stick around because you been through a lot and you have the credability to help the next person to need help!
Peace Out,
Chris
wow, bee!
know our prayers are with you and your healing
you have been a huge help to so many here
thank you for all you are and all you've shared
j
know our prayers are with you and your healing
you have been a huge help to so many here
thank you for all you are and all you've shared
j
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