8 years after transplant- Hep C is back- Should I do treatment?

[56Mike]

My dear son shared his liver with me 8 years ago... I was dx with Hep C, in 2004 tried the PegIntron and Ribaviron and only lasted 3 doses- my Dr said I had to quit treatment as my counts were too low. I rapidly deteriorated and became a walking encephalopathic corpse and  would have most likely died waiting for a cadever liver. Interestingly before transplant in May of that year- the Hep was no longer detected. I just had a biopsy- that came back 2/2- they had been undetectable all these years. My liver labs are pristine. I am afraid to start these meds again because of what happened the first time. My genotype is 2- but it looks like at best- hope for remission is 30%? Any thoughts or suggestions please?

[56Mike]

In complete honesty- I was so sick- I just remember that I was called with my labs- and they sent an ambulance to admit me to the hospital for awhile and was told no more treatment- this was a few days after myt third dose.

[56Mike]

Thanks for the reply- my Hepatologist thought the three treatments I did have prior to transplant were enough to lower my viral load to undetectable levels. Thus I guess my biopsies have been good for so long.

[56Mike]

Thanks much for the reply. My biopsies have always been 0/0 or 1/0 until this one staged at 2/2. In My 2010 my viral load was detectable again yet t\low- 19,000. I cannot see the hepatologist until Dec 14th which seems like forever. The U of MN must be a busy center.

[Drew2u]

Thanks Eric sooo much yes I just did that and posted a message , and will look at those links you suggested . Andrew :)

[coeric]

Hi Andrew and welcome. please go to the top of the page and click on the post a question button.  that way folks can see and answer your question.   there are a few here that are experiencing both hcv and hiv.  

the following takes you to a link that discusses some of the ways folks here have treated the sides.  
http://www.medhelp.org/posts/Hepatitis-C/Triple-Therapy/show/1793936

i had a fibroscan about 6 years ago, and i believe it was about 48.  i was diagnosed with cirrhosis from biopsy last year.
here is a link for the fibroscan
http://www.ncbi.nlm.nih.gov/pubmed/16020491
blessings
eric

[Drew2u]

Hey there
Wanted to know a few things from the people who have gone thro treatment , I'm duel diagnosed HIV and Hcv and have been for 27 and 20 years respectively .my fibroscan showed a measure of 30.3 which im told is cirrhosis  stage 4 ...am I right ? Have been told I need to get on the new triple combo which I finally got the courage to do and am waiting to start ,,is there anything that you guys know that I shouldmreallynwatch out for , barring the depression and rash and so forth . I considered compensated liver wise and my levels are pretty good , but I know it could change with having HIV and only a T.cell count of 200 . Many thanks  Andrew