Aa
Aa
A
A
A
Close
Avatar universal

After Treatment for HCV

I have had treatment for HCV twice, the first time was in 1994 and was only with Peginterferon as Ribavirin wasn't even heard of.  The second time was from July of 2008, to December of 2008, using Peginterferon, Ribavirin, and in the end Procrit.  I'm a nonresponder!  

My question is this;  Have any of you out there felt that you never came back to normal after having the treatment?  And if so, is there any medical information that would verify what you have felt?

I'm a Disabled Veteran, (Vietnam Era) and I feel that both times the treatment has changed my behaviors, habits, social interactions, energy levels, and many other things.  Of course some things come back, but the ones I have listed have never been the same for me.  Also I have experenced memory loss of some kind, such as I'm unable to remember names of family members, and once I went on vacation from work only to return to a bunch of friends, who at least half of their names I had forgotten!  Also I'll be talking about new I have learned and forget a word that I have used for most of my life.  But every time I bring it up to a Doctor, they all give me the same answer, "That's Impossiable".  If any of you have any knowledge of this, please let me know, as I'm really getting tired of hearing, "That's Impossiable".  
Thanks  
Sandbur
2 Responses
Sort by: Helpful Oldest Newest
163305 tn?1333668571
I know some people claim the effects of tx have lasted long term. And I'm sure its true.

For myself, a few side effects took months to dissipate.

As far as your memory goes, my sister becomes more forgetful all the time. She's healthy, exercises regularly and eats well. She doesn't have HCV or any other disease.
Whenever I think my forgetfulness is because of my health or meds, I think of her.

What is, is.
Look forward and learn how to adapt.
I write down all kinds of things that I think I'll remember in case I don't.
Learn how to speak without using people's names. Learn tricks to remembering names. I do.
Good luck,
OH
Helpful - 0
412873 tn?1329174455
I'm bumping ya back up.  I don't have any good advice for you, but I'm sure someone will chime in.

Have you looked thru the archives?  I know there's a bunch of threads around here on this.  

In my personal experience, everytime I complain to my study nurse about what I think are lingering effects of tx-fatigue, joint pain, menapause stuff- she puts it off on my age.

Seems the general theory here has been that anything that we were gonna be prone to get as we aged normally is brought on sooner by tx.....but that's just the theory of a bunch of us patients =)

Good luck to you,

Isobella
Helpful - 0
Have an Answer?

You are reading content posted in the Hepatitis C Community

Top Hepatitis Answerers
317787 tn?1473358451
DC
683231 tn?1467323017
Auburn, WA
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Answer a few simple questions about your Hep C treatment journey.

Those who qualify may receive up to $100 for their time.
Explore More In Our Hep C Learning Center
image description
Learn about this treatable virus.
image description
Getting tested for this viral infection.
image description
3 key steps to getting on treatment.
image description
4 steps to getting on therapy.
image description
What you need to know about Hep C drugs.
image description
How the drugs might affect you.
image description
These tips may up your chances of a cure.
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.