I have hep c for 30 years, f2, grade 2, geno 1a treatment naive.
HAS ANYONE BEEN TESTED BEFORE AND AFTER TX, AND CLEARED CRYO PERMANENTLY? I keep reading that it comes back very often, even after SVR.
I had a biopsy for the purpura and it was confirmed as vasculitis. My doctor had me test for the cryo, and rf factor.
We spoke today and he said that he still had not received the results of the cryo test, but was sure that I had it since I had confirmed vasculitis and rf positive. He said the test for cryo was not dependable (I believe that they do not do it correctly at this hospital since they took my blood and left it in the room where the blood where the blood was drawn which was not at body temperature). I will probably go to get the test at a different hospital to be sure.
I keep reading that people don't think this is serious, but cryo can kill you without warning or any symptoms prior to destroying your kidneys, entering your brain, or giving you a heart attack.
I can't find a lot of information about cryo, it seems rare, but I read that many people with hep c have it so I am confused. I believe that they are just learning more about the percentages of hep c people have it. Many doctors don't routinely test us for it, mine only did because I kept asking about the purpura and itchiness and my platelets where normal so it wasn't ITP
I really hope someone knows about this, I am not sure what hospital in the SF Bay area or Sacramento area has an expert Dr on this disease, but would love to get some suggestions,
Thanks,
Dave