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Cryoglobulines with hepatitis c
I have HCV and now I have a little quantitative Cryoglomulinemia.Do I have to check if it is type l or ll ?Is it possible that it will be back negative without treatment?Do I have to treat it if it is asymptomatic?What is the risk to get worse?
Thank you.
Thank you.
Here are a few more links that speak about Cryo. This first one is a 10 year study that concludes that cryo is not probablamatic for most folks.
http://www.gastrojournal.org/article/PIIS0016508507012966/abstract
This one is the cryo summary from HCV advocate, again reinforcing that sever complications are rare.
http://www.hcvadvocate.org/hepatitis/factsheets_pdf/cryo.pdf
And here is another that speaks to one of the posible complications.
http://www.hcvadvocate.org/hepatitis/factsheets_pdf/vasculitis.pdf
My Hepatologist was not even going to test for it but I ask him to in the spirit of being thourough.
I have never had any complications from it thatI am aware of. I believe anyone who test positive should have the condition evaluated. But treatment may not be needed for most of us I have come to the conclution that if your liver and kidneys are in good shape then cryo itself is not a good reason to treat HCV in and of itself. However it should be monitored just as the HCV should be monitored
Hope this helps.
http://www.gastrojournal.org/article/PIIS0016508507012966/abstract
This one is the cryo summary from HCV advocate, again reinforcing that sever complications are rare.
http://www.hcvadvocate.org/hepatitis/factsheets_pdf/cryo.pdf
And here is another that speaks to one of the posible complications.
http://www.hcvadvocate.org/hepatitis/factsheets_pdf/vasculitis.pdf
My Hepatologist was not even going to test for it but I ask him to in the spirit of being thourough.
I have never had any complications from it thatI am aware of. I believe anyone who test positive should have the condition evaluated. But treatment may not be needed for most of us I have come to the conclution that if your liver and kidneys are in good shape then cryo itself is not a good reason to treat HCV in and of itself. However it should be monitored just as the HCV should be monitored
Hope this helps.
I too have this...it's shown up on 3 tests at different times. I think it can be only the one kind as Bill stated above...the doc hasn't ever done anything to treat it but I do feel it affects me.
The one treatment, Plasma Pheresis (Plasma Exchange) is a nasty treatment that I've had done for TTP blood disorder...you don't want to have to go there.
As a side note, I too am curious as to if it can go away if the HepC is still there. Last time I was sent to the lab...the gastro wanted me to be tested again (he didn't do the previous tests, my Rheuma doc did).
The lab said they couldn't do it at that location (Quest Diagnostics) and that I'd have to go downtown and they gave me a slip of paper to take. Then I receive a note from the doc saying the cryo test was negative! I never went to have it done at the other lab!
In other words, my gastro thinks I don't have it now and the lab charged my Medicare for the test but didn't do the test and then falsely reported results to my doc! Sooooo mad!!
But...the question does remain...can it go away if you still have the HepC...I think not. I do think it may or will go away if the HepC goes away...and that is good.
The one treatment, Plasma Pheresis (Plasma Exchange) is a nasty treatment that I've had done for TTP blood disorder...you don't want to have to go there.
As a side note, I too am curious as to if it can go away if the HepC is still there. Last time I was sent to the lab...the gastro wanted me to be tested again (he didn't do the previous tests, my Rheuma doc did).
The lab said they couldn't do it at that location (Quest Diagnostics) and that I'd have to go downtown and they gave me a slip of paper to take. Then I receive a note from the doc saying the cryo test was negative! I never went to have it done at the other lab!
In other words, my gastro thinks I don't have it now and the lab charged my Medicare for the test but didn't do the test and then falsely reported results to my doc! Sooooo mad!!
But...the question does remain...can it go away if you still have the HepC...I think not. I do think it may or will go away if the HepC goes away...and that is good.
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From:http://emedicine.medscape.com/article/329255-overview
“Disease associations variable based on type of cryoglobulinemia
Type I is observed in lymphoproliferative disorders (eg, multiple myeloma, Waldenström macroglobulinemia).
Types II and III are observed in chronic inflammatory diseases such as chronic liver disease, infections (chronic HCV infection), and coexistent connective-tissue diseases (SLE, Sjögren syndrome). Mixed cryoglobulinemia is rarely associated with lymphoproliferative disorders”
Bill
From:http://emedicine.medscape.com/article/329255-overview
“Disease associations variable based on type of cryoglobulinemia
Type I is observed in lymphoproliferative disorders (eg, multiple myeloma, Waldenström macroglobulinemia).
Types II and III are observed in chronic inflammatory diseases such as chronic liver disease, infections (chronic HCV infection), and coexistent connective-tissue diseases (SLE, Sjögren syndrome). Mixed cryoglobulinemia is rarely associated with lymphoproliferative disorders”
Bill
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