I took my first Injection today and I feel like I may have made a big mistake.....
I know there must be people wishing to get in these studies, and I hate to seem ungrateful, but I have been 'relatively' healthy, had an almost healthy liver and I just got rushed into a Clinical trial with Peg/Interferon, Riba & Telaprevir (the triple therapy)
My concern is that this is a study with 1 out of every 3 people getting placebo and I don't know what my rush was if I end up getting on basic Peg/Interferon & Ribavin therapy.
I have avoided this therapy for a while hoping something that was less invassive would come along. So my doctors tell me there is this new wonder drug "telaprevir" and unlike the 50/50 shot I had for Genotype 1a with standard treatment, this has shown up to almost 90% success (in fact in my hospital, everyone who tried it apparently was cleared)
BUT.... Then after I signed on the dotted line, I found out that if you take into consideration that I have a 1 in 3 chance of getting Placebo, and then realize also that the nearly 90% success is for initial response, NOT SVR, which is actually 65%
So I can do the math fairly loosely and see that a 65% SVR, with the added 33.3% chance I am getting Placebo, well, that really isn't much better than the odds of standard therapy.
One of the big selling points was that it only takes 6 months rather than a year, but it turns out that even if you get the telaprevir, you still follow through with the full year of Peg/Ineterferon
My Biggest and final worry that cropped up reading these boards, is that this treatment will cause cognitive impairment.
I can honestly say that the MAIN reason I wanted to take the plunge is because I have had this virus since I was 19, and therefore have never really known an adult life without my body being under attack from a virus (my viral load was 500K) and I just want to remember what it feels like to have a clear mind and body, for at least a little while before life passes me by.
Having lasting Cognitive impairment is NOT an acceptable cost for something that I see so many people saying they are only doing because they are really sick.
Am I just having beginning jitters or is this a valid concern that maybe I didn't research before taking the plunge.
I don't want to end up in a haze of medicine and depression, unable to discern if I have legit reasons to worry, or if this is just a 'depressive' part of the treatment and I need to power through.
My first day and I'm already confused. Help!!!!
Thanks