Dragons back, yup you read it right.

[Myown]

I knew that when I started getting hot flashes around 5 weeks post something was wrong and plus the numbness and other things. I now hope that my other self dx isn't right - Cryo.

Anyone who remembers or knows where I tx please refrain from bringing up the teams name. They will hear the things that I was not happy with when I see them in person. I don't want to attach a name of a team to my complaints on a public forum.

But anyhow I had prepared myself for this news from the time the hot flashes started along with the numbness. My NP never got back to me- even after 3 emails with me asking about these symptoms. I guess becasue geno 2 is supposed to be a 'shoe in' so I guess nothing could be wrong and it was probably just in my head. NOT

I am very fortunate that though tx failed me, I didn't have a hard time at all while tx and for that I am grateful. I know that Jesus will see me throught this all.

I thank you all for all the support you all have given me. We will all beat this disease one way or another. This failure that I am experiencing will only strengthen my faith as now I have to totally trust Him and I will. God is so good to give me peace and comfort me at this very moment. He loves us all so much.

I have to eat my dinner. Talk to you guys later or tomorrow. Please keep me in your prayers that I don't have cryo. Thanks guys.

[ladybug52]

I'm so glad that you have your strong sense of self, and even stronger faith. Faith is what keeps us going, and prayers are being offered up for you and Rick around the country. I am totally shocked, I'm glad that you had the insight to sense something was wrong, just wish you had been wrong this time.
Prayers,
Bug

[jmjm530]

I guess what I was trying to say in the last post is that sometimes you have to separate the doctor (and his knowledge) from the doctor's office and all their inefficency. Especially in big city setups. Whatever you decide, it's important to stay hooked into a good hepatologist for the future. And as we all know, most don't know sh*t about Hep C.

-- Jim

[jmjm530]

I can understand your frustration getting in touch with your doctor's office. Hopefully, it's because the office closed early for the Holiday weekend, but equally probable that that the office minions don't give a sh*t as office help these days is about on par with McDonalds.  Had the same problem with my last cardiologist. I fired him because he didn't bother to call me back after what I described to be a serious problem to his f*ckin assistant. I was fortunate that I had direct email contact with my treating doctor and he almost always responded same day.  I also had email contact with my previous liver specialist's NP, but she often didn't get back. One day she told me her workload -- several hundered patients solo -- and I realized why everything was so rushed and f*cked up. It's a war out there trying to get good medical help and you got to fight. If you haven't given up on your liver specialist's office, call Monday and don't get off the phone until the doctor himself picks up the phone. If you've given up I don't blame you. You will be in my prayer's tonight and do re-test in a month even though it doesn't look great. I also wonder if another one or two shots of Peg at this point (assuming they're still in the fridge) would make any difference. Just a thought but probably one you don't want to hear but something maybe to discuss with your doctor if you're in the mood. 87,000 isn't all that high. Just a late night thought. Def bad news but if there's a silver lining it's that you probably have very little liver damage, and after 24 weeks of interferon, your liver possibly could have healed completely. Better drugs will be out one of these days.

All the best,

-- Jim

[merlino]

I am so very sorry to hear this.

[Myown]

Thanks guys for your kind words, prayers and scripture. I'm fine so please don't feel bad. I knew there was something going on in my body, so I was prepared for this.

Jim this test was august 16 and the VL was 87,300, so it doesn't look like the ole' immune system is going to knock these guys down. I finished tx june 15. 4 week post UND. The hot flashes gave me the tip off mostly and the numbness in my lips and hands that I never experienced. I only had my thumb feel weird before tx when exposed to cold. But I got sick of telling medical people - who really listens anyhow?. I am a person that knows their body inside and out. I know when something is not right. Too many medical people and even sometimes loved ones feel its the stress of the disease and worry and damsel in distress and all that. It's not and now everyone knows that all of this was not panic or in my head. It would have been nice if my hep doc office would have called my PCP back. He couldn't even get a hold of them and I was sitting right there so I know that is the case. He left a voice mail and told them about the PCR and also sent a fax. No one called back and this was at 12:30 in the afternoon. I'm not happy about that. But anyhow if I knew I didn't have cryo I would feel 100% okay, but having that hang over my head is a pain and that I have been talking about since that Ad pusher doctor I almost tx with. Also I have giant size floaters it seems. I've had them but not like this is now.

Rick I am sorry to hear that your situation didn't change. I didn't see whether or not you had another test to show either way.

I-horn - I hope that this is not the case with you.

My husband has his fantasy football thing that he goes to tomorrow but I forgot that he had to go to his team partners house tonight to do the line up. I didn't want him to stay home tonight just because of this news. I told him I have my forum friends that I can vent to and not to worry about me. So thats the story folks. Sorry for the bad news, but better days ahead.

[Forseegood]

sooooo sorry to hear this, but youre character comes through in your posts, you'll beat this, if not now, later on. I know this. Sending healing vibes to you My Own, be well my friend.