Feeling Better

[HelloKelle]

Well, it's August 8th and the mouth sores are gone. The blister is still there, but it's almost gone, too and doesn't hurt at all. I've had a pretty good week this week and my family is amazed at the difference between last week and this week. I wonder if I'm getting the Riba rash that people speak of because my head itches all the time and I have a couple dry patches on my head by my hairline. I tell ya, tx is tearing me up!!  Wow. It's sooo NOT NICE. I'm tempted to quit tx, but my doctors are pressing me to continue, especially since I'm UND. I don't know. Also, it's time to go back to work and I'm really anxious about that because I don't know who I'm gonna be from one day to the next and I have absolutely NO strength at all. I'll find out more about going to work when I visit my doctor next Thursday.

Love U's.

Kelle

[alagirl]

Hopefully, your body will settle into kind of a routine where you won't have so many physicial highs and lows.  I remember that some of my most despairing treatment moments were around the beginning of treatment.

One thing I can tell you is that the mouth sores tend to come and go with people. You may not have them badly again, or you may get them a few times during tx, everyone is different,.

[HelloKelle]

Aww. Schucks! You girls made me feel good. To Kristina, no..I am NOT dealing with this well at all. Just last week I was a psychopath - crying, depressed, taking too much pain meds on purpose, lost in a world of despair and desparation. That's what I mean by not knowing who I'll be from one day to the next. It's terrible. And when it's "that time" of the month - OMG! RUN! KELZILLA IS ON THE LOOSE! (p.s. it was that time last week when I was freaking out so bad and the blisters came) Bad news.

xo

[Trinity4]

I know I say this alot, but hopefully the longer you're on tx, the less sx you will experience.  That is how it was for me.  Can't remember how long you've been on tx, but I'm at wk 20 and it's so much better than the first 12 wks.  Started leveling out around wk 12 - 14. Fatigue is constant, but I guess I've just learned to live with it.  Aches and pains come and go but I don't have those horrible stabbing pains in my back and legs like before.  My head itches too, noticed my hair if falling out more and I've got this rash under my arms that is driving me crazy.  If I sleep 4 hrs straight I feel like a new woman. I think treatment has finally beat me down into submission because I just do what I have to do and everything else can wait. Talk about a priority shift.   My dog hates me because I'm the one doing all the barking now!   Work for me is a good thing - gives me a reason to get up everyday and occupies my mind.  I don't think I could quit unless medically necessary.  Hang in there Kelle -  you are so lucky to be UND and everything will work out - try not worry too much.  Positive attitude - go Kelle go!!!
Trin

[Kristina538]

I'm glad you're feeling better and I empathise about wanting to stop;  however if you're UND, you have FANTASTIC reason to carry on!!!!  Mouth problems can so interfere, - it's great for you that there's been an improvement.

I decided that if there was any chance of getting rid of this thing it didn't matter if I lost my job, my house and all of my friends - that my world could WAIT for me, rather than me function in it crippled by this bug.   I'm due to go back to work in October - by which time I'll know what kind of chance I have with tx.

Good luck with the sx's... it sounds as though you're managing really really well;  I can understand the 'I don't know how I am from one day to the next' - it does make it a little hard to plan!!!