Aa
Introduction
Hello to all,
I started my combined tx of peg-interon (1.5) and ribavirin(1400mg) this past Thursday the 28th. I decided today that a support forum/group is needed.
I am end stage , Genotype 1.
I could really use some help getting thru this. Thanks.
Gary
I started my combined tx of peg-interon (1.5) and ribavirin(1400mg) this past Thursday the 28th. I decided today that a support forum/group is needed.
I am end stage , Genotype 1.
I could really use some help getting thru this. Thanks.
Gary
I am Ms.Alka Kakade I am new member of this forum.I want share to you about health and fitness discussion.
Thank you so much, I needed to read that today, shot 23 was yesterday, and it has been kicking my butt today!! I think I am going to get a big glass of ginger-ale and the remote and call it a nite! Pam
wow,,you are at the finish line,,,good for you!! i pray you get a big svr and stay svr for life!!!!! hope you are feeling good.
WELCOME! Good luck on your tx. This forum has helped me so much as I am sure it will you too. I am at week 23/24. I have read many stories of people stage 4, treating , then next biospy stage 2 or 3. So keep the faith. Pam
Welcome to the forum! I totally agree with Bug,,its never too late! You sound determined to win. Not only "sound," but you are,,,proof of the pudding is shedding the weight. that is a big accomplishment!! Good for you. You sound like you are on the right track.
I look forward to hearing of your continued success,,and we have members on board who have had successful transplants and are doing well,,so hang on,,you're looking good!
I look forward to hearing of your continued success,,and we have members on board who have had successful transplants and are doing well,,so hang on,,you're looking good!
Hi Rick and the rest of the gang!
Thankyou for a warm welcome and your prayers.
At first, I too surfed the internet looking for some little piece of anything that could help me. I learned a few things...milk thistle, dandelion, etc. I also learned that it was scaring the bageebers outta me! :D So I stopped. The day I started tx....I searched again. The very first link was this forum.
Gary
Thankyou for a warm welcome and your prayers.
At first, I too surfed the internet looking for some little piece of anything that could help me. I learned a few things...milk thistle, dandelion, etc. I also learned that it was scaring the bageebers outta me! :D So I stopped. The day I started tx....I searched again. The very first link was this forum.
Gary
Congrats on starting tx! Little insight about myself I'm co-infected with HIV/HCV. So I know a little about what it means to hear the words struggle, stopping and turning your life around. Know that here you will find comfort, strength, and courage, as I have. WELCOME. You know what, friend? Technology in medicine has advanced so much just even within the past few years that so many positive things are coming. So just hang in there with us! We're here for you!!!! Like someone said in a previous post just doing this tx may turn things around for you! Will keep you in my prayers!
In Him,
Rick
In Him,
Rick
Never too late! Think of how much you've grown and gained from turning your life around. We have many members who have received transplants, many who have reversed damage thru tx. Thank God you were led to that dr. who has started you on the road to recovery. Treatment isn't always the cure we are looking for, but it buys time and hope that we will beat this eventually. Your hope and attitude and our prayers will help you through this. The hardest part is to remain positive. But do it anyway!
Best of Luck,
Best of Luck,
On Thursday we were told I had a 25% chance of beating this. My cirrhosis was alcohol related. Virul load is 1.4mil.
I know I have a battle ahead and I am ready. I have a large family here at home (6) and I am afraid this is to much for them. Last year my wife went thru breast cancer and she has made it thru 100% and is cancer free. Now this.
The doctors did not encourage me to go on the antivirul program . However last year a cold brought me to my doctors office. My doctor wasnt in and I saw a different doc in his office. He and he alone knew what was wrong and started the ball rolling.
I was heavy to begin with and have in the last year (Jan 4) shed 102lbs on purpose and have turned my life around completely. Perhaps to late.
I know I have a battle ahead and I am ready. I have a large family here at home (6) and I am afraid this is to much for them. Last year my wife went thru breast cancer and she has made it thru 100% and is cancer free. Now this.
The doctors did not encourage me to go on the antivirul program . However last year a cold brought me to my doctors office. My doctor wasnt in and I saw a different doc in his office. He and he alone knew what was wrong and started the ball rolling.
I was heavy to begin with and have in the last year (Jan 4) shed 102lbs on purpose and have turned my life around completely. Perhaps to late.
Hi Gary,I am new here too. Initially when I was diagonised with hep c,I was confused as I had absolutely no idea on this disease.
I started surfing the net to get as much info as possible and visited several sites,but for the time being my search has ended here since I feel these guys are an absolutely wonderful,knowlegable and proactive group of people to whom you pose any question, however small it may seem, and you are sure to get a lot of suggestions and advise on it
Welcome to the forum and wishing you all the best with your treatment!
I started surfing the net to get as much info as possible and visited several sites,but for the time being my search has ended here since I feel these guys are an absolutely wonderful,knowlegable and proactive group of people to whom you pose any question, however small it may seem, and you are sure to get a lot of suggestions and advise on it
Welcome to the forum and wishing you all the best with your treatment!
Sorry to hear that you are esld. I always thought that esld were mostly too far gone for treatment, especially if you have low platelets, which is common with esld.
I would get frequent lab tests, at least every two weeks, to make sure platelets are not dangerously low and frequent pcr's early to determine if you are responding. If you are having acites problems prior to treatment, you and your doctors need to watch you closely.
I assume from your remarks that because of the shortage of livers everyone on the transplant list at your center is being treated just in case they respond and thereby saving livers for others. I would not think that all that many people in that situation would be strong enough to complete treatment (I know I could not have after suffering liver failure and then getting a transplant in 2001). Geno 1 and cirrhosis sounds pretty tough to beat, but hopefully your are fortunate and will respond to therapy.
It is possible to get rid of the virus after transplant, as some on this board have done. I am geno 1, post-transplant and am in week 27 of treatment, undetectable since week 22. I will be doing 72 weeks of treatment, as the thinking among a growing number of hepatologists is that difficult to treat patients need to go 72 weeks now to have a reasonable chance of obtaining svr.
Good luck with your treatment, and keep everybody informed of your progress.
I would get frequent lab tests, at least every two weeks, to make sure platelets are not dangerously low and frequent pcr's early to determine if you are responding. If you are having acites problems prior to treatment, you and your doctors need to watch you closely.
I assume from your remarks that because of the shortage of livers everyone on the transplant list at your center is being treated just in case they respond and thereby saving livers for others. I would not think that all that many people in that situation would be strong enough to complete treatment (I know I could not have after suffering liver failure and then getting a transplant in 2001). Geno 1 and cirrhosis sounds pretty tough to beat, but hopefully your are fortunate and will respond to therapy.
It is possible to get rid of the virus after transplant, as some on this board have done. I am geno 1, post-transplant and am in week 27 of treatment, undetectable since week 22. I will be doing 72 weeks of treatment, as the thinking among a growing number of hepatologists is that difficult to treat patients need to go 72 weeks now to have a reasonable chance of obtaining svr.
Good luck with your treatment, and keep everybody informed of your progress.
Hi Gary. I just wanted to say hi and wish you the best! Let us know how you're feeling and doing! Hang in there.
good luck with your condition.
i'm a beginner in every sense of the word but i do remember reading somewhere that liver transplants in hep-c patients aren't recommended unless the virus in the old liver is treated coz the virus will still be in your body and sooner or later will affect the new organ.
maybe one of the vet posters can address that issue.
wyntre
i'm a beginner in every sense of the word but i do remember reading somewhere that liver transplants in hep-c patients aren't recommended unless the virus in the old liver is treated coz the virus will still be in your body and sooner or later will affect the new organ.
maybe one of the vet posters can address that issue.
wyntre
Yes, this past year I worked toward the transplant. Finished all the testing...when my GI told me "They are turning every patient I send up for transplant,back who hasnt gone thru the antivirul program. So here I am. I dont know what the odds are for me, dont know if I want to know.
I live in N/E Pa. and the doctor availability is scarce due to the malpractice insurance issue. I feel fortunate and somewhat at ease right now having you folks with me.
I will be posting some questions soon.
I live in N/E Pa. and the doctor availability is scarce due to the malpractice insurance issue. I feel fortunate and somewhat at ease right now having you folks with me.
I will be posting some questions soon.
Welcome GB,
Sorry to hear of your condition but glad you found the forum.
Is a possible liver transplant on the horizon? I sure hope the best for you in your treatment. It really helps to express your feelings in a place where people are supportive. Nice to meet you and once again WELCOME
Sorry to hear of your condition but glad you found the forum.
Is a possible liver transplant on the horizon? I sure hope the best for you in your treatment. It really helps to express your feelings in a place where people are supportive. Nice to meet you and once again WELCOME
Thankyou all for a very warm welcome. And a better year for all.
I have had one shot and that was on Dec. 28th, last Thursday. Also, I started my Ribavirin that morning. I take 800 mg with some food in the a.m. and 600mg in the evening with food. I also take diuretics to keep away the ascities. I dropped all the water weight this past 10 months ( 32 oz. fluid restriction) and as of last week its basically gone (ascities).
I need to be very careful about the water requirements. The doc has changed the 32 oz to 64 oz for now to see how I tolerate the extra fluid. I do notice the headaches when I need water. My shoulders hurt like mad, and sometimes my shins and forearm. The later being minimul so far. I noticed the anxiety today and my doc said to take a xanax. Now my liver hurts on the right side. I noticed an ever so slight bit of confusion too. I take Aleve in the a.m. and p.m. for pain.
Thanks for being here....all of you!
I have had one shot and that was on Dec. 28th, last Thursday. Also, I started my Ribavirin that morning. I take 800 mg with some food in the a.m. and 600mg in the evening with food. I also take diuretics to keep away the ascities. I dropped all the water weight this past 10 months ( 32 oz. fluid restriction) and as of last week its basically gone (ascities).
I need to be very careful about the water requirements. The doc has changed the 32 oz to 64 oz for now to see how I tolerate the extra fluid. I do notice the headaches when I need water. My shoulders hurt like mad, and sometimes my shins and forearm. The later being minimul so far. I noticed the anxiety today and my doc said to take a xanax. Now my liver hurts on the right side. I noticed an ever so slight bit of confusion too. I take Aleve in the a.m. and p.m. for pain.
Thanks for being here....all of you!
2 X what Copyman said.
I could barely spell HCV when I was diagnosed in 2005 [geno 1b, stage 3, VL 27,000,000 +, infected in 1974]. After a bunch of searching and trying a few boards, this was the most active, and by far the most informed. What was also obvious was that many the longer-term members here all seemed to know eachother's situation and history. A great group, and a terrific place to learn.
Welcome!
I could barely spell HCV when I was diagnosed in 2005 [geno 1b, stage 3, VL 27,000,000 +, infected in 1974]. After a bunch of searching and trying a few boards, this was the most active, and by far the most informed. What was also obvious was that many the longer-term members here all seemed to know eachother's situation and history. A great group, and a terrific place to learn.
Welcome!
This forum has helped me so much. Before I took my dx. seriously, I looked at this website a few times and thought "Whew-not for me! I'm healthy not like that bunch of sick people!"
I started tx 12/08 and this website is a lifeline for me. There are so many wonderful supportive people here, you're not alone.
Congratulations on starting tx! Hope for your success against this disease in '07.
I started tx 12/08 and this website is a lifeline for me. There are so many wonderful supportive people here, you're not alone.
Congratulations on starting tx! Hope for your success against this disease in '07.
welcome, you have come to the right place for support. there are very knowledgable people here. i'm still kinda of new and still learning but most here have been through it all and will be able to help you. when i first found out i had this dreaded disease i joined several forums but this is the one that provides the most medical & technical info. not saying there are docs here but even better that those here have lived through it and can give you first hand help. best of luck in your quest to slay the dragon and happy new year.
Welcome GB, sorry to hear about your condition. You will find a lot of advice and support here. Just remember that everyone has a different experience, different reactions and different advise from different doctors. We are sharing information but always express your concerns with a doctor before acting on anyone elses thoughts.
So how were your first couple of injections? Any serious sides? If you have been reading for a while, there are a lot of tips on how to handle sx. Biggest tip here is to drink a LOT of water. It really helps. Look forward to seeing your posts as you journey through this nightmare with the rest of us. Happy New Year
So how were your first couple of injections? Any serious sides? If you have been reading for a while, there are a lot of tips on how to handle sx. Biggest tip here is to drink a LOT of water. It really helps. Look forward to seeing your posts as you journey through this nightmare with the rest of us. Happy New Year
Have an Answer?
You are reading content posted in the Hepatitis C Community
Learn about this treatable virus.
Getting tested for this viral infection.
3 key steps to getting on treatment.
4 steps to getting on therapy.
What you need to know about Hep C drugs.
How the drugs might affect you.
These tips may up your chances of a cure.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
