Thanks for your reaction,Mike.
I think the conclusion becomes inevitable.....i have got an uninterested and bad doctor.Which doesn't rhyme with the arrogance that seems to be her main character trademark.
But what bothers me most of all,is she does not seem to be interested in her profession.And in this case that is just dangerous to me.
Gonna find out how to do this...
I do not have a lot of money,i have got a basic insurance,and in Holland it is like it is everywhere.......If you got money you can choose what ever you want but if you dont you either roll with the punches or get smart.
I really need to stand up for my self.
point is,this treatment also changes you mentally.
Sometimes i find it hard to judge if im under influence of mood-swings due to the interferon use, or if im just right.
But which ever way i look at it......I NEED TO FIND AN OTHER DOCTOR!
thanks for listening!!
Yes, the meds can affect your mental state but that doesn't mean you're not right to be concerned with the care you've been receiving. It sure doesn't look right to me.
Good luck,
Mike
I cannot navigate the web on this PC and read all that is written above the 'Post a comment box' but From what I have been able to piece together based on this post
http://www.medhelp.org/posts/Hepatitis-C/How-to-treat-a-rash-while-on-tripple-treatment/show/1852867#post_8570617
You started triple with Incivek on Monday November 26 and stopped the Incivek around November 30 because of the rash.
http://www.medhelp.org/posts/Hepatitis-C/How-to-treat-a-rash-while-on-tripple-treatment/show/1852867#post_8570617
In this post you said you became UND on Monday which was May 24
http://www.medhelp.org/posts/Hepatitis-C/How-long-should-i-go-on-when-im-free-of-the-virus/show/1953778#post_9152800
If ("if") these dates are close then give or take a day or two it means you have been on treatment for around 205 days (aprox 29 weeks) and have und for about three weeks now. Said another way you did not become und until 25 weeks rounded down or day 179.
You are getting great advice about your doctor. You really deserve better than what this doctor is giving you. I really understand your fears about changing, as I have had those same fears when I've had to change, and its really hard to put them aside, but that's what you must do. No one else is going to make your health as high a priority, especially if you don't do it yourself. Mike is also right about your ribavirin dose. I weigh quite a bit less than you do and I was on 1000 mg per day, 600 in the morning and 400 in the evening. Good luck with finding a new doctor!
AT 90 kg and without any other contraindications I think the correct dose is 1200 mg per day
Well I assume that even in Netherland you do have the right to formaly complain if the doctor is not doing their job. She might satrt to pay more attention then
It is your right to get proper care and is her duty to provide it. Protocols for this tx are very clear. You do have the right to ask why she is not repsecting them and I hope she will have a very good explanation on why she is messing it up
Don't worry about the fact they speak between them, it is your right to do whatever you feel the best for you
Try to contact a patient advocate organization and maybe someone from their end will join you during your doctor visits. It is not acceptable to have a doctor avoiding talking to you and not explaining exactely what your treatment plan is and why
I hope you find some support there
http://www.drugs.com/comments/ribavirin/
Yes,i looked it up,my dose is very low.(see above)
It looks like after stopping the incivo,my doctor forgot that
a combo therapie asks for raising the dose of ribavirin.
But as usual...i just cant reach her.........
Thanks for all your support,guys and girls.And man and woman,of course.
(-:
Jeeee,i miss not worrying about all this....this misery.