Let me know what your doctor says, I would like to compare notes,
thanks dear,
Carolyn
Hey everyone,
I was told and I read in my medication guide that steroids were not good mixes with tx also. I am on a steroid cream for the last 14 hours, and the rash has only gotten worse, but itching has been relieved somewhat. I have another post going asking questions also regarding this situation. I will wait till this first drug is out of my body before I seek more drugs. Hugs,
Carolyn
nygirl7 is correct -if you find a dermatologist that is knowledgeable about the effects of these drugs, you can be treated. I did not take Incivek but was in a trial with possibly two DAA's. I had a horrible rash which threatened to cause end of participation. My wonderful doctor referred me to a derma who had already met with the drug companies about these rashes and he was expecting it. He gave me a few prescription creams and a shot of long-acting steroid - I forget the name of it but you can look over my old posts to find out. It had everything under control within 12 hours.
I'm going thru the same. It started at week 9 and tomorrow i start week 11. I saw my Doctor on Monday and i will be seeing him on Friday and he stated we might have to stop the Incivek. The rash is getting worse, it started on my forehead and now all over my neck, throat,upper body , arm and now my legs are breaking out, i'm so bad i dont want anyone to see me this way.
Karl62
So sorry to hear about your situation .. the following is not from this forum , but another I frequent that has a nurse practitioner working as a member and works at a large clinic .. I know this isn't helping your situation .. other than to know you aren't alone having a severe reaction ...
" We are part of a major academic hospital and we have really seen the gamut with the telaprevir rash and honestly one patient in the icu is enough to give you pause. it's also sobering because these patients seem to have come in rapid succession, i think two were admitted at the same time. we are up to 5 admissions for telap rash"
I really think you should find out from your doctor what dermatologist knows about hcv and treatment.........perhaps they can consult with each other or something. It was the only thing that helped me.