Just found out I relapsed,, soooo upset,, help!!

[fashion345]

Help,,, just found out I relapsed at 1300 pcr,,,sooooooooooo upset,,, since I have only been off drugs 1 month,, they want to start me on interfergen,,, what should I expect,, shots daily,, worse sx???

[fashion345]

Thank you babs824.. really appreciate your kind words.

evangelin,,, also thank you,,, knowing about your husbands reaction is helpful.
Did he acheive svr with the infergen?

[evangelin]

For what it is worth, my husband had worse side effects from Peg- intron than he did Daily Infergen.
Ev

[babs824]

so very saddened by your news. must be a giant kick. i do not have sufficient info to advise. your daughters wedding is a special day so i hope by then you have some resolution so you can move forward. i too am geno 2b and am hopeful waiting for week 12 results. i no longer take anything for granted and your story makes that point more potent. stay close to us here. at least you have folks who really get it. sending a warm hug, babs

[fashion345]

Thanks Bill!  Will ask the dr.

[Bill1954]

A difficult aspect with genotype 2 relapse is that it rarely happens, and the signposts are scarce when it comes time to retreat. I’d imagine your doctor is forced to fly by the seat of his pants a bit; there won’t be very thick pile of stats and supporting studies.

Rethinking this, Infergen might be something to consider. Almost everyone that uses it has relapsed or suffered other types of non-response, so as a group, Infergen numbers won’t look good by design. Plus (and I haven’t looked yet), I bet most of their data is based on genotype 1. When your doctor does call, maybe you could ask him if there are studies that have pulled GT-2 out of the fray, and see if there are any SVR figures for that genotype.

I’m aware of at least one gal in here right now that’s using Infergen and isn’t having any difficulties with it. She’s GT-1 and wasn’t reporting problems or side effects with her Pegintron either; other than a slow response, of course. I’ve heard other anecdotal reports that said it was comparable to either Pegasys or Pegintron; but by and large, this isn’t the norm.

Take care of yourself,

--Bill

[carol411]

Oh, I am so sorry.  I understand your reaction, it is sooo not fair.  I can't offer any tx advice because I don't know enough, but whatever you decide to do does not have to be decided immediately.  As you said, you have just been kicked in the stomach.  Once you have absorbed the shock you will be able to make a better decision.  My heart is breaking for you too.