Little to NO symptoms on triple treatment

[journey91]

I know there are a lot of people out there with some crazy side effects of treatment. Is there anyone out there who has experienced little to no symptoms with triple treatment. Doc keeps saying I could be one of the lucky ones but want to know how many lucky ones are really out there! Thanks everyone for the help!

[nowhine]

No one brought up the option of waiting and not treating at this time. I agree with Lifenet62, get all your test and biopsy completed. If you are young and early stage of liver damage why not wait. There are many, many new meds in trails, or soon to be in trails, that may kick this stuff with shorter treatment durations and fewer side effects. It may be 3-5 years before we have the outcomes of these trials but we know HCV often takes 20-30 years before any significant damage occurs. In the past 8 years that I have been following we went from approx. 45% cure, for g-type 1, to 80%. Your doctor will know whats best.

[fretboard]

I have only run into one person at a HepC support meeting.  He was one of the facilitators, young kid around 20-25.  Genotype 2, tx'ed for 6 months and said he never felt any sx;s at all.  He was only on SOC tho'.  Good luck to you.  

[hostalavistababy]

"Have an IL28b aliele gene test done. Insist on it. This will give you a better idea as to how therapy will be tolerated."

If you mean how well the individual will respond to interferon according to their specific allele this is true but allele doesn't effect how well the individual will tolerate treatment.  As info, with triple therapy, CT & TT doesn't necessarily mean an unfavorable response.  Since journey was inquiring about side effects, thought that might be a good point.

[Lifenet62]

Try to not get too involved with researching..... The good the bad the ugly. Get your liver biopsy and ultrasound first. Get your genotype. Have an IL28b aliele gene test done. Insist on it. This will give you a better idea as to how therapy will be tolerated. There are three grades. CC, CT and TT. When you have all of this valuable and important info, then you will be prepared to seriously "shop" tx ( treatments). I did what you are doing and I am very similar to you in your outlook. I almost drove myself to anxiety attacks. Take it one day at a time, be proud of who you are and dlay the dragon. We are all here for you journey. Jan

[journey91]

Absolutely will :) thank you tons!

[Bill1954]

It’s really important to keep in mind that people that are largely unaffected by the disease and/or its therapy are underrepresented in internet forums. They manage to get through all this with few issues and aren’t compelled to find support. Weigh this into your equation as you go forward; good luck to you,

--Bill