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Low WBC, sarcoma and HepC
My brother has hepC and all of his blood counts are off. He has a low WBC and low platelets. I have read that an enlarged spleen can account for this. However, he also has a sarcoma on his ankle, but his HIV is negative. Can the fact that he has a low wbc contribute in anyway to his sarcoma?
hello again, what do you think about Jim leaving, it upset me I got so much from as newbie he really helped me do my homework on this damn disease, I hope he comes back soon.
Re; eprex, the pharmacist today checked with phermacare for me to see if my doctor could get "special Authority" she called it, they said no, so I hope you will kindly let me know how I go about what you did with Amnemia Insitute.
You mentioned visuliaztion and imagery is what you did, isn't imagery the same thing, fill me in DAH!!!!!!!! would like to know, I do the visual, hope it helps, I myself believe in it.
Let me know how you did with sides, am interested, stay healthy
Re; eprex, the pharmacist today checked with phermacare for me to see if my doctor could get "special Authority" she called it, they said no, so I hope you will kindly let me know how I go about what you did with Amnemia Insitute.
You mentioned visuliaztion and imagery is what you did, isn't imagery the same thing, fill me in DAH!!!!!!!! would like to know, I do the visual, hope it helps, I myself believe in it.
Let me know how you did with sides, am interested, stay healthy
Thats a relief to know theres help for Anemia as it is $1800 a month, I asked the pharmacist, no way I can afford that, its really been worrying me, as I don't want the dosage dropped, I want to go all the way, whatever it takes. How would I go about contacting the "Anemia Institute" I like to be prepared and do my homework ahead of time so if it should happen I can be on top of it won't get scatter-brained.
Natalie just called, my thyroid came back today still a little low, she said if my GP gives Schering a letter saying I've been stable with Synthroid I can start next week. I just want to get this started, the waiting is so stressful, theres no way out, so lets go for it, no choices is there.
Do you recall how often you had a PCR, although it may be diferent for me being in a study, or were you in a study as well, can't remember, brain fog alrady and I haven't even begun. How did you make out with sides. My patelets are 200,000 and my WCB is 7.93, hemoglubin 154, neuts 4.58, hope that helps me, my GGT is high 258 range is 5-50 not sure if that will have any affect or not. I have all my lab bx printouts for refrence, I'm glad I have.
To repeat myself, I am sooooooooo happy for you, stay healthy and thanks galore for your help..............
Natalie just called, my thyroid came back today still a little low, she said if my GP gives Schering a letter saying I've been stable with Synthroid I can start next week. I just want to get this started, the waiting is so stressful, theres no way out, so lets go for it, no choices is there.
Do you recall how often you had a PCR, although it may be diferent for me being in a study, or were you in a study as well, can't remember, brain fog alrady and I haven't even begun. How did you make out with sides. My patelets are 200,000 and my WCB is 7.93, hemoglubin 154, neuts 4.58, hope that helps me, my GGT is high 258 range is 5-50 not sure if that will have any affect or not. I have all my lab bx printouts for refrence, I'm glad I have.
To repeat myself, I am sooooooooo happy for you, stay healthy and thanks galore for your help..............
You definitely are in good hands with Dr-Anderson, Lori Lee and Natalie, they are wonderful and they are "gutsy", they did not lower my dosage at the point where I read that a lot of other doctors do.
No redipen then, I had to mix.
My viral load was 1 million five thousand five months before I started treatment, I did a lot of visualisation and guided imagery in the three months before starting, visualizing the virus going out of my body etc... when they did the viral load again, just before start, I was below 100,000... I will never know for sure but I believe what I did was a big factor.
I am 58 - very close to your age...
My hemoglobin started to drop fast and at 13 weeks I had to decrease from 5 pills to 4 - Procrit was not paid then by the Governement and my insurance did not pay it either (it is called Eprex here), so I did a lot of research and calls and kicking and screaming and begging, I finally was able to get some help from the Anemia Institute and they actually sent me the Eprex many times, without them I dont think I could have made it through treatment, they would have stopped it. I went back to 5 pills. If that happens to you and you dont have insurance, let me know. I was able to stay on full dose, and here I am now, SVR!!!
Good luck!
No redipen then, I had to mix.
My viral load was 1 million five thousand five months before I started treatment, I did a lot of visualisation and guided imagery in the three months before starting, visualizing the virus going out of my body etc... when they did the viral load again, just before start, I was below 100,000... I will never know for sure but I believe what I did was a big factor.
I am 58 - very close to your age...
My hemoglobin started to drop fast and at 13 weeks I had to decrease from 5 pills to 4 - Procrit was not paid then by the Governement and my insurance did not pay it either (it is called Eprex here), so I did a lot of research and calls and kicking and screaming and begging, I finally was able to get some help from the Anemia Institute and they actually sent me the Eprex many times, without them I dont think I could have made it through treatment, they would have stopped it. I went back to 5 pills. If that happens to you and you dont have insurance, let me know. I was able to stay on full dose, and here I am now, SVR!!!
Good luck!
You had me busy just now I had to backtrack to see who it was that told me I had a good immune, Lo & behold guess who told me "YOU" chuckle. Go down the threads to "ANC and full dose Pegasys/Oct 16/05" You converted my #'s for me, got my latest results yesterday and it they are a little higher. Like you I had my head buried as well (called denial for me) was dx in 2001
WBC 7.93 Before 7.5
RBC 5.1 4.52
HEM 154 145
NEU 4.5 NEU 4.2
WBC 7.93 Before 7.5
RBC 5.1 4.52
HEM 154 145
NEU 4.5 NEU 4.2
When you say you have strong immune system, what do you mean. What is your WBC #? I am 61, Stage 1, Grade 2, Geno 1b. I have thyroid issues also. Unfortunately I only recently started reading up on Hep C. I've had my head in the sand since I was diagnosed in 1993.
Thanks,
Pirate
Thanks,
Pirate
Sister - Sorry for the slow response, and also about your brother. I dunno about the sarcoma. Gee, sorry again :(
The platelets and WBCs back-up into the spleen, as I understand it. So the enlarged spleen is the result, not the cause.
My simple understanding is that scarring and inflamation in the liver is backing up the plumbing. Portal Hypertension. I also have the impression that by itself this is not the end of the world. There are things that can be done if needed. You can also operate with a pretty big spleen and pretty low WBCs and platelets. I have it too, though my spleen is called 'normal'. But maybe mine started on the small size, so now it's normal. I dunno.
I'm happy to answer more if I can.
Sorry about the name before, Bobby!
If you multiply WBC X Neuts X 10, you should get a number in maybe the 500-1250 range. That's the simple calc for Absolute Neutrophil Count, or ANC. Normal would be like over 2,000, I think.
Most say intervention is appropriate around 300, but some are more conservative and intervene at like 750. Though intervening with Neupogen is the preferred course, a modest peg reduction seems to have significant effect. So, if you reduce down to your prescribed peg dose, I'd guess you'd see a rise in a week or so. A good blast of peg off the bat can't be all bad - knock'em dead!
I hear that low ANC in peg patients seems to result in colds and sore throat like stuff - nothing weird, though who knows. I would WASH THOSE HANDS!
Most say intervention is appropriate around 300, but some are more conservative and intervene at like 750. Though intervening with Neupogen is the preferred course, a modest peg reduction seems to have significant effect. So, if you reduce down to your prescribed peg dose, I'd guess you'd see a rise in a week or so. A good blast of peg off the bat can't be all bad - knock'em dead!
I hear that low ANC in peg patients seems to result in colds and sore throat like stuff - nothing weird, though who knows. I would WASH THOSE HANDS!
WONDERFUL team, I'm fortunate to have same doc, and yes they say CURE, not remision. I have my age against me (65) I have a strong imune, hope that helps. what was your viral load at beginning and end, did you do redipen as well?
stay healthy
stay healthy
WONDERFUL team, I'm fortunate to have same doc, and yes they say CURE, not remision. I have my age against me (65) I have a strong imune, hope that helps. what was your viral load at beginning and end, did you do redipen as well?
stay healthy
stay healthy
Just read your post, I am from Vancouver Island, who is your doctor? Mine was Doctor Anderson (a great, caring team). I was geno 1b - had it for more than 30 years - like you, I was stage 3 - like you my liver enzymes were high (in the 300's), I did 48 weeks - was clear at week 12 - and am still virus free 10 months after finishing treatment. My doctor uses the word CURE.
I believe that if you stay with the prescribed dosage, and have a positive attitude, you have great chances of success. I know many many people who cleared 1b. Good luck to you, it is quite a journey but so worthwhile. Hugs!
I believe that if you stay with the prescribed dosage, and have a positive attitude, you have great chances of success. I know many many people who cleared 1b. Good luck to you, it is quite a journey but so worthwhile. Hugs!
Got my lab results; I'm geno 1b is that harder to cure than 1a or the other way around, HCV-RNA TAQMAN 903000 IU/ml, is this my viral load? My hematology panel was all within range. Chemistry was normal except ALT 174 AST 133 GGT 258 range 5-50 U/L, what is GGT, it seems quite a high count!!!!!!!
They took my glucose and thyroid again today, the study starts Wed so I hope I get results so I can FINALLY get this underway. My hep nurse just came back from a medical conventions back east, and said the vx-950 is looking good as well as Scherings trial. There isn't a trial here in Vancouver on vx-950 or Schering, was hoping to get in it, oh well guess its the redipen trial for me. @ stage 3 don't have much spare time, do I?
They took my glucose and thyroid again today, the study starts Wed so I hope I get results so I can FINALLY get this underway. My hep nurse just came back from a medical conventions back east, and said the vx-950 is looking good as well as Scherings trial. There isn't a trial here in Vancouver on vx-950 or Schering, was hoping to get in it, oh well guess its the redipen trial for me. @ stage 3 don't have much spare time, do I?
THANKS,
THAT IS WHAT I THINK I SHOULD HAVE BEEN DOING ALL ALONG BUT NEVER GOT ANY INSTRUCTIONS FROM MY DOCTOR. MAYBE MY SD'S WILL ABATE AND MY NUETS. WILL LEVEL OFF. THAT IS A 28% REDUCTION IN PEG INTRON.I WISH I COULD LEARN HOW TO SAVE IT TILL I HAVE ENOUGH FOR A FREE SHOT. I AM REAL CONCERNED THAT IT WILL GET BAD ENOUGH TO STOP TX.
ANY ONE HAVE ANY FEEL FOR THE DROP IN NUETS TO 26 ?
BOBBY
THAT IS WHAT I THINK I SHOULD HAVE BEEN DOING ALL ALONG BUT NEVER GOT ANY INSTRUCTIONS FROM MY DOCTOR. MAYBE MY SD'S WILL ABATE AND MY NUETS. WILL LEVEL OFF. THAT IS A 28% REDUCTION IN PEG INTRON.I WISH I COULD LEARN HOW TO SAVE IT TILL I HAVE ENOUGH FOR A FREE SHOT. I AM REAL CONCERNED THAT IT WILL GET BAD ENOUGH TO STOP TX.
ANY ONE HAVE ANY FEEL FOR THE DROP IN NUETS TO 26 ?
BOBBY
do not know regarding your problem but my nuets. dropped from 43 to 26 this test(at week 4)norm is above 44? what the heck? my doctor is a ghost that only comes out on holloween so i did not ask him. maybe i should not have gotten my results and remained in the dark. ignorance is bliss.
i still do not know how much of a shot to take.
the directions say to fill the syrynge with .7 mils. and draw up .5mls. but the box says there is 120u/0.5mls in it so i have been taking the whole shot(0.5mls.). i think it may be too much?
i still do not know how much of a shot to take.
the directions say to fill the syrynge with .7 mils. and draw up .5mls. but the box says there is 120u/0.5mls in it so i have been taking the whole shot(0.5mls.). i think it may be too much?
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