2x relapser hoping!
i am waiting with baited breath- i want to get back to work but scared to due to symptoms as my VL goes up and up. Still lowish, but it bothers me that it's going up. after my second tx, i lost 50% of my hearing and was very weak and confused- so i got on medicaid- hoping and praying that i can tx again with new meds so i can move on.
i had BAD reactions to pega/riba so please please let the pharmasset study
pan out. i want to be off this un-merry go round.
Andiamo txed 6 times and failed until he did the new treatment in a trial and succeeded!
I of course think the new drugs are fantastic, the providers are trying very hard to get these studies out and implemented to help beat this virus and I've heard the null responders are doing well on them,
good luck, I loved the PI's
Mary
I sure hope so and from all I have been reading, it sure does sound very very possible! My infectious blood disease specialist told me I have a very high chance of beating this (class 1a) and I have also done tx twice before, but relapsed after one month off tx.
Sincerely, Starshine
If you can avoid it do not go on Incivek.
-----------------------------------------------------------------------
That seems like a fairlty definitive one size fits all warning about a drug that is having excellent early results reported here.
Also...were did you get the info. that Vic has "no "side effects?. there are many here taking Vic. reporting a multitude of sides.
If you can avoid it do not go on Incivek. It has awful side effects. Docs want that to be the drug of choice because it is simple for them. Of course it is far from simple for us. If you want awful rash, itching and hemorhoids, then by all means take what the doctor recommends.
Otherwise, go with Vic. It works just as well, but without the side effects. You do have to take it longer but, would you rather take it longer and be able to sit and sleep at night.
I know exactly how you feel. I want off these drugs and 48 weeks seems like a life time right now. Don't forget you only have 12 weeks of incivek to do, then see how you feel before you make any decision to stop at 24 weeks. Maybe we'll feel a whole lot better....fingers crossed....if we can get back on our feet 48 may not be so bad and with a higher cure rate. Good luck
I am geno type 1 .. I am now on triple therapy with inevik. I am unt after 2 weeks but my doctor said she wants me to stay on the pegasis and riva for 48 weeks instead of the 24 weeks that would be necessary if i am und because i relapsed twice before..... I really dont want to do 48 weeks one of the reasons i am taking this tx if because it states if i am und i only need 24 weeks.
Also the incevic has many side effects.. My doctor does not beleive me when i tell her the incevic has side effects.
Doncha love hearing good news? Find a hepatologist! These drugs n more news ones are hitting the market. Good luck. Karen :)
There are many of us on here that relapsed on prior treatment that are now SVR with these new meds.......... Best to you
You never mentioned genocide type so I'm assuming type 1, I have the same thing treated in 2007 with interferon and RIBA after 3 months my genius gastro decided to cut my dose because of low WBC and virus spiked right back. I then left him and found a hepatoligist who started me again on interferon but didn't respond then. I then went on infergen for a year, I was und the whole time but relapsed 3 months later. I am now on shot number nine of triple therapy with incevik and am happy to say I was und at 4 weeks. So to your questioned I think it is very possible for you to be cured of this virus now, there has been plenty of success stories on this site alone over the past 4 weeks. Good luck. Joe
From what I understand, if you did actually clear the virus before and then relapsed, that shows that your body responds to the interferon. That's a good thing! Adding the third drug helps to eliminate the virus in the first weeks of tx for many people and then the interferon continues to do it's job. So INC is a good choice for relapsers. I don't know as much about VIC but maybe someone else here can speak to that. Good luck as you move forward.
Lapis
I'm not sure but I did not respond when I went on treatment for the first time. Then I went on it again when the peg came out, I was clear for 10 months but it came back as soon as I stopped treatment. My doctor says I have a better chance with the triple tx. Here's to hoping and praying, I am only two weeks into triple treatment. This is my third week. Don;t loose hope. God Bless