On OFF LABEL Sovaldi and Olysio!

[GrammyA]

In my 3rd week now and feeling really strong.  Without the nasty Interferon and Ribavarin this time - I have had minimal side effects and I am so very grateful!  My 2 week labs came in today and ALL of them are in normal range... including AST and ALT.  Second month of the meds have been ordered and are now on their way so stay tuned for more updates as we knock out these 12 weeks of treatment.  I truly believe this 3rd attempt to SVR will be the final one as it will be the cure I have needed using these 2 drugs!
I will keep you all posted.
Hugs and God Bless!

[mike716]

How are you doing now? (And, how much did you pay for that VL?)

[skewedToTheLeft]

I cannot believe it, but I paid for a viral load test (The insurance company wanted to test me at 4 weeks after SOT but I did not want to wait so I paid out-of-pocket and the nurse called today and said after only 6 days of Sovaldi and Olysio (no riba) I'm undetected. The only side effect I'm having is insomnia. I feel blessed beyond belief!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[mike716]

Hi, all. I haven't abandoned the thread, but I've had a bad summer and haven't had the heart to post.

I was approved for patient assistance for Sovaldi and Olysio in July and have received them. Unfortunately, I lost both the prescribing MD and the lab I was counting on. Without insurance, getting another hepatologist, and a lab are almost impossible it seems. So I'm stuck and am not Tx-ing yet.

I thought that, worse come to worst, I could go back to Buenos Aires and do it there. But my MDs in B.A. refuse to cooperate because the meds aren't approved there yet. So much for professional responsability.

At least the summer heat is almost gone and I'll be able to get around better soon (the heat and humidity in New York aggravate my spinal problems) and start looking for medical help again.

Life is nuts.

Mike

[skewedToTheLeft]

I started Sovaldi and Olysio today (about 9 hours ago) So far, so good. Good luck to all of us. Our time has come!

[truredhead]

Glad to hear about your 2 week tx with S/O. I hope to start the same tx real soon. Solvaldi was approved but we are having to appeal for the Olysio. I have been waiting a long time to treat because I would not treat with the interferon or ribavarin. I have known about 7 years I had the hep c, had to have it for at least 20 yrs. Good luck to all of us who are now getting to kill this dragon!

[georgerosie]

2 weeks into S/O and so far so good. I take mine like clockwork 1/2 hr after breakfast.Only real issues are fatigue,itchy back,[which I had before tx] and achy thighs.All very tolerable.First blood is at wk 4.Using spf 100, long sleeve [spf 50] shirts, brimmed hat,and sunglasses and with all that,limiting my exposure. Mowing lawn on cloudy days or after dinner when shaded and still taking above measures.Drinking a minimum of 80 oz water daily.[half my weight] Hoping it continues as smoothly moving forward.Very grateful.