Yes.. I agree with all of you on this post.
I've complained about this for months to my Dr. prior to them even diagnosing me with gout. I had mentioned that every time I get my Procrit shot, the next day I have issues with my feet, particularly my right foot around the ankle bone on the outer side of it and under the arch. It's a complete nightmare and debilititating. My ankle bone swells red and the pain is phenomenal enough to make me cry. And that's a hard thing to do to me. I'm in the process of getting my Dr. to approve Aranesp, but he said before that the medical group won't do it. It's a total joke. I know they are trying to help my anemia at this point, but 8 years on this drug and I may ahve respiratory issues due from it along with this pain in my feet that is definitely triggered by it. I don't know which is worse. Feeling mildly bad off of it or feeling horribly bad on it. I choose the earlier. I certainly hope my Dr. can get Aranesp approved, as I can't believe a Medical Group would not at least try it to make their patients feel better. I was on it several years back and felt better than ever and never had any issues with it. I hope you all found your answer.
I understand what you mean, but another thing about the tx is it gave me hip pain adn joint pain that were not common sites for gout. Can you take the gout meds while on tx? Can you take anything for the pain? What's the chance of stopping the procrit? I know you're looking for a connection, and I'm trying to solve the problem. We're at crossroads, but that's the little caretaker in me, can't help how I am.
Bug
You might talk to your doc about the use of Aranesp (aranesp.com). It's similar to Procrit (procrit.com) and serves the same purpose. Maybe a switch could relieve some of the effects of Procrit. I've being using Aranesp since about week 8 or so and don't notice any sx's, except for the increased hgb and the corresponding energy level.
I just wondered if artifically raising ones red blood cell production with procrit produces the same symptoms as polycythemia. I've NEVER had gout flareups like this. It's almost crippling.
You had me with you on the gout/procrit link, but lost me when you referenced polycythemia. I did have pain in my big toe for a short while on tx, and it might have been the short while I was on procrit. Who knows? My memory isn't that great to determine if the two coincided.
However, Wyntre's dr is testing her blood work again, because her levels were unusual last time he tested.
Check this out:
http://www.medhelp.org/forums/Hepatitis/messages/46948.html
Bug
i dont see anything new in your reference to EPO. when i first looked it up
a while back, i was clearly informed of its power and danger. the warnings
are at the top of google list, ambulance chasers for wrongful death lawsuits.
beleive me i started reading really closely after i saw that.
of course its not even FDA approved to be used the way we use it. (im pretty sure this is true, correct me if im wrong) this is a pretty mportant fact ive never seen mentioned here. my take on all of this is, this stuff is stronger than interferon. i would expect all types of
little weird things to go wrong that arent listed in the warnings. case by case basis, some tolerate well and others not. as to your situation, it would certainly
seem to be connected (gout and hematocrit level and procrit level), but ive never seen that warning. look deeper for examples and maybe youll find an answer somewhere. the good news of course that it is widely used to great success, but it, like interferon, will bite a few of us in the process.
you sure are letting us down on the philospher/jester posts.
we need more. i cant even stand my own lame jokes anymore!