RELAPSERS Unite Poll

[beeblessed]

Hey Cyber People,

As some of you may have read, I went through tx with noteable good news but at 6 months post now, I have relapsed.  I'd like to thank EVERYONE who has been so kind and offered comfort to me.  I am doing better today.  I thought a poll would be in order now.  Please participate if the criteria applies to you.  Thanks in advance.

Be blessed,
Bee

[rockymoe]

I had an MRI and my liver is smooth not bumpy and doc says it looks pretty good. Triple tx with VIC was my 8th treatment. I think I have a monster strain.I look at it this way yes it is devastating to hear you relapsed. Some one on forum said those 8 treatments helped. Anytime you are clear the virus helps. He reminded me that I am not losing, I'm WINNING I'm still alive. If I had not treated all those times I might not be here right now!

[Bill200]

"I started my first treatment about 6 weeks to 2 months post transplant."

Mike, that's pretty remarkable to me.  Interferon increases the chance of rejection and the chance of rejection is much higher in the first couple of months after transplant and also higher the first year after transplant.

Also I'm surprised they didn't make you wait and see how the new liver would tolerate the HCV.  Some people's go bad quickly and other last many years before showing damage.

Anyway I think your doctor took a risk but not one that I disagree with.

[beeblessed]

Hey Rocky!  Your situation is unique.  How long did you wait between each treatment??  Have you had the same doctor(s) throughout?  Is there something they can do other than put you through weeks and weeks of meds again??

As for me, the soonest I can treat again would be a couple of years, in anticipation of the new drugs.  Thanks and take care, Bee :0)

[rockymoe]

As you know I had to stop Triple Treatment VIC at 40 weeks. My doc told me if he had not pulled me when he did I would have gone over the cliff. The treatment was killing me. I went thru the week of crying followed by depression then I was angry and now I am ready for treatment #9. I have to wait till the all oral drug is approved. I won't be able to do any trials because of what the VIC did to my heart and can never do interferon again.
The good news I had an MRI done and my liver is smooth not lumpy, there is a little fat but I lost 50lbs on VIC so it's not bad.I was happy to hear that the
cirrhosis is not too bad for now. I was pulled at 40 and I think I relasped at 8 weeks. Sorry to hear you relapsed, we will slay this dragon.

[lulu647]

If you are type 2 and have the opportunity for a 7977 riba trial w/o interferon, I would try it. They seem to be having great results

[beeblessed]

Hi Asuncion,

Thanks so much for your understanding. Do your homework here before jumping in with INC.  Great results but Wicked side effects!   There are high hopes for GS 7977 and I heard about another new drug today (but that one is just in Phase 1).

PJ -- Thanks for your answers!  This starts the comparisons.  

Keep 'em coming people!  It will help more people than just me.  Take care everyone.

Blessings, Bee