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SOC side effect poll
Many people on this forum have a lot of personal experience as well as being observing others over the years.
SOC is a very personal decision and there is nothing better than hearing from people actually going thru it.
I asked my trial recruiter about side effects and the deeper I go the more silence I encounter.
Would like to know from all of you out there what you think
according to your knowledge and experience out of 100 people that tx how many will have:
1) no side effects
2) little side effects
3) severe side effects
4) irreversable permant damage
I understand the "everyone reacts differently " part but by now thousands of people have done or are
currently taking interferon/ribavirin so there must be data
What do you think ?
SOC is a very personal decision and there is nothing better than hearing from people actually going thru it.
I asked my trial recruiter about side effects and the deeper I go the more silence I encounter.
Would like to know from all of you out there what you think
according to your knowledge and experience out of 100 people that tx how many will have:
1) no side effects
2) little side effects
3) severe side effects
4) irreversable permant damage
I understand the "everyone reacts differently " part but by now thousands of people have done or are
currently taking interferon/ribavirin so there must be data
What do you think ?
I never got any medi-swag. Now I feel deprived!
Bali05, try to relax! We ARE answering your question.
jd
Bali05, try to relax! We ARE answering your question.
jd
When I talked with my doctor about starting Tx I said, Doc, what would you do if you were in my shoes??? He said he would not treat. He treats people all day with side effects from Inter/riba. What went through my head was, of course, the ones who feels alright do not come in to see you! Much the same with this site. If I cleared and had no more sides, I would not come back other than to say the good news. I appriciate those who still visit the site like NYGirl, etc...
Would like to know from all of you out there what you think
according to your knowledge and experience out of 100 people that tx how many still have their Medi-swag?"
according to your knowledge and experience out of 100 people that tx how many still have their Medi-swag?"
"How could we forget the Medi-swag?"
Gotta admit that is a very good expression! Medi-swag!
Yeah, pretty cool term, I liked it when I heard it. Wish I could claim credit for that bit of wit but it was Staind Glass who went through the R1626 trial with me, a fellow Canuck from BC in the movie industry there so you can kinda see where he would come up with that.
Gotta admit that is a very good expression! Medi-swag!
Yeah, pretty cool term, I liked it when I heard it. Wish I could claim credit for that bit of wit but it was Staind Glass who went through the R1626 trial with me, a fellow Canuck from BC in the movie industry there so you can kinda see where he would come up with that.
How could we forget the Medi-swag?"
Gotta admit that is a very good expression! Medi-swag!
"it seems some have a very hard time directly answering this
question and others have no problem at all - again it is a very simple question and just an opionion
based on what you have seen by observing others over time "
It seems apparently that some people can read the answers and some people cannot. People have answered you as honestly and fairly as any OPINION can be. Opinions are subjective aren't they?
Bali perhaps you have seen now that noone can really answer your question with any certainty. One month people might see more problems then the next month none. One month more SVRs one month more relapses....At some time you just have to poop or get off the pooper. There are no guarantees on any of it and the people on the internet are not really a good cross sample of ALL hepC patients in the first place. A poll would say "did you have any post tx side effects" not "what have you seen" - what I consider hardly any side effect at all to the person having it might appear to be a horrendous problem. So I'd forget it while they remembered it.
One thing I can guarantee though is if you have ever seen anyone die of end stage liver disease - the possible side effects that someone might be left with after treatment are a day in the park comparitevly. That much I can say with certainty.
Gotta admit that is a very good expression! Medi-swag!
"it seems some have a very hard time directly answering this
question and others have no problem at all - again it is a very simple question and just an opionion
based on what you have seen by observing others over time "
It seems apparently that some people can read the answers and some people cannot. People have answered you as honestly and fairly as any OPINION can be. Opinions are subjective aren't they?
Bali perhaps you have seen now that noone can really answer your question with any certainty. One month people might see more problems then the next month none. One month more SVRs one month more relapses....At some time you just have to poop or get off the pooper. There are no guarantees on any of it and the people on the internet are not really a good cross sample of ALL hepC patients in the first place. A poll would say "did you have any post tx side effects" not "what have you seen" - what I consider hardly any side effect at all to the person having it might appear to be a horrendous problem. So I'd forget it while they remembered it.
One thing I can guarantee though is if you have ever seen anyone die of end stage liver disease - the possible side effects that someone might be left with after treatment are a day in the park comparitevly. That much I can say with certainty.
again it is a very simple question and just an opionion
based on what you have seen by observing others over time
- not about being scientific
- not about being accurate
- not just your personal experience and decision
- not the pegasys side effects list
- and not just what your doctor says
just what you think 100 people who will take SOC will experience in terms of sx.
we have precentages for SVR based on RVR,EVR ect....
there definately are precentages ranging from minor to permanent
sx since thousands of people have done it.
you can call it what you want damage , permanent but not severe
ect... a sx that does not go away after tx i think we can all agree
classifies as permanent.
now we can start splitting hairs or just try to answer the question
it seems some have a very hard time directly answering this
question and others have no problem at all
based on what you have seen by observing others over time
- not about being scientific
- not about being accurate
- not just your personal experience and decision
- not the pegasys side effects list
- and not just what your doctor says
just what you think 100 people who will take SOC will experience in terms of sx.
we have precentages for SVR based on RVR,EVR ect....
there definately are precentages ranging from minor to permanent
sx since thousands of people have done it.
you can call it what you want damage , permanent but not severe
ect... a sx that does not go away after tx i think we can all agree
classifies as permanent.
now we can start splitting hairs or just try to answer the question
it seems some have a very hard time directly answering this
question and others have no problem at all
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